My Johns Hopkins Visit

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  • July 10, 2011 at 1:13 pm #51511
    jladams
    Member

    Thank you Nancy and Rodsdaughter for your kind remarks. Johanna

    July 10, 2011 at 6:47 am #51510
    nancy246
    Spectator

    Johanna, Great news! Glad you are feeling pretty good too! My husband Doug and I totally understand “scanxiety” – love that term! Keep winning that fight! Nancy

    July 8, 2011 at 4:59 pm #51509
    jladams
    Member

    Hello Katielinn,
    Thanks for you support!
    I did see Dr. Pawlik in March and he told me he could not operate on me-he suggested the chemoembolization.
    Dr. Pawlik is very nice-he introduced himself by his first name.
    I like Hopkins-Christiana Hospital in DE told my oncologist chemoembolization would not help me. I am so glad I went to Hopkins.
    Please let us know how the visit goes. Sincerely, Johanna

    July 8, 2011 at 3:37 pm #51508
    katielinn
    Member

    That is great to hear! We just scheduled an appointment with Dr. Pawlik and his team at Johns Hopkins for next week! Hoping they can provide more information as our Oncologist was not helpful AT ALL, besides telling us that it was Stage IV.

    July 8, 2011 at 2:19 am #51507
    rodsdaughter
    Member

    Yay! That is inspiring news! So glad to hear you’re feeling well, besides your “scanxiety”… So funny. :)

    July 8, 2011 at 12:29 am #51506
    jladams
    Member

    Thank you Kathy for all your support! Johanna

    July 8, 2011 at 12:18 am #51505
    kathyb
    Member

    Stables is EXCELLENT news! Happy for you.

    Kathy

    July 7, 2011 at 9:26 pm #51504
    jladams
    Member

    Thank you Marions! Johanna

    July 7, 2011 at 9:19 pm #51503
    marions
    Moderator

    Johanna….Congratulations. A big hurray for necrosis. May these cells continue to die off.
    Anticipating the test results is known to give people the jitters. How quickly relief and joy will take it

    July 7, 2011 at 9:01 pm #5406
    jladams
    Member

    Hello All,

    I had my second follow up from my chemoembolization of my liver tumor on Tuesday. The MRI showed more necrosis of my tumor.
    Of course, I know it will never die completely but it is stable and I have no mets.
    Dr. Bagahat wants to see me in 2months. Dr. Geshwin did my chemoembolization (I understand he is one of the best MD’s for this procedure).
    I am happy-it has been 8 months since I have been diagnosed with unresectable ICC and feel pretty good.
    I will admit, I do have “scanxiety” before MRI’S and CT scans. Thank you for all your support. Sincerely, Johanna
    PS I will never give up the fight to stay alive- I have too much lto do and learn!

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