My Husband and Cholangiocarcinoma
- This topic has 284 replies, 33 voices, and was last updated 14 years, 3 months ago by
.
-
Posts
-
Hi Margaret,
Great news indeed!! Everything crossed for Tom and I hope they can get the stent inserted.
My best wishes to you both,
Gavin
THE GOOD NEWS CAN JUST KEEP ON COMING!!!
And the good news is that Mayo Clinic in Minnesota wants to see Tom!
At my request, his oncologist referred him and all of his records were sent there yesterday.
Mayo called his oncologist today and they want to see him, they think they can help!!!
We have to ‘hand carry’ the CD from his last scan of the liver.
He has to be there at 7:30am on the 14th of April. Keep those fingers and toes crossed that they are able to get that liver stented!!!
Mayo or bust!!!
KEEP KICKIN’ THAT cancer!!!
Margaret
Hi Margaret,
Great to hear that you and Tom have had a good week last week, and here’s hoping that you both have another good week this week! And glad to hear that Tom is eating well and indeed is eating different foods. I know how much my dad enjoyed his food and being able to eat well was a great joy for him when he could do so!
Best wishes to you and Tom,
Gavin
Margaret and Tom,
I’m so glad to hear you’re getting a break this week! I know you feel as though you’ve been on a roller coaster ride! Hopefully you can take a breath and just relax this week!
I’m so glad to read Tom has been able to make contact with his daughter. What a wonderful gift you gave him by reaching out and making that first move! I see your deep love for Tom in every post I read. You are an amazing woman!
Have a wonderful week, fatten him up and know you are being sent warmest wishes and lots of hugs from the North Carolina coast!
Hugs to you both!
Pam
Margaret….good things are happening in your life. I am happy for you. On to another great week.
Best wishes,
MarionJust thought I’d better post something – we have had a VERY GOOD WEEK! No fevers, no chills, no anything!!! I think the roller coaster is taking a break.
Tom just finished his last round of chemo and has the next 7 days off, so that will give his body time to rest and recuperate!
He’s been eating better this week as well, still skinny as all heck, but eating well!! Also been willing to try more diversity in foods which is good! His latest craving has been for clementines (tiny oranges) and he’s been eating about 2-4 of those a day! Must be something in those that his body is needing right now. He’s also been on a milkshake kick, and ice cream cones. (Not so good for a diabetic, but he needs the calories!) Tonight he was craving Chop Suey so that’s what I made him for dinner. (Whatever the man wants is what he gets!)
I’m hoping that the next week is as good as this one was!
And did I mention that I’ve gotten him re-connected with his first born daughter? He’d not seen her since she was a very little girl. She is now 41 and comes to visit him about once a week and today we went to her house and met her husband and her 5 year old daughter. Her 11 year old son was not there, so we will be meeting him in about a week. (Too bad that it took this illness to finally get them together, but I’m so glad that I reached out to her, and she was so receptive! So far everything is going well and we’re all sharing wonderful memories and trying to pack 37 years into every visit!) Case in point: If you have someone that you haven’t been in contact with, someone who is/was important in your life, make that call! Reach out to them, you may be surprised at what you find.
Go with God and KEEP KICKIN’ THAT cancer.
Margaret and Tom
Hi Margaret,
Glad to hear that you and Tom have bounced back from Friday’s news and are feeling more upbeat. I am sure that spending time with the family was just what you both needed this weekened and I hope you all had a great time.
Now let the butt kickin’ commence again!!
My best wishes to you and Tom,
Gavin
Margaret and Tom,
Glad to hear you have turned the corner and are back to kickin’ butt!!!!!
Hope you had a nice weekend with your family and enjoyed and spoiled those little grandkids.
Take care. I hope everything goes well for the two of you.
Darla
Margaret
I’m delighted you got your old mojo back and your pursuing other alternatives/opinions.Best of luck……………Gerry
Marion, Gavin and Laniy thank you all for your posts and words of support. On Friday when we got that news, Tom was pretty upset as I was. One never wants to hear that you’ll have the bag the rest of your life. But now a few days have passed and we’ve come full circle and are more upbeat.
We’ve accepted it and have decided that ‘it is what it is’ and it could be worse! We are going to have Dr. Dempsey send everything to Mayo for a third opinoin and if Mayo doc’s agree then it will be final. And if it is, then we’re going to see if they can do a stoma which will mean that there will be no ‘Tube’ with the bag and that will be easier for Tom to deal with.
Having a great weekend with our Daughter and Son in law and two grandkids visiting from Iowa.
Go with God and KEEP KICKIN’ THAT cancer.
Margaret
Margaret….I hope that Tom allows himself some time to get used to the “bag.” My father-in-law needed it for several years. He did not like it either however, as time went on, he complained less and considered it to be more a more of a nuisance than anything else.
Hugs coming your way,
MarionMargaret,
I am so very sorry to hear of Tom’s latest news. Not what anyone wants to hear. I know how Dad and I felt as each treatment was ruled out one by one and especially after the chemo was ruled out, as that was the last one. So I know how you are feeling right now.
Please, no apologies what so ever are needed from you about sounding so depressed right now. You have every right to feel that way and also to feel angry. I wish there was something else that I could say that would help right now, but please know that everyone is here for you.
Gavin
- The forum ‘Introductions!’ is closed to new topics and replies.