My Mom Recently Diagnosed (and we can’t figure out which end up)

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    Please accept my condolences for your loss…Wishing you peace to bring comfort, courage to face the days ahead and loving memories of your mom to forever hold in your heart.


    Dear Rebecca,

    I am so sorry to hear about your Mom. How thoughtful of you to try and help everyone with CC. Bless you Rebecca, and may your dear Mom rest eternally in peace.



    Dear Rebecca,

    I am very sorry indeed to hear of the passing of your dear mum. Please accept my sincere condolences. I wish that there was something that I could say that would help right now. As you say, your mum is safe right now and is suffering no more. Please know that we are all here for you and my thoughts are with you and your family right now.




    Dearest Rebecca, I am so very sorry to hear this but Mom is now in the best company ever and at Peace. How wonderful of you to want to promote something, anything that might help others! As I always say, Mom’s never really leave their children and you will feel her all around you. Please accept my Prayers and thoughts, I just know she was so very proud of you!

    Letter from Heaven by Ruth Ann Mahaffey

    To my dearest family some things I’d like to say
    But first of all to let you know that I arrived okay,
    I’m writing this from Heaven. Here I shall dwell with God above
    Here, there’s no more tears of sadness. Here is just eternal love.
    Please do not be unhappy because I’m out of sight
    Remember that I am with you every morning, noon and night.
    That day I had to leave you when my life on earth was through
    God picked me up and hugged me and He said “I welcome you,
    It’s good to have you back again,
    you were missed while you were gone,
    As for your dearest family, they’ll be here later on.
    God gave me a list of things that he wished for me to do
    And foremost on the list was to watch and care for you
    And when you lie in bed at night, the days chores put to flight
    God and I are closest to you . . in the middle of the night.
    When you think of my life on earth and all those loving years
    Because you are only human, they are bound to bring you tears
    But do not be afraid to cry, it does relieve the pain
    Remember there would be no flowers, unless there was some rain.
    One thing is for certain though my life on earth is o’er
    I’m closer to you now than I ever was before.
    There are many rocky roads ahead of you and many hills to climb
    Together we can do it by taking one day at a time.
    When you’re walking down the street and you’ve got me on your mind
    I’m walking in your footsteps, only half a step behind
    And when it’s time for you to go . . from that body to be free
    Remember you’re not going . . you’re just coming here to me.


    All, I wanted to provide everyone an update. Sadly, my mom passed away last night in St. Louis. She was surrounded by her family and friends. She could hear us nearly to the end and we know that she is now safe. We are stunned and everyone that knows her (or even saw her 3 weeks ago) cannot believe it.

    Through a referral in Chicago, we are making contact with the Center of Cancer Research (National Institute of Health) to learn from this disease and hopefully, unlock a new clue that can help others. We have reached out to Dr. Thorgeirsson today and are getting an autopsy underway ASAP.

    If anyone knows Dr. Thorgeirsson personally (I have sent him an email), please let him know that we are working toward giving him any information that he needs. I’m hoping to hear from him soon but we are working with his team to send them what they may need.

    I’m grateful for the support, help and kindness that this patient forum has provided. Hearing your stories and having you as a part of this terrible event has softened the blow and given me some peace. I wish everyone the best and hope that my mother, Ellen Spengemann, can help your loved ones and others to come to have a good, solid fighting change to beat this cancer and live life as it should be.

    Love to you all,
    Rebecca Donohue


    Rebecca, I am so sorry. Peace to you and comfort to your dear mother during this precious time.


    So sorry to hear of the latest events Rebecca. My thoughts are with you and your family.


    Rebecca…My heart is with you and your family.


    Rebecca, I am so terribly sorry about your MOM. Hospice is probably a wise choice now as they will see to it that Mom is kept as comfortable as possible. My heartelt prayers, wishes and thoughts go out to your Mom and your family. You never know how strong you are until “strong” is the only choice you have! Hang in and be strong.


    Dear Rebecca,

    I am so sorry to hear the news about your dear Mom. My prayers are with all of you. May you find some special time to spend with her.

    Hugs and love,



    Just wanted to provide an update regarding my mom and thank you again for your support. Sadly as I write this, I’m on a plane back to St. Louis to be by her side. We received devastating–reeling–news today that her liver has begun to bleed and that we need to consider hospice options. Chemotherapy is no longer an option.

    Our friends and family look at us in disbelief. We are in disbelief. This is an incredible, strong woman who was full tilt into Christmas and never missed a beat.

    We will keep you all posted but thank you for your prayers and kind thoughts. We just can’t believe where we are right now.



    Hi Rebecca,

    You will certainly find loads of information here easily compared to hours of net search as lots of eperiences have been pooled in.

    just wanted to share with you, we are taking chemo trmnt in NYC but also are taking advice and nutritional supplements from Dr. Keith Block, MD, medical director of the Block Center for Integrative Cancer in Chicago. They were recommended by a colleague from CA. They do a nutritional profile to help analyze and boost the immune system and ability of one’s own body to fight cancer.



    Hey Rebecca,

    You have gotten wonderful advice and feedback already…. I just wanted to chime in that we are also at University of Chicago with my mom (55 years old)and she responded really well to the clinical trial with Dr. Catenacci. She was on Folfirinox since June, 2012. It was rough and there were many ups and downs but she is still fighting, but I think it is a good place to start. Good luck to your family!



    Kathy and everyone: thank you! thank you! I’ve gotten the Johns Hopkins information to my day and as power of attorney, he will be contacting Dr. Choti (and we have Dr. Catennaci underway). I’m grateful for how responsive and emotionally involved everyone is in this patient group.

    Tonight, I feel like I can rest a little easier knowing that we are trying to get answers and do the right thing–and that we are not grasping for straws.

    Thanks to everyone and I will keep you posted. You are a fantastic group.

    Best and feeling incredibly lucky,


    Rebecca…..a warm welcome from me to you also. I too am very sorry to hear of your Mom’s condition. Rebecca, already you are doing a fantastic job in obtaining information in re: to your Mom’s treatments. In today’s age, we have to advocate for our loved one’s and the medical community is eager to work with us. Therefore, don’t hold back from obtaining additional information because; an educated decision is based on the knowledge we obtain. First and foremost though, I am hoping for your Mom to be comfortable.

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