My Introduction
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Matt,
Great news! Thanks for the update, and I am sure this brought new meaning to your Thanksgiving. So very happy for you!
Melinda
Matt,
Thanks for the update. Good to read such positive news. Hope you have had a nice Thanksgiving.
Hugs,
DarlaMatt, I am thankful to hear you are doing well, enjoy life as fully as you can ! Happy thanksgiving to you and yours, and many more, Pat
Hi Matt,
What great news, thanks load for sharing it with us all! And what a greta time for you to get this news, but then again, news like this is good anytime!
Hope you have a great day today with your family!
My best to you,
Gavin
Great news Matt,
What a wonderful way to start the holidays. Enjoy NY and family.
I go back to MDA on the 7th so I’m hoping to be able to share good news also. December last year is when the jaundice came and everything started to fall apart. This year in December I will have lots to celebrate because I’m still here.
I’m thankful this year for family, finding the foundation and meeting Susan and you. We will get together again soon.
To everyone on this site, thank you for all the time and encouragement and knowledge you give us.
Happy Thanksgiving
SherriMatt-
Great update- I hope January is even better. But for now, I wish a very Happy Thanksgiving to you and the family.
Catherine
Matt…..wow…..what a turn around from earlier in the year. You sound far more upbeat and for good reason. What a great gift for Christmas and the New Year. You have indeed been blessed.
Julie T.
Matt…..with news like that a Happy Thanksgiving is more than appropriate. So happy for you. I also wanted to mention that many physicians routinely prescribe Creon following resection.
Have a wonderful time with your family and friends.
Hugs,
MarionA little update.
I had CT scans (chest, abdomen, and pelvis) on Nov 20, 2015 and got the results today. Everything looks fine. There is no evidence of disease. It is, however, hard to “see” in the peritoneal cavity. I’ll have an MRI in Jan 2016 for the next check.
I also had my third infusion of Keytruda today. If I hadn’t mentioned it yet, Merck has agreed to provide me with free Keytruda since my insurance company won’t cover the $12,000 cost every three weeks. Thank you Merck!
I’ve been struggling a bit with malabsorption and fat digestion for the past few weeks. My doctor gave me a prescription for Creon, a pancreatic enzyme replacement, but I won’t take it unless I really have to.
I have much to be thankful for. I’m coming up on my two year anniversary of living with Cholangiocarcinoma and feel extremely fortunate to still be here.
Happy Thanksgiving!
-Matt
There were some concerns that I might have Lynch Syndrome (HNPCC) since my tumor has the MLH1 mutation and we have a pretty frequent family history of GI cancer so I had some additional genetic testing done and it turns out that I do not have Lynch Syndrome.
Good news for a couple of reasons.
1) My children won’t be more likely to develop early GI cancers.
2) The Keytruda that I’m taking has shown to be much less effective in people with Lynch Syndrome
Ref: https://en.wikipedia.org/wiki/Hereditary_nonpolyposis_colorectal_cancer
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