My mom was just diagnosed with CC
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Hi there,morphine does cause nausea but it comes in different forms,injection,tablet,long acting tablet,mixture and funnily sometimes people can get nauseous with one type but not another so it is worth looking at switching from one form to another Janet
well she’s on Morphine so I doubt they have that in suppository form. She is taking gravel as a suppository for the nausea, but she doesn’t always take it because that makes her feel very groggy. She is going to see her oncologist on Tues when she goes in for her next chemo treatment so I will bring it up to her doctor. Thanks so much for the advice!
scraggles…..Is there a possibility that the oral medication can be replaced with suppositories? We have seen on this board excessive vomiting caused due to several reasons and changing over to another means of intake may help identify the cause. Also, is your Mom taking any medication for nausea?
Best wishes and a happy new year to you, also.
MarionThank you everyone for your support. My mom is still not eating, she says she feels too nauseous to eat, and she won’t force herself – that is just her personality. She is also vomiting alot, I think that’s probably because of all the meds on an empty stomach. I will keep you all updated if anything changes. Thank you all so much for you support. I am sorry that I have to visit this site, but I am grateful to find so much support and kindness on here. I wish everyone a happy new year!
Hi Scraggles,
I just wanted to join the others in welcoming you to the site, although I am sorry that you have to be here. Your mum sleeping a lot is something that I can relate to as my dad slept a lot, especially during the day and did so for many months indeed. He was taking codeine based tablets 4 times a day for his pain.
I hope you will keep coming back here as you will get loads of help and support from everyone.
My best wishes to you and your mum.
Gavin
Marions – Thank you so much for the info, I will have to find out which doctors she is seeing at the moment. I know that she is being treated by 2 doctors, not sure if they might be the same doctors you mentioned. Thank you.
Scraggles….Dr. Sean Cleary(surgeon) and Dr. Laura Dawson, (radiologist) at Princess Margret Hospital, are very familiar with Cholangiocarinoma. You might want to consider having both look at your Mom’s records.
Best wishes,
MarionHi scraggles,
Please can I just add my welcome to the board. Our situation is different to your Mum’s. My Dad was diagnosed in May and sadly died just 7 weeks later after having a failed liver resection. He never had chemo so I cannot comment.
Just wishing you and your Mum strength for the journey ahead. The people on here are so knowledgeable and friendly, there is usually someone to help with queries/concerns.
Thinking of you and your family,
Katie
Thanks for all the replies! I will check out the recipes for the shakes. She is currently drinking 2 ensures a day, but she is not eating much. She is very nauseous we think it’s from all the meds, and is taking gravel for the nausea and as a result she is sleeping alot. My mom doesn’t try to eat eventhough she is not hungry, she is the type to not eat when not hungry. I am hoping that she will change her mind about this as she is now down to 105lbs.
The spots on the momentum were seen on the CT scan, this led to further testing, and it was the liver biopsy that helped find the primary site. For awhile we were thinking that she would be diagnosed with cancer unknown primary. I never thought that her diagnosis would end up being something even more rare. I just hope that the cancer hasn’t spread too much during all of these tests that needed to be done to give her a diagnosis.
Tstewart4128 – my mom seems to be doing fine with the chemo, she has only had 1 treatment so far and we were told that it would take a couple treatments to see any side effects. We were told that the side effects for this particular combo of Chemo are very mild, just grogginess, and slight nausea, of course it’s different for everyone.
We are located in Toronto, Canada. She is being treated at Princess Margaret hospital, which has 2 docs that specialize in CC. Other doctors would refer her there even if we seek a second opinion.
Thank you for all of your responses, it is nice to chat with others who are going through the same thing.
Scraggles,
Please know that you are not alone and you can feel free to vent all you want here. So many of us know where you are coming from. My experience is different than yours so I can’t comment on your questions, but I am sure people will start posting soon. I find it helps to come on this site and I hope it will help you too! Take care.
Hi Scraggles
Your situation sounds alot like my moms. She is 62 and was diagnosed in Dec after an unsuccessful surgery. Mets found on both lobes of the liver. She starts the same type of chemo as your mom on Thursday morning. Right now though shes tired alot, in alot of pain (from the surgery) and just feeling kinda down. Hows she doing with the chemo? Thats what we are all nervous about with my mom… keep us posted!! God Bless!
Hi Scraggles and welcome to our Family. I would also suggest a second opinion and if need be a third. Can you tell us where you are located as I am sure you will be getting lots of responses. We are so glad you came forward, we know how scary and hard a step it is to take, but I know you will be glad you joined us.
Welcome Scraggles,
My mom was diagnosed this past July. She had severe jaundice and little to no appetite. The morphine definitely contributed both to her lack of appetite and to her drowsiness. Once we were able to get food into her though, she did bounce back very nicely. We found the shakes were very helpful in getting her strength back. The trick was finding one she liked and then giving her only a bit after she ate (1/3 after her meal). A whole shake left her feeling ill and if she drank it before she ate, she was too full for her food.
I too was a lurker but can tell you that this board and the people on have been a godsend as we work through this disease with mom.
Sharon
Hello scraggles..welcome and I am glad that another lurker became a member of our site. I suppose the physicians were able to diagnose the spread of the cancer to the omuentum during the liver biopsy as you have mentioned that nothing had shown up on either the scan or, ultrasound. Regardless of that I would be searching out at least one more opinion from a physician or center very familiar with this cancer. Others on this board will gladly forward to you names if so requested by you. It appears that your Mom is in substantial pain and I would assume that the medications are making her quite drowsy and therefore, you might not be eating much. You might want to consider increasing her calorie intake with anything she would like to consume. Fortified shakes have been used by many on this board and you are able to read up on some of the suggestions by using the search function on top of the page. (Right hand side: google or Search Function, top of page, middle.) Simply use a keyword such as “shakes” or, nutrition, etc.
You have come to the right place for support and knowledge sharing. None of us wish to be here but all of us are glad to have found each other.
Best wishes,
MarionHi, I’m more of a lurker then a poster. My mom is 56 and she was just diagnosed with CC. We were told that there is no cure. She is on chemo with a combo of Gemcitabine and Cistlapin. The cancer has not shown up on any CT scans or ultrasounds, she was diagnosed through a liver biopsy. She is not eating well, she says that she doesn’t have an appetite, and she is sleeping alot, I’m not sure if that’s because of the meds she’s on (morphine and various others for pain) Any insight would be greatly appreciated. I should add that she has mets to the liver and momentum.
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