August 1, 2014 at 12:48 pm #80224
Marion….My white counts have been perfectly normal. I still wouldn’t know I had F.L. if not for my many scans for C.C. The standard treatment for F.L. is to watch and wait until symptoms present or until lymph nodes get to a certain size, neither of which has happened in my case. My doctors are still discussing my treatment options, but most likely will continue to wait until my next scan, then make the call to either treat with chemo or continue to watch and wait. How old is your daughter and what is the location of her enlarged nodes? Mine were in the abdomen, so not noticeable except by scan. My best to you both! DianneJuly 28, 2014 at 11:15 pm #80223marionsModerator
Dianne…..My very best to you as well with the upcoming treatment for F.L. I don’t know much about Lymphoma, but sure is interesting to know that you and my daughter had enlarged lymph nodes and yet there was no correlation to cancer. Had your white blood count been elevated for some time?
MarionJuly 28, 2014 at 2:03 am #80222
Marion…So happy to hear that your daughter is doing well! Yes, I actually had enlarged lymph nodes at the time of my initial surgery for CC, 4.5 years ago. The doctors thought my nodes were maybe reacting to the surgery or to the mesh that I had to have implanted because of an incisional hernia…. and I even had a biopsy of one of the mesenteric nodes in 2011 which did not show any disease. This same node was biopsied last month, this time with a follicular lymphoma diagnosis. The doctors feel that I have probably had the F.L. for many years….interesting that I still wouldn’t know that I have it if not for the many scans for CC.
My very best wishes for your daughter! DianneJuly 25, 2014 at 5:06 pm #80221marionsModerator
Dianne…. so nice of you to chime in. My daughter was diagnosed with Hodgkin’s Lymphoma (yours is Non-Hodgkin’s) and completed treatment a few months ago. She is doing well. What baffles me is the time it takes for diagnoses. Her lymph nodes had been enlarged for quite some time and her white blood count continued to rise for several years prior to her diagnoses.
Dianne, had you not mentioned enlarged lymph nodes way back as well?
Anyway, good luck today and please stay in touch.
MarionJuly 25, 2014 at 12:49 pm #80220
Hi Matt….I wanted to reply to your post because we sound like we’ve had very similar paths, with the same doctors!, and I’m 4 1/2 years post resection! My symptoms started right after Thanksgiving dinner in 2009 with severe indigestion. Then I got the itching and finally an MD friend of mine got me to my local doctor who did an ultrasound and MRI and recommended a major cancer center. I went to Mayo in Rochester in Dec. 2009 and saw Dr. Gores and then Dr. Nagorney…both amazing doctors who saved my life. My surgery was Jan. 5 and I chose not to do any adjuvant therapy. I had a few bumps in the road after the surgery but am pretty much fine now…except that the docs kept scratching their heads regarding some enlarging mesenteric and retroperitoneal lymph nodes. I finally had a biopsy of a mesenteric lymph node that revealed I have follicular lymphoma which is much more treatable than CC. I see an oncologist this afternoon to figure out treatment for the F.L. Anyway, I’m wondering who your oncologist is at Mayo. I had Dr. Alberts initially but for some reason that I don’t understand he has not been assigned to me the last two times I was at Mayo. (Oh, I take Metamucil every day for diarrhea issues – it helps.) I know this must be very difficult for you with younger kids at home, but it sounds like you have a great attitude. We learn to enjoy and appreciate each and every day!July 22, 2014 at 5:12 am #80217wallsm1Spectator
Congratulations!!July 20, 2014 at 6:38 am #80216mbachiniModerator
Great news Matt!! Hope is what we need!July 20, 2014 at 3:48 am #80215willowSpectator
Wonderful news…thanks fir sharing, Matt!July 18, 2014 at 9:13 pm #80214iowagirlMember
Matt….how fantastic!!!!!! I will have a scan again in a couple weeks…..getting anxious….but your news helps with some of the anxiety. The scans don’t always have to show bad things!!! Keep on keeping on….and enjoy life!!!!!
Julie T.July 18, 2014 at 5:46 pm #80213gavinModerator
Thanks for that Matt, brilliant news!! Thanks for sharing this with us all and yes, news like yours offers so much hope to so any people. Looking forward to hearing more good news from you.
My best to you,
GavinJuly 18, 2014 at 4:25 pm #80212darlaSpectator
Thanks for posting this wonderful news. So happy for you. Hope to see more of this in the future.
DarlaJuly 18, 2014 at 3:47 pm #80211robjkMember
Very good Matt, I have my 3 month scan coming up in a few weeks. Although, I started the process the same time as you did. It took me a little longer to schedule surgery, May 15th. I wish you well and stay strong my friend.
RobJuly 18, 2014 at 3:32 pm #80210lainySpectator
YIPPEE, MATT, way to go! May the 6 months turn in to MANY years! Love it!July 18, 2014 at 2:19 pm #80209mattreidySpectator
Today I celebrate 6 months of being cancer free after diagnosis in Dec 13 and surgery in Jan 14.
I post this to offer hope to those that may follow who are lucky enough to have caught this beast in time for a curative resection.
-MattJune 18, 2014 at 5:31 am #80201gavinModerator
Thanks for sharing your good news with us here, we love hearing such news about everyone! Hoping that the news is equally as good when you get your next scan next year as well and also wishing you well with your bulking up! Please keep us updated on how everything goes for you.
My best wishes to you,
- The forum ‘Introductions!’ is closed to new topics and replies.