My Introduction

Discussion Board Forums Introductions! My Introduction

Viewing 15 posts - 136 through 150 (of 405 total)
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  • #80416
    gavin
    Moderator

    Hi Matt,

    What great news, thanks load for sharing it with us all! And what a greta time for you to get this news, but then again, news like this is good anytime!

    Hope you have a great day today with your family!

    My best to you,

    Gavin

    #80415
    sherri
    Member

    Great news Matt,

    What a wonderful way to start the holidays. Enjoy NY and family.

    I go back to MDA on the 7th so I’m hoping to be able to share good news also. December last year is when the jaundice came and everything started to fall apart. This year in December I will have lots to celebrate because I’m still here.

    I’m thankful this year for family, finding the foundation and meeting Susan and you. We will get together again soon.

    To everyone on this site, thank you for all the time and encouragement and knowledge you give us.

    Happy Thanksgiving
    Sherri

    #80414
    middlesister1
    Moderator

    Matt-

    Great update- I hope January is even better. But for now, I wish a very Happy Thanksgiving to you and the family.

    Catherine

    #80413
    iowagirl
    Member

    Matt…..wow…..what a turn around from earlier in the year. You sound far more upbeat and for good reason. What a great gift for Christmas and the New Year. You have indeed been blessed.

    Julie T.

    #80412
    marions
    Moderator

    Matt…..with news like that a Happy Thanksgiving is more than appropriate. So happy for you. I also wanted to mention that many physicians routinely prescribe Creon following resection.
    Have a wonderful time with your family and friends.
    Hugs,
    Marion

    #80411
    lainy
    Participant

    Yes, Matt it is truly a HAPPY THANKSGIVING with much good news. YIPPEE! Have a great Holiday!

    #80410
    mattreidy
    Participant

    A little update.

    I had CT scans (chest, abdomen, and pelvis) on Nov 20, 2015 and got the results today. Everything looks fine. There is no evidence of disease. It is, however, hard to “see” in the peritoneal cavity. I’ll have an MRI in Jan 2016 for the next check.

    I also had my third infusion of Keytruda today. If I hadn’t mentioned it yet, Merck has agreed to provide me with free Keytruda since my insurance company won’t cover the $12,000 cost every three weeks. Thank you Merck!

    I’ve been struggling a bit with malabsorption and fat digestion for the past few weeks. My doctor gave me a prescription for Creon, a pancreatic enzyme replacement, but I won’t take it unless I really have to.

    I have much to be thankful for. I’m coming up on my two year anniversary of living with Cholangiocarcinoma and feel extremely fortunate to still be here.

    Happy Thanksgiving!

    -Matt

    #80409
    scott-sibley
    Member

    Great News!!!!!

    #80408
    kernos
    Member

    Good stuff

    #80407
    marions
    Moderator

    That’s great news, Matt, all the way around.
    Hugs,
    Marion

    #80406
    lainy
    Participant

    Matt, another good news day. Thank you always for good up dates!

    #80405
    mattreidy
    Participant

    There were some concerns that I might have Lynch Syndrome (HNPCC) since my tumor has the MLH1 mutation and we have a pretty frequent family history of GI cancer so I had some additional genetic testing done and it turns out that I do not have Lynch Syndrome.

    Good news for a couple of reasons.

    1) My children won’t be more likely to develop early GI cancers.
    2) The Keytruda that I’m taking has shown to be much less effective in people with Lynch Syndrome

    :)

    Ref: https://en.wikipedia.org/wiki/Hereditary_nonpolyposis_colorectal_cancer

    #80404
    iowagirl
    Member

    Or…are you drinking a LOT of black tea?

    #80403
    mbachini
    Moderator

    Matt,

    Just a thought for you to ponder……maybe the rise in the CA19-9 is that the Keytruda is demolishing the cancer cells and it is in your blood. For me, the only time my CA19-9 was high was when my tumors were shrinking. So I choose to believe that for you as well!!

    Melinda

    #80402
    iowagirl
    Member

    Matt, I was going to stay off the boards for a while until after scans this week, but something drew me back in…..and then I saw your post….so had to see what was up. Congratulations on Merck providing the Keytruda for free…..such fantastic news. And….equally fantastic is that you are not having any nasty side effects.

    Julie T.

Viewing 15 posts - 136 through 150 (of 405 total)
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