My Introduction
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Tagged: Ascending Cholangitis, Cured, Hope, immunotherapy, Keytruda, NED, SIBO
- This topic has 407 replies, 40 voices, and was last updated 2 years, 3 months ago by Jjet65.
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November 29, 2015 at 3:47 am #80419mbachiniModerator
Matt,
Great news! Thanks for the update, and I am sure this brought new meaning to your Thanksgiving. So very happy for you!
Melinda
November 27, 2015 at 1:21 am #80418darlaSpectatorMatt,
Thanks for the update. Good to read such positive news. Hope you have had a nice Thanksgiving.
Hugs,
DarlaNovember 27, 2015 at 1:03 am #80417herculesModeratorMatt, I am thankful to hear you are doing well, enjoy life as fully as you can ! Happy thanksgiving to you and yours, and many more, Pat
November 26, 2015 at 1:16 pm #80416gavinModeratorHi Matt,
What great news, thanks load for sharing it with us all! And what a greta time for you to get this news, but then again, news like this is good anytime!
Hope you have a great day today with your family!
My best to you,
Gavin
November 25, 2015 at 4:10 pm #80415sherriMemberGreat news Matt,
What a wonderful way to start the holidays. Enjoy NY and family.
I go back to MDA on the 7th so I’m hoping to be able to share good news also. December last year is when the jaundice came and everything started to fall apart. This year in December I will have lots to celebrate because I’m still here.
I’m thankful this year for family, finding the foundation and meeting Susan and you. We will get together again soon.
To everyone on this site, thank you for all the time and encouragement and knowledge you give us.
Happy Thanksgiving
SherriNovember 25, 2015 at 10:23 am #80414middlesister1ModeratorMatt-
Great update- I hope January is even better. But for now, I wish a very Happy Thanksgiving to you and the family.
Catherine
November 25, 2015 at 4:13 am #80413iowagirlMemberMatt…..wow…..what a turn around from earlier in the year. You sound far more upbeat and for good reason. What a great gift for Christmas and the New Year. You have indeed been blessed.
Julie T.
November 25, 2015 at 3:46 am #80412marionsModeratorMatt…..with news like that a Happy Thanksgiving is more than appropriate. So happy for you. I also wanted to mention that many physicians routinely prescribe Creon following resection.
Have a wonderful time with your family and friends.
Hugs,
MarionNovember 25, 2015 at 2:55 am #80411lainySpectatorYes, Matt it is truly a HAPPY THANKSGIVING with much good news. YIPPEE! Have a great Holiday!
November 25, 2015 at 2:13 am #80410mattreidySpectatorA little update.
I had CT scans (chest, abdomen, and pelvis) on Nov 20, 2015 and got the results today. Everything looks fine. There is no evidence of disease. It is, however, hard to “see” in the peritoneal cavity. I’ll have an MRI in Jan 2016 for the next check.
I also had my third infusion of Keytruda today. If I hadn’t mentioned it yet, Merck has agreed to provide me with free Keytruda since my insurance company won’t cover the $12,000 cost every three weeks. Thank you Merck!
I’ve been struggling a bit with malabsorption and fat digestion for the past few weeks. My doctor gave me a prescription for Creon, a pancreatic enzyme replacement, but I won’t take it unless I really have to.
I have much to be thankful for. I’m coming up on my two year anniversary of living with Cholangiocarcinoma and feel extremely fortunate to still be here.
Happy Thanksgiving!
-Matt
November 13, 2015 at 11:28 am #80409scott-sibleyMemberGreat News!!!!!
November 13, 2015 at 11:11 am #80408kernosMemberGood stuff
November 12, 2015 at 9:44 pm #80407marionsModeratorThat’s great news, Matt, all the way around.
Hugs,
MarionNovember 12, 2015 at 8:34 pm #80406lainySpectatorMatt, another good news day. Thank you always for good up dates!
November 12, 2015 at 8:00 pm #80405mattreidySpectatorThere were some concerns that I might have Lynch Syndrome (HNPCC) since my tumor has the MLH1 mutation and we have a pretty frequent family history of GI cancer so I had some additional genetic testing done and it turns out that I do not have Lynch Syndrome.
Good news for a couple of reasons.
1) My children won’t be more likely to develop early GI cancers.
2) The Keytruda that I’m taking has shown to be much less effective in people with Lynch SyndromeRef: https://en.wikipedia.org/wiki/Hereditary_nonpolyposis_colorectal_cancer
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