November 26, 2015 at 1:16 pm #80416gavinModerator
What great news, thanks load for sharing it with us all! And what a greta time for you to get this news, but then again, news like this is good anytime!
Hope you have a great day today with your family!
My best to you,
GavinNovember 25, 2015 at 4:10 pm #80415sherriMember
Great news Matt,
What a wonderful way to start the holidays. Enjoy NY and family.
I go back to MDA on the 7th so I’m hoping to be able to share good news also. December last year is when the jaundice came and everything started to fall apart. This year in December I will have lots to celebrate because I’m still here.
I’m thankful this year for family, finding the foundation and meeting Susan and you. We will get together again soon.
To everyone on this site, thank you for all the time and encouragement and knowledge you give us.
SherriNovember 25, 2015 at 10:23 am #80414middlesister1Moderator
Great update- I hope January is even better. But for now, I wish a very Happy Thanksgiving to you and the family.
CatherineNovember 25, 2015 at 4:13 am #80413
Matt…..wow…..what a turn around from earlier in the year. You sound far more upbeat and for good reason. What a great gift for Christmas and the New Year. You have indeed been blessed.
Julie T.November 25, 2015 at 3:46 am #80412marionsModerator
Matt…..with news like that a Happy Thanksgiving is more than appropriate. So happy for you. I also wanted to mention that many physicians routinely prescribe Creon following resection.
Have a wonderful time with your family and friends.
MarionNovember 25, 2015 at 2:55 am #80411lainyParticipant
Yes, Matt it is truly a HAPPY THANKSGIVING with much good news. YIPPEE! Have a great Holiday!November 25, 2015 at 2:13 am #80410mattreidyParticipant
A little update.
I had CT scans (chest, abdomen, and pelvis) on Nov 20, 2015 and got the results today. Everything looks fine. There is no evidence of disease. It is, however, hard to “see” in the peritoneal cavity. I’ll have an MRI in Jan 2016 for the next check.
I also had my third infusion of Keytruda today. If I hadn’t mentioned it yet, Merck has agreed to provide me with free Keytruda since my insurance company won’t cover the $12,000 cost every three weeks. Thank you Merck!
I’ve been struggling a bit with malabsorption and fat digestion for the past few weeks. My doctor gave me a prescription for Creon, a pancreatic enzyme replacement, but I won’t take it unless I really have to.
I have much to be thankful for. I’m coming up on my two year anniversary of living with Cholangiocarcinoma and feel extremely fortunate to still be here.
-MattNovember 13, 2015 at 11:28 am #80409scott-sibleyMember
Great News!!!!!November 13, 2015 at 11:11 am #80408kernosMember
Good stuffNovember 12, 2015 at 9:44 pm #80407marionsModerator
That’s great news, Matt, all the way around.
MarionNovember 12, 2015 at 8:34 pm #80406lainyParticipant
Matt, another good news day. Thank you always for good up dates!November 12, 2015 at 8:00 pm #80405mattreidyParticipant
There were some concerns that I might have Lynch Syndrome (HNPCC) since my tumor has the MLH1 mutation and we have a pretty frequent family history of GI cancer so I had some additional genetic testing done and it turns out that I do not have Lynch Syndrome.
Good news for a couple of reasons.
1) My children won’t be more likely to develop early GI cancers.
2) The Keytruda that I’m taking has shown to be much less effective in people with Lynch SyndromeNovember 10, 2015 at 2:58 am #80404
Or…are you drinking a LOT of black tea?November 9, 2015 at 10:30 pm #80403mbachiniModerator
Just a thought for you to ponder……maybe the rise in the CA19-9 is that the Keytruda is demolishing the cancer cells and it is in your blood. For me, the only time my CA19-9 was high was when my tumors were shrinking. So I choose to believe that for you as well!!
MelindaNovember 9, 2015 at 10:08 pm #80402
Matt, I was going to stay off the boards for a while until after scans this week, but something drew me back in…..and then I saw your post….so had to see what was up. Congratulations on Merck providing the Keytruda for free…..such fantastic news. And….equally fantastic is that you are not having any nasty side effects.
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