August 17, 2011 at 6:48 pm #52165
The oncologist’s office called today and said he wanted John to start back on chemo next Friday, the 26th. I asked the girl if we would be able to talk with him then about his last scans and she said we weren’t scheduled to see him until the second week in September. They are going to put him back on the gemzar and cisplatin. John seems to be getting more tired each day, yet he continues to do as much as he can. He has gone to run errands now. I don’t have much time because the kids will be getting home from school soon and I will be wrapped up in homework. I would like to welcome the other newcomers and just know that everyone here knows what you’re going through. I lost both of my parents last year within five months of each other and I still find myself thinking about calling them and then I remember they’re gone. I find comfort in knowing that they’re with my oldest sister whom I lost 12 years ago to metastisized breast cancer. I will keep each of you in my prayers. PeggyAugust 16, 2011 at 7:29 pm #52164
Please keep us inform about the oncologist new treatment plans.
I Strongly recommend you to seek a 2nd opinion even if not John Hopkins.
God bless.August 16, 2011 at 6:37 pm #52163
Hi PCL1029 and Gavin,
Thanks for your info. John had 11 cycles of the chemo and 9 of the avastin since January 4th. He stopped treatment on May 23rd as the doctor felt he needed a break. We are still waiting to hear from the oncologist about his last scans. I keep praying that all who have this terrible cancer will find some sort of relief. Thanks for caring, PeggyAugust 15, 2011 at 9:18 am #52162gavinModerator
Welcome to the site. Sorry that you had to find us all and I am sorry to hear about your husband. You guys sure have been through so much! I’m glad that you have joined here as you have came to the right place for support and help, and you will get a ton of that here from all of us. And please feel free to ask as many questions as you want and we will do what we can to help in answering them.
I can’t really add much to what the others have already said to you but I wanted to stop by and welcome you here. As the others have said, mets to the lungs from CC happens quite a bit with this cancer and many of the members here or their loved ones have gone through this. Using the search forum function at the top of the page will throw up a number of discussions on this issue. I do hope that you will keep coming back here and let us know how you both get on. We know what you are going through and we care.
My best wishes to you and your husband,
GavinAugust 15, 2011 at 2:45 am #52161
Your husband feels very tired because of Avastin.
How many cycles of Gemzar/cis/Avastin did your husband have?
If he started the Gem/cis/avastin since Jan.4 2011;then it looks like the chemo is not working. There are other chemo medications available for treating CC; so please make an appointment with John Hopkins as soon as possible for consultation.John Hopkins has the #1 hospital overall ranking for the past 20 years in a row by US News & World Reports.Your husband will be in good hands there.
God bless.August 15, 2011 at 1:29 am #52160
Thanks to all who have responded so far. John (my husband) is seeing an oncologist, but he was on vacation when we went Friday. The last chemo he was on was cisplatin, gemcitabine and avastin. He tolerated this well with the exception of being very tired. His white counts and platelets were very low so he usually had to get a shot before he could get his next treatment. When he was diagnosed, he was already Stage 4, so the surgeon said that chemo and radiation were not an option. In fact, they told us that if the surgery did not take care of it, we had no other options. After the surgery (the mass was the size of a softball) and the resulting multiple tumors, the oncologist talked with other doctors and that’s when they decided to treat him with the drugs they use to treat metastatic colon cancer. When he had that adverse reaction, that’s when they switched to the cisplatin/gemcitabine/avastin. We just thank God every day for each day that he gives us and hope for the best. I have noticed that there are many more web sites about CC now than when John was first diagnosed. I have asked the oncologist several times about clinical trials but he doesn’t have much to say on the subject. I just want to keep John around for as long as possible. We live on the east coast so John Hopkins would be the closest to us. Thanks again, PeggyAugust 15, 2011 at 12:16 am #52159nancy246Participant
Hi Peggy, Your husband is a fighter, you both are! He sounds like my husband, very active and fit before cc and now still tries to do as much as he can too (Doug is 60). Our men are brave! As Lainy said, there have been patients with mets to their lungs. What type of chemo has he had so far? At one point, at the beginning of Doug’s treatment he had spots on the lungs consistent to mets that disappeared with chemo. His chemo was cisplatin/ gemcitabine. He also takes naturopathic support. I hope you get your answers soon and they come up with a good plan. As Percy mentioned, don’t be afraid of a second opinion. Take care. NancyAugust 14, 2011 at 9:16 pm #52158
I strongly suggest that you should seek a second oncology consultation for your husband’s CC. Depends on where you live,MD Anderson in Texas;John Hopkins on the East coast,Mayo Clinics in Minnesota or University of California at San Francisco on the west coast are among the few that is well known to treat CC .
In short,you need specialists to see your husband, NP or GP are not enough.
Base on information you provided,the current chemo therapy did not shrink or control your husband’ CC if what you said”The report kept mentioning different lymph nodes and more nodules—on lungs”is what the most current report indicated as compared to the last CT.
Yes,CC can spread to lungs,abdomen,bone, and liver. Since the information you provided for your husband ‘s CC is very limited,most likely your husband will be benefited from clinical trials of chemo treatment provided by the above medical institutions.
God bless.August 14, 2011 at 8:57 pm #52157lainyParticipant
Dear Peggy, welcome to our wonderful family but sorry you had to join us. Wow! You name it, your husband has done it. I would say you both have had quite a journey. I think what also unsettles me here is that you are being made to wait for the results of these latest scans. While we have had patients who have had mets the the lungs they received chemo with good results on these particular mets. If you go to our search button at the top of the page and type in ‘mets to lungs’ I know that posts will pop up on the subject. Also if I know our family, you will be getting more answers after the weekend. I just wanted to welcome you and I am in awe of the joint bravery you both have shown, it’s not easy. Please continue to be strong and please keep us informed. We care.August 14, 2011 at 7:58 pm #5535
Hi, my husband was diagnosed a little over 3 years ago. He was in very good health and ran 4-5 miles several times a week plus worked out. His first symptom was a pain in his right side. After convincing him to see a doctor, thinking he may have a kidney stone, he finally went. She sent him for a CT scan and called him that afternoon to tell him he had a huge mass in his liver. After many tests and biopsies, he was operated on within a three-week time frame. The surgeon thought he was only going to be removing the mass in the liver; however, he ended up removing 70% of his liver, right kidney that was not functioning, part of colon, gallbladder and part of stomach. When he went for his 3-month scans, they noticed some spots on the part of liver that wasn’t removed. Thinking they could be blood spots from the surgery, they decided to wait until his next 3-month scans. At that point, multiple tumors had developed. After going through 10 treatments of chemo, the doctor gave him a break. When scans showed that the tumors were growing, chemo was restarted. He made it through 6 treatments before having a very bad reaction to the chemo. The doctor stopped treatment to rethink what his next step would be. He began treatment again on January 4, 2011 with a different regiment of drugs. Treatment was stopped on May 23rd as he had started experiencing some bleeding and the doctor felt he needed another break. Just went to the doctor Friday, August 12, to find out latest results of scans. The NP said she had not had time to review the scans herself and needed to talk to doctor before deciding what comes next. The report kept mentioning different lymph nodes and more tumors and nodules on lungs. I guess I’m wondering if anyone has had lung cancer along with CC and how they treated it. My husband is 58 now and still does as much as he can on a daily basis. Thanks for any info you can provide.
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