Discussion Board Forums Introductions! My Introduction

Viewing 15 posts - 91 through 105 (of 405 total)
  • Author
    Posts
  • #80461
    gavin
    Moderator

    Brilliant news Matt, well chuffed for youi!!!

    Here’s to the next lot of good news from you!

    All the best,

    Gavin

    #80460
    marions
    Moderator

    Matt……fantastic news. The enclosed chart leaves nothing to imagination, it clearly supports your comments of continuous success with your treatment.
    So happy to have met you in person. Are you planning on attending next year’s conference as well?
    Hugs
    Marion

    #80459
    darla
    Participant

    Matt,

    Awesome news! Keep it coming.

    Darla

    #80458
    lainy
    Participant

    Matt. BEATIFUL! LOVELY! Charts! SO happy to read this latest post. YIPPEE! Keep the good news coming as we can never get enough of it!

    #80457
    mattreidy
    Participant

    Good news! I had labs done this past Wednesday, 2/10/16, and my liver function test results are ALL perfectly normal now.

    This is after taking steroids to put the breaks on my immune system after the Keytruda triggered an autoimmune hepatitis.

    I continue to take 10mg of prednisone daily and plan to have my next Keytruda on 2/24/16.

    My CA 19-9 continues to go down even though I haven’t had a dose of Keytruda for over a month. The long-lasting effect of Keytruda I’m seeing is consistent with what I’ve read and heard from others.

    Screen_Shot_2016_02_12_at_11_00_38_AM.jpg
    Screen_Shot_2016_02_12_at_11_00_12_AM.jpg

    #80456
    mbachini
    Moderator

    Awesome news Matt! See you next week!

    #80455
    pfox2100
    Member

    My dear friend Matt. I’ve already told you but I am so happy to hear about your latest news and that you got relief to find that all of your labs are trending down and back to normal.

    Julie, I had tried messaging you on FB the other day. Been thinking about you a lot. Hope all is well and would love to go more in depth when you are up to it! Hugs and prayers.
    Porter

    #80454
    debnorcal
    Moderator

    Matt, good news all around! I’m so happy that your labs are returning to normal and there was a logical reason for the temporary elevation.

    I’ve told my husband Mike your story and all about your treatment successes. He and I are both looking forward to meeting you in person in SLC.

    Debbie

    (Julie, we will miss you but will be thinking of you)

    #80453
    iowagirl
    Member

    Totally awesome, Matt. Great news! Wish I was going to the conference in Salt Lake, but I’m still recovering from the surgery and we have the little grandson we’re babysitting, so I have to lend a hand there from time to time, if only to wash baby bottles and sit beside the little guy to keep him out of trouble. :). If I got to Salt Lake, I’d have to stay another week just to do genealogy research too. Just thinking of all the fun makes me smile. Have a good time and make a difference for all of us who can’t be there.

    Julie T.

    #80452
    mattreidy
    Participant

    Had labs done today and my liver function test results are much better than they were a week ago. Some are perfectly normal now and others are moving rapidly in that direction. This is after taking steroids to put the breaks on my immune system. It appears that the Keytruda triggered an autoimmune hepatitis. I’ll resume Keytruda in a few weeks. No need to fly out to Mayo Clinic tomorrow for an ERCP so I will be heading to the conference in Salt Lake City next week after all! Very happy!

    #80451
    mattreidy
    Participant

    Yes, I did Melinda – and I did have a minor (100F) temp the following day and that went away and morphed into a cold… I’m sure it’s just a little virus. Labs this Wed will tell and I’ll post results.

    mbachini wrote:
    Hi Matt,

    Didn’t you say you threw up during your MRI?? Maybe it is an infection, bug you are fighting??? Looking forward to repeat labs this week with all normal results!!! :)

    Melinda

    #80450
    mbachini
    Moderator

    Hi Matt,

    Didn’t you say you threw up during your MRI?? Maybe it is an infection, bug you are fighting??? Looking forward to repeat labs this week with all normal results!!! :)

    Melinda

    #80449
    mattreidy
    Participant

    Hi Julie!

    Yes, this is a known possible reaction to the Keytruda. My doctor has seen it before.

    Thanks!!

    Iowagirl wrote:
    Matt…..Good to see your post. There’s the good news all the way through kind of neutral news to “What the heck” news in that post.
    First…..CA19-9 continuing to go down….GREAT NEWS
    Second…No evidence of disease…..GREAT NEWS
    Third…..recurrence “might” still be there…..Still not bad….speculation that it is there at all
    Fourth….High Liver Labs….possible auto-immune response to the Keytruda.
    Question: Has that been a known response for others taking Keytruda in the past? It sounds logical. The Prednisone certainly sounds like a logical attempt to dampen that response. Hope that works and you can continue on once you get past this small hump.

    Hope the labs look better next week and that you don’t have to make the trip out to Mayo…and things can forge ahead with more Keytruda and continue to kill those beasties.

    Julie T.

    #80448
    debnorcal
    Moderator

    Matt,

    Glad to hear continued drop in CA 19-9. That’s very encouraging.

    The spike in LFTs could also be due to your body fighting something such as a cold as well. In November, my husband’s LFT’s jumped up and I got a bit panicky. Turns out it was due to fighting an infection. Also, it takes some time, if I recall correctly about a week, for the levels to return to baseline. With the repeated labs next week, the docs will want to see levels dropping. It’s not expected that they would be fully back to normal.

    Looking forward to your next graph!

    Debbie

    #80447
    iowagirl
    Member

    Matt…..Good to see your post. There’s the good news all the way through kind of neutral news to “What the heck” news in that post.
    First…..CA19-9 continuing to go down….GREAT NEWS
    Second…No evidence of disease…..GREAT NEWS
    Third…..recurrence “might” still be there…..Still not bad….speculation that it is there at all
    Fourth….High Liver Labs….possible auto-immune response to the Keytruda.
    Question: Has that been a known response for others taking Keytruda in the past? It sounds logical. The Prednisone certainly sounds like a logical attempt to dampen that response. Hope that works and you can continue on once you get past this small hump.

    Hope the labs look better next week and that you don’t have to make the trip out to Mayo…and things can forge ahead with more Keytruda and continue to kill those beasties.

    Julie T.

Viewing 15 posts - 91 through 105 (of 405 total)
  • You must be logged in to reply to this topic.