April 21, 2014 at 2:00 pm #80188iowagirlMember
Matt….just checking in with you…wondering how you are.April 3, 2014 at 7:57 pm #80187
YAY, Matt as others have said congrats on this wonderful news. Enjoy and try not to worry about the “what ifs.” Hugs and blessings.
PorterApril 3, 2014 at 2:09 pm #80186januaryMember
What wonderful news! Enjoy!
JanuaryApril 3, 2014 at 1:27 am #80185kvollandParticipant
WooHoo Matt, sounds great to me. Clean scans, normal Ca 19-9 those are all things we love to hear.
KrisVApril 3, 2014 at 12:57 am #80184marionsModerator
Kudos to you, Matt for making a decision best suited for you.
MarionApril 3, 2014 at 12:49 am #80183lainyParticipant
YIPPEE MATT, music to our ears, kudos and great job. You are so right the prep is nasty compared to the colonoscopy! Good luck on that tomorrow!April 2, 2014 at 11:49 pm #80182darlaParticipant
That is wonderful news! Thanks for sharing it with us. Good luck tomorrow with the colonoscopy, then go on and enjoy your life for the next 6 months and the 6 months after that and the 6 months after that etc. I know that everyone has to make there own personal decision about adjuvant chemo, but I tend to agree with you on the too much risk for too little benefit. Enjoy!
DarlaApril 2, 2014 at 10:58 pm #80181mattreidyParticipant
Just finished my day at the Mayo Clinic and I’m elated.
Blood work is all perfectly normal. CA 19-9 is 11. They did CT scans w contrast from the chest to the pelvis and everything looks great. Clean scans! Normal post-op healing and recovery and no signs of recurrence.
I’m just about due for a colonoscopy so I’ll do that tomorrow just to put my mind totally at ease. If it weren’t for prepping of that test tonight I’d be out celebrating.
I’ve decided againt adjuvant chemo. I personally see too much risk for too little benefit.
I will come back to Mayo in 6 months for another follow up. In the meantime I intend to make them the best 6 months of my life thus far.
-MattApril 1, 2014 at 3:45 am #80180marionsModerator
I think that it is important for us to recognize that diagnoses and subsequent treatments for this cancer are bound to contribute to emotional and physical distress. This disease happend unexpectedly, we are not prepared for it and feel powerless in not having prevented it.
Add to it the subsequent treatments i.e. surgery which in itself is a traumatic event or any of the other available treatments that cause us to be anxious, unwell or even very ill and the answer is clear, we are under duress.
Many will be struggling with upsetting emotions, frightening memories, or a sense of constant danger. Others may feel numb, disconnected, and unable to trust other people. It is said that when bad things happen, it will take time to get over it.
Recognition of the situation is one – repairing the damage it has caused on an emotional level – will take some extra work. I believe that expressing the conflicting emotions with counseling, speaking with others (those that truly understand) and granting ourselves permission to say the things that many cannot bear to listen to, is an important step in the healing process.
MarionMarch 31, 2014 at 1:54 pm #80179
Sorry it’s hard using proper spelling and grammar from my phone!March 31, 2014 at 1:52 pm #80178
Hi Matt. I completely understand how you are feeling. I too get very anxious about the different feelings or sensations in have had since resection. I often tell myself that the doc reminds me too that my body has been through major surgery and that it’ll take lots of time to feel back to normal. In fact in might never feel exactly the way i used to. I am almost 10 weeks post op and I have days that much better than others. I’ll be thinking about ya and wish you wonderful scan results and hope younger some anxiety relief this week after your appts.
PorterMarch 29, 2014 at 3:00 am #80177lornadooneParticipant
Hi Matt, Best of luck next week. I pray that your scans are clean and that you hear everything you need to give you some comfort. The anxiety and stress that comes along with this horrible disease must be over the top. My boyfriend Matt also had successful resection in January. However, he opted to take the chemo with the very strong recommendation of the surgeon and oncologist due to the high recurrence of this cancer. My boyfriend has also been a bit of a worrier especially regarding his health. I say a bit of a worrier but in all honesty he has major anxiety and in this situation it is warranted. I do believe that staying positive has so much to do with the healing process and i try to remind him everyday that everything will be ok and to stay positive. I know it is easy for me to say…right? God bless you and your family and please keep us posted.
LornaMarch 29, 2014 at 1:35 am #80176darlaParticipant
Never having dealt with any of that I can’t really help you, but I think what KrisV said makes a lot of sense. Try not to let the anxiety get the best of you.
Easy for me to say, huh? I hope all goes well next week at Mayo and you come back to us with a great report. Wishing you lots of luck.
DarlaMarch 29, 2014 at 12:37 am #80175kvollandParticipant
One of the things my husband noticed after his surgery was that everything seemed different. He spent most of his time constipated even after he stopped taking the pain pills. One thing that was pointed out to us by the Radiation Onc was that because the left half of his liver was gone, his insides meaning his stomach and even parts of his small and large intestines had shifted more to the middle instead of off to the side. He says that now he feels things in different places that he ever did before and nothing feels “right.” He is ten months out now.
The other thing I always tell my patients, is remember they just cut you open and “played” with your guts, it takes time for all that to heal, something even longer than the 10 weeks you are post-op. There is a lot of swelling and that does take time to go away.
Hang in there and realize that your insides will never be the same as they were before surgery. I still encourage you to get everything checked out for your peace of mind but as you get further out you will get more used to the new normal.
As for the scan anxiety, I don’t know what to tell you. I get it every time we start even talking about one and it’s not me that has to do it. Sometimes I even get a little anxious about the labs.
Hang in there.
KrisVMarch 28, 2014 at 11:15 pm #80174mattreidyParticipant
I’m heading back to Mayo next week for some follow up after a frustrating time getting anyone locally to act with any sense of urgency.
Today I am 10 weeks post op and have had nothing but blood work done. It’s all looked very good, including one CA 19-9 result, however, I just don’t feel “right”. I don’t know if the way I feel is my new normal or something else and my anxiety about it is through the roof. My back hurts. My bowels are sensitive with pretty regular movements but they range from constipation to diarrhea in the same sitting. Maybe that’s just the lack of a gallbladder? I’ve got head aches and I’ve never had them in my entire life before. I can’t feel my bladder getting full like I used to… Maybe that’s nerve damage from the incision across my belly? I fell something but it’s not like it was. I get strange sensations bordering on pain sometimes all over in my GI tract. We have a family history of colon cancer. I’m 47 and had a colonoscopy at 40 that was clear. I don’t have bleeding or blood in my stools or other typical symptoms so hopefully it’s just my anxious mind. I’m afraid to ignore the off/odd feelings I get now. The last time I had some, they ended up being CC!
While I’m at Mayo next week I’ll get blood work, a CT of the chest, a demon, and pelvis, meet with my surgeon who will review the scans to validate my new anatomy, meet with my regular doc who will review scans for recurrence of CC, meet with an onc to see if they recommend anything new, other than gem/cigs, and have a colonoscopy to rule out any colon cancer going on in there.
I’m starting to feel the scan anxiety so many talk about here. Yuck
Thanks for “listening”.
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