My Introduction

Discussion Board Forums Introductions! My Introduction

Viewing 15 posts - 316 through 330 (of 405 total)
  • Author
    Posts
  • #80236
    lainy
    Participant

    Dear Matt, as you already stated the scanxiety gets too much at times and is perfectly normal. I have found that before my scans (2 X a year for a Cancer I had) the more nervous I get the better my report turns out. Don’t ask, I am totally weird! I am not a psychic but I have a good feeling about yours and anyway I want to be able to write on here, YIPPEE! Keep yourself busy so you can’t over think and I will have everything crossed for that good report!

    #80235
    mattreidy
    Participant

    Hi Everybody.

    This Saturday, 1/17/15, will be the one year anniversary of my surgical resection with clear margins.

    I’ve made an appointment with my team at the Mayo Clinic in Rochester, MN for bloodwork and an MRI to look for recurrence and/or metastasis.

    This will be my fourth follow-up visit/scan and the scanxiety is going up every day now… I could use some encouragement :)

    Mentally/emotionally I feel great for about a month or two after a clean scan and then gradually start worrying about the next scan until it gets pretty consuming. I know it’s pretty normal but I can’t help thinking about if/when the CC comes back.

    I tell people that this past year, including CC diagnosis, surgery, and recovery, has been both the worst and the best year of my life. I’ve gained a new perspective on life and made some related changes as a result.

    I continue to visit this forum primarily to keep tabs on some of you, my friends, and your journeys. I also try to focus on the long term survivor stories and hope to be contributing to them myself over the years. It is SO SO very helpful to hear from the people who have survived CC for years.

    If anyone’s going to be in Rochester, MN the week of 1/26/15 and would care to meet, I’d love it – let me know!

    -Matt

    #80234
    iowagirl
    Member

    Hooray Matt!!!!

    #80233
    january
    Member

    Congratulations Matt- that’s wonderful news.

    Best wishes,

    January

    #80232
    gavin
    Moderator

    Thats great news Matt, thanks so much for letting us all know! My fingers are crossed for you and further good news from you as well!

    My best to you,

    Gavin

    #80231
    marions
    Moderator

    Matt…..simply fantastic.
    Hugs,
    Marion

    #80230
    mbachini
    Moderator

    Matt,
    Congratulations and keep up the good work!! Always love good news and reasons for hope! Thank you and take care!!
    Melinda

    #80229
    lainy
    Participant

    MATT you get one huge YIPPEE for your post today. I am over the moon with this one and YES I can’t think of a better RX for all than to read of your success! I am so happy for you! All of the upcoming holidays will be doubly good this year!

    #80228
    mattreidy
    Participant

    Hello all,

    It’s been about 10 months since my diagnosis and 9 months since my surgery. I had some blood work done last week and am relieved and happy to say that everything remains normal, including CA 19-9. My next check up with scans and blood work will be in January 2015.

    I offer my good news as a source of hope for others with similar experiences.

    xo

    -Matt

    #80227
    mattreidy
    Participant

    Hi Dianne,

    I’m just now reading your post – I’m so sorry to have missed it!

    Yes, amazing doctors and amazing facility. I’m not going anywhere else for medical care from now on even tho it’s a long haul from VA to MN!

    The only oncologists I saw were while in my hospital room recovering from surgery. I can’t remember their names but know it wasn’t Dr. Alberts.

    I love hearing of others with similar experiences that are still around to share! Best of luck to you!!

    -Matt

    Dianne.N wrote:
    Hi Matt….I wanted to reply to your post because we sound like we’ve had very similar paths, with the same doctors!, and I’m 4 1/2 years post resection! My symptoms started right after Thanksgiving dinner in 2009 with severe indigestion. Then I got the itching and finally an MD friend of mine got me to my local doctor who did an ultrasound and MRI and recommended a major cancer center. I went to Mayo in Rochester in Dec. 2009 and saw Dr. Gores and then Dr. Nagorney…both amazing doctors who saved my life. My surgery was Jan. 5 and I chose not to do any adjuvant therapy. I had a few bumps in the road after the surgery but am pretty much fine now…except that the docs kept scratching their heads regarding some enlarging mesenteric and retroperitoneal lymph nodes. I finally had a biopsy of a mesenteric lymph node that revealed I have follicular lymphoma which is much more treatable than CC. I see an oncologist this afternoon to figure out treatment for the F.L. Anyway, I’m wondering who your oncologist is at Mayo. I had Dr. Alberts initially but for some reason that I don’t understand he has not been assigned to me the last two times I was at Mayo. (Oh, I take Metamucil every day for diarrhea issues – it helps.) I know this must be very difficult for you with younger kids at home, but it sounds like you have a great attitude. We learn to enjoy and appreciate each and every day!
    #80226
    marions
    Moderator

    Looking back at her medial records, my daughter’s white blood count continued to rise for more than 2 years and no physician took note of it. At time of diagnoses she had enlarged lymph
    nodes all through her body, some as big as golf balls. Retrospectively all the signs where there, but no one caught it early. My daughter is 39 years old, completed treatments and is in remission/cured. Dianne, I expect things to work out just fine for you as well.
    Lisa, thanks for your concern. We are in a positive mode, she is young and has recuperated exceptionally well.
    Hugs,
    Marion

    #80225
    lisacraine
    Participant

    Matt…great news!!!!!
    Marion, I did not know your daughter had a diagnosis
    Prayers for everyone!
    Lisa

    #80224
    dianne-n
    Participant

    Marion….My white counts have been perfectly normal. I still wouldn’t know I had F.L. if not for my many scans for C.C. The standard treatment for F.L. is to watch and wait until symptoms present or until lymph nodes get to a certain size, neither of which has happened in my case. My doctors are still discussing my treatment options, but most likely will continue to wait until my next scan, then make the call to either treat with chemo or continue to watch and wait. How old is your daughter and what is the location of her enlarged nodes? Mine were in the abdomen, so not noticeable except by scan. My best to you both! Dianne

    #80223
    marions
    Moderator

    Dianne…..My very best to you as well with the upcoming treatment for F.L. I don’t know much about Lymphoma, but sure is interesting to know that you and my daughter had enlarged lymph nodes and yet there was no correlation to cancer. Had your white blood count been elevated for some time?
    Hugs,
    Marion

    #80222
    dianne-n
    Participant

    Marion…So happy to hear that your daughter is doing well! Yes, I actually had enlarged lymph nodes at the time of my initial surgery for CC, 4.5 years ago. The doctors thought my nodes were maybe reacting to the surgery or to the mesh that I had to have implanted because of an incisional hernia…. and I even had a biopsy of one of the mesenteric nodes in 2011 which did not show any disease. This same node was biopsied last month, this time with a follicular lymphoma diagnosis. The doctors feel that I have probably had the F.L. for many years….interesting that I still wouldn’t know that I have it if not for the many scans for CC.
    My very best wishes for your daughter! Dianne

Viewing 15 posts - 316 through 330 (of 405 total)
  • You must be logged in to reply to this topic.