My Introduction
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Tagged: Ascending Cholangitis, Cured, Hope, immunotherapy, Keytruda, NED, SIBO
- This topic has 407 replies, 40 voices, and was last updated 2 years, 4 months ago by Jjet65.
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May 1, 2015 at 3:48 pm #80344darlaSpectator
Great news Matt. We definite need more of these positive posts on here. Wishing you lots of good luck next week with the surgery. We will be waiting to hear the outcome which I’m sure will also be more good news.
Hugs,
DarlaMay 1, 2015 at 1:23 pm #80343middlesister1ModeratorHappy dance here for you too! YEAH!!!!!
Catherine
May 1, 2015 at 12:30 pm #80342todd1MemberGreat news Matt. Congratulations. Another inspirational story!!!
May 1, 2015 at 6:02 am #80341marionsModeratorMatt……how much better can news get? Fantastic, fantastic. Congratulations and more.
Hugs,
MarionMay 1, 2015 at 3:24 am #80340iowagirlMemberMatt….I’m soooo happy for you. With the events of this last week…and today especially, it was time for some really great news on here. This is what I was praying for for you. Thanks so much for sharing and making my day. So glad to hear that Dr. N. is going ahead with surgery next week. AWESOME!!!
Julie T.
May 1, 2015 at 2:42 am #80339lihuixuSpectatorMatt,
Thank you so much for sharing the wonderful news. I am so HAPPY for you!! Best wishes to you for successful surgery and speedy recovery!!
Lee
May 1, 2015 at 2:33 am #80338mattreidySpectatorThank you all so very much for the thoughts, prayers, and support.
I received the BEST news I could have hoped for at Mayo today – there is NO SIGN of the 2cm tumor I had back in January. Apparently the chemo (gem/cis) was very effective in my case. The doctors at Mayo were quite surprised at how effective the gem/cis was…
My CA 19-9 dropped to 120, not “normal” but on the way there. CA 19-9 has always been a good indicator for me.
Dr. Nagorney, my surgeon at Mayo, has agreed to do surgery on May 7th to verify the scan results and if he sees any remnants of the tumor, remove it. I’m expecting a 2-3 day stay in the hospital.
I’m heading home to VA tomorrow (Fri) and will come back to MN next Wed for the surgery on Thu.
:: happy dance ::
-Matt
April 29, 2015 at 1:31 pm #80337iowagirlMemberMatt…thinking about you today….hoping for good news for you at Mayo. Julie T.
April 29, 2015 at 1:24 pm #80336sherriMemberMatt,
Sending lots of positive thoughts and prayers your way. Hope you get some positive news at Mayo.
Sherri
April 24, 2015 at 12:56 pm #80335darlaSpectatorMatt,
My thoughts are with you. Hoping things go well.
Hugs,
DarlaApril 24, 2015 at 4:58 am #80334marionsModeratorMatt….hang in there…fingers are crossed for the best news heading your way
Hugs,
MarionApril 24, 2015 at 2:43 am #80333mbachiniModeratorMatt,
You got this! That Gem/Cis got to me too! I believe that 5 treatments was the right number to do what needed to be done. Sending you tons of prayers that next week shows shrinkage and surgery is next! Will be thinking of you.
MelindaApril 23, 2015 at 4:40 pm #80332lainySpectatorMy Dear Matt, when I got to the end of your post, I saw a ton of HOPE! I am so sorry for what you are going through but surgery would be the best thing. DO NOT BE AFRAID of a Whipple, my Teddy had one. And I think your CC is in the same place. His too was at the head of the Pancreas. It had NOT entered the Pancreas, luck of the draw. The 2nd day he was already sitting up. It is a lengthy recovery but worth the alternative. Yes, it is a big surgery but not life threatening like the heart would be. After 6 weeks he went to work part time and putted at the golf range. They are doing more and more Whipples now as Teddy’s was 10 years ago. Matt, please don’t be discouraged because if you can have any surgery it is worth it! Looking forward to hearing what Mayo says. With you all the way! Remember you are a youngster with more healing power and T was 73. That does make a big difference.
April 23, 2015 at 4:04 pm #80331mattreidySpectatorA little update for the record…
I had my 5th infusion of chemo (Gem/Cis) on Wednesday, 4/15/15, and by Friday I was feeling very poorly (no energy and lots of diarrhea). My extended family was gathering in NY for my father’s 80th birthday party so I drove from VA to NY for the weekend and felt worse and worse all weekend.
After getting home to VA Sunday night I pretty much didn’t get out of bed for 48 hours. I tried to stay hydrated but wasn’t eating much at all.
Infusion #6 was scheduled yesterday, Wednesday, 4/22/15. I went in and had labs which all came back normal even though I still wasn’t feeling well at all. I decided that 5 infusions was enough. Either it’s helped by now or it’s not going to.
My goal with chemo was two-fold; 1) “check the box” for attempting the “standard of care” so that I can join clinical trials that require that and 2) prove that I can keep the one small tumor I have in my peritoneal cavity at bay with no further metastasis so that my surgeon is willing to operate and remove it.
I’ve been doing the chemo locally in VA and will be heading back to the Mayo Clinic next week (week of 4/27/15) to have a chest CT and abdominal MRI to see if the chemo has prevented any further metastasis. If that’s the case, I will also be meeting with my surgeon to discuss the possibility of operating to remove the tumor. It’s near the head/neck of my pancreas and there is a possibility that a Whipple might be required. I sure hope not…
-Matt
April 16, 2015 at 4:31 pm #80330mbachiniModeratorMatt,
I am so glad that you were able to get a handle on the pain! I hope your vacation brought some great family time and great memories for you to cherish!
Melinda -
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