My husband was diagnosed Feb. 2009

Hi, My name is Jenny and my husband Jeff, age 46, was diagnosed February 16th 2009. We have two girls, Samantha 21 and Sarah 18. We first went to Cleveland Clinic where Dr. Vogt was to remove the tumor. After approximately 4 hours in surgery it was decided the tumor was inoperable. They sent us home with little hope and gave him til October. Our PCP sent us to a wonderful oncologist who in turn sent us to UPMC in Pittsburgh. There we met with Dr. Clark Gamblin who felt that they would be able to remove the tumor. On May 8th after a 9 1/2 hour surgery he gave us the greatest news of our lives that the surgery was a success and they had removed all visible tumor. There was quite a lot of reconstruction and unfortunately the cancer cells were still there. So we did chemo from August until March of this year every week that our counts were good and would switch gemzar to ocsaliplatin ( sp.) every other week. Of course Jeff was so special that we had those 1 in 100,000 things happen!! In January of this year he had a hole in his lymphatic channel that leaked chyle into his abdomen, so Dr. Gamblin inserted a drain and fortunately it healed itself in about 8 days. Then again in August a hole reoccurred, this time it leaked into his lung. After draining the lung they found the cancer had moved into his right lung. He had a drain placed in each lung which we have been draining at home and has luckily slowed down alot! They also found this last time that he had an infection on his liver which they placed another drain and prescribed antibiotics so we are awaiting a pet scan on the 15th and hoping to have all drains removed and then be able to start on the chemo for his lung. Whew… It’s so nice to be on this site to know that there are others who understand what your going through. I am so grateful to have found the site and for all the wonderfully courageous people on here.