My Introduction
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Hi Hazel,
Great to hear from you again. Ooops! It seems that I did forget to put the link in that I mentioned!
Here it is for you –
http://www.macmillan.org.uk/information-and-support/coping/side-effects-and-symptoms/mouth-problems
My best to you,
Gavin
Hi Lainey, I will tell Andrea about Biotene,
Gavin did you forget to give me the link to the mouth ulcers?
Sandie thank you so much for your post, I will pass your comments to Andrea, up to now she will not come on any discussion board, nor will she come to read them! Maybe it is her way of coping?
So sorry I have not posted for ages, but I have been staying with Andrea and I did not have my log in information with me.
Hi Hazel
I am Sandie and I also have cc and live in the UK. Like your daughter I had a resection followed by chemo and radio. The chemo may not be easy but it may not be too tough either, as we each react differently. If your daughter stays positive and finds lots to laugh about she will get through it. There are lots of coping strategies I discovered to help with side effects and also to help with talking to people about progress whilst on chemo. Like your daughter, I saw Prof Valle for a second opinion and he really is excellent and honest. My advice would be to stay in touch with Helen at AMMF who has an amazing knowledge and network of people that can offer advice. (AMMF also have a discussion on board on their site). Also to use these forums to talk to others who may have experienced similar side effects to the ones your daughter may go through.
Take care and I wish your daughter and yourself the best.
Sandie
xHere is a link on mouth ulcers and some other stuff from Macmillan and I hope it is useful.
My best to you,
Gavin
Andrea is coping well with her first week of taking chemo tablets.
Professor Valle even telephoned her to check on her progress. She is very impressed with him and their conversation seemed to inspire her.
Up to now she has had one mouth ulcer which bled a little onto her pillow.
Her skin has gone very dry so she is using lots of moisturising cream.
Hi, Lainy. Andrea looks amazing and wants me to try taking spirulina and broccoli juice, mainly because I am run down with this cold.
I could not be bothered juicing broccoli heads each day and it takes ages to clean the machine so I am opting for the tablet form of sulforaphane, which is the main active ingredient in brocolli.
I normally buy my health products from Boots chemist or Holland & Barrett health food stores but sulforaphane is not available over the counter from them or any other UK supplier as far as I can tell. Very strange?
So I have had to order the capsules on-line, which I don’t like doing. The company making them is Swanson GreenFoods, which I hope is a trustworthy company.
Hello, Hazel. That all sounds great and I wish for her to keep up with the good news. I feel that exercise does help loosen up the scar tissue and I just bet some of our family will be stopping by to give you some hints. Sadly exercise has never been one of my achievements! Keep the good news coming!
Hi, Lainy. Day one and she has no adverse effects
As advised by her specialist she has stopped taking the spirulina, but is continuing with juicing the broccoli and vegetables for her breakfast, she has organic porridge for lunch and eats vegetable and quorn stews for her evening meal. She has not eaten meat since she was 5 years old but does eat fish.
She would love to exercise again but is scared of damaging the scar tissue, so for now is only walking.
Anyone know what exercises she could do to keep her core muscles in shape ?
Hazel, I sure wish for everything to go well. No wonder her blood is green with all that broccoli! LOL Awesome CT Scab results!! kEEP THE GOOD NEWS COMING, WE LOVE IT!
The CAT scan my daughter had on Thursday is CLEAR, and her bloods are all GREEN, so the chemo tablets for the first treatment can be the highest dosage.
She has taken the first tablet this evening and as yet we don’t know what her reaction will be or how soon to expect anything to happen.
She is dreading getting diarrhoea and fears going out but maybe there are pants to wear just in case this happens.
I go back on Sunday, hopefully my cough and cold will be better by then as I don’t want to give her any germs.
Hi, Marions. Thanks for the links, I will send them to her.
Every day she makes a juice out of broccoli heads and other fruit and vegetables. I have been researching the active ingredient in broccoli, sulforaphane, and it seems that 80% of this is lost even when the broccoli is kept in the fridge.
There are tablets available which contain sulforaphane but I am not sure if they would be better for her and if so, what dosage she would need.
Have you or anyone else got views on this subject?
Hazel….There is much experience on this board, hence I hope for others to chime in on this subject and especially those members with personal chemotherapy experience.
For general overview, this link provides good information:
http://www.cdc.gov/cancer/preventinfections/patients.htmand this link:
http://www.chemocare.com/chemotherapy/health-wellness/tips-for-managing-eating-problems.aspxPrior to chemo, your daughter will be given handouts addressing the issue of colds and other communicable diseases.
Hope this helped.
Hugs,
MarionHi Lainy, Gavin and Marions. My daughter had a CAT scan yesterday and if all goes well she will start her chemo tablets on Monday.
I have been helping to look after her 3 children as she is still unable to drive but I have developed a really awful cold and so have come home. Her 4 year old son is always full of cold, will this affect her when she starts chemo? I am supposed to return on Tuesday, will I be a threat to her?
She has 2 cats and their food dishes tend to get washed with the family dishes, is this wise?
Are there food restrictions that she should be aware of?
Maybe I am being too cautious?
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