My mom was diagnosed July 1st
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Elicia…It is great to hear about your Mom feeling much better. The results of parencetesis are nothing short of amazing when it comes to the wellbeing of our members. Congratulations. I am wishing for the appetite to continue and for your Mom to have positive results with the treatments.
Tons of good wishes coming your way,
MarionHi
My mom had 3.9 liters drained, and she is feeling 100% better. Her appetite was back, she slept thru the night for the 1st time in 3 weeks and her spirits were lifted! After putting paracentesis in the search engine I was pretty depressed, but we are praying she is one of the “lucky ones” and the fluid does not come back. She is going to ask the Dr. for a diuretic prescription. She is on her 2nd week of chemo today. Thanks everyone for responding to my posts!
Praying for Blessings, EliciaNo forgiving needed as you are doing just fine with your description. Sounds like the doctor is on the right track. We always encourage other doctor’s opinions if you are not secure with your doctor, sometimes even if you are. Wondering how long it would take you to set up insurance in California. With the chemo and all it may not be the time for a big move. Perhaps someone on this Board can recommend someone in your mother’s area if that would make you feel a tad more secure. I know, not fair is it? We have to fight a monster and then the insurance companies also. Hope your mother feels better after the fluid is drained. You might try our Search engine in the box at the top of the page. Type in water retention and also Oregon and maybe some thing there can be of help to you.
Hi everyone, thanks for the warm welcome! Please forgive me for my non-educated analysis and use of medical terms. I am new to all of this and learning what this all means.
My mom was diagnosed with cancer of the bile ducts, with a tumor in the liver. There is no evidence of cancer anywhere else in her body. The tumor is over 38% of the liver. They began a chemo treatment (the 2 chemicals are oxiplatin, which has given her a sensitivity to cold and gemzar), to shrink the tumor so she can be a candidate for a liver resectioning. Today she is having a procedure to have an area drained in her abdomen. She has been retaining water, she looks like she is 6 months pregnant becasue of water retention. This water retention is pressing on her lungs and making it hard for her to breath and not want to drink water because it makes her uncomfortable. So she has been running a fever off and on because of not wanting to drink water after chemo. Hopefully today she will fill some relief after the procedure. In addition she has lost a lot of weight, because she is nauseated and sick.
I want to get her scans to a Dr. that can work a miracle. We are praying everyday, that we can get her to the right people to help her. The insurance issue is major. We have her qualified to receive medicaid in Oregon. We would like to get her to California. We will then have to get her approved for medical. I truly believe her chances of fighting this would be better if we did not have so many insurance obstacles! ok I’m rambling now. Thanks for the warm welcome! I’m praying for you all!
I just want to include my welcome along with everyone elses. Sending you the best of luck on your mom’s treatment. Success is possible, have hope.
Kris
Hiya Elicia!
It’s nice to meet you!You’re right, this place is a wealth of information with lots of helpful people in it. You get to feel right at home really quick!
It was super nice of the chemical company to donate your mother’s chemo, that’s great! If you can, see if the hospital she goes to can get you a case manager. I’m not sure if it works the same way without insurance though so that tip might be useless, but definitely use the hospital as a resource. They’re there to help you!
Good luck to you all and please keep us posted! You’ll be in my prayers.
Hello Elicia and welcome to the best little club in the world that no one wishes to ever join. You are doing the best thing by trying to get your mom to be with you. If we are not prying could you tell us about her Diagnosis? WIshing her and your family the best. Have hope and be strong.
Hi Elicia,
Welcome to our group. I know you and your Mom will find lots of help and support from this group. Let us know if there is anything we can do to help. Take care and God Bless,
JamieHi everyone! I’m so happy I found this site! The site has so much useful information. My Mom was diagnosed on on July 1st. She just started Chemo on Thursday. She had to wait because she is uninsured. The chemical companies finally agreed to donate her chemo treatments(finally after she ended up in ER). When my mom feels better I will have her log on to introduce herself. Her name is Victoria. She is only 54 and she is married and has 5 children and 6 grandchildren. She lives in Oregon and I live in California. We are trying to get her down here, so that My family and I can take care of her. One of the most frustrating parts in this situation is the fact that she is not insured it makes everything super difficult. We are so thankful we found this site.
Blessings to all, Elicia
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