June 25, 2018 at 12:28 am #97193FayParticipant
Thank you for all your kind and supportive words. This is so difficult to get through. Next Wednesday will mark the 2 month mark since she passed. I have good and bad days. The only comfort I have is that she is no longer in pain. But I am still trying to get over the pain of how poorly her case was handled. We might as well have been in a third world country, not Canada. I am trying to put things into perspective. And trying to just focus on being grateful for having such a great mother. But I still struggle when I look at her photos. I feel like the pain will never get better.
xoxoJune 10, 2018 at 5:21 pm #97115positivityParticipant
Oh Fay, I am deeply sorry and I feel your pain. I check in once in a while here, and as a daughter also with a mother, it is a tough journey. Thank you for sharing. I know we go through so much dealing with the medical community and you have to credit yourself with strength to be beside your mother. I want all of us to find the peace which will allow us to move forward and to know that as family and caretakers we do everything that is in our hands and try to make the best decisions for our loved one.
I agree with the breaks, so important for the psyche and I had to give myself that space also, but the importance to share from time to time has also been very important. Please be kind to yourself and I always say there is no limit and time to grieving and everyone should nurture themselves and take it at their pace.
Peace and Warm Thoughts…June 10, 2018 at 6:58 am #97111lilitmParticipant
I am so sorry about your beautiful mother. May the love between you two embrace you now, as your love for her embraced her through her journey. My heart goes to you, from one daughter to another.
LiliJune 9, 2018 at 11:29 am #97109gavinModerator
I too am so very very sorry indeed to hear of the passing of your dear mother. Please accept my sincere condolences. I know the pain that feel right now having lost my dad to this disease but please know that you did everything that you possibly could to help your mum with everything. I know that she would be very proud of you.
Yes it is a gruelling journey for patients and gut wrenching for us family members and carers etc as well as you say. Please take some time for yourself and know as well that we are here for you. My thoughts are with you and your family right now.
GavinJune 9, 2018 at 6:56 am #97104bglassModerator
I am so very sorry to learn this sad news. Please accept my condolences for your loss.
I went back and reread some of your earlier posts and it was again a reminder of the heroism and deep love of our caretakers. You were definitely not on the sidelines of your mother’s journey! Your mother’s ability to cope with this difficult cancer was immensely eased by your support and interventions to ensure she had good care. The medical system, as you note, can be a source of frustration, and for many it is our family members who do daily battle to keep us around with a good quality of life.
Your contributions to this community have been so valuable as well, including for others navigating the Canadian healthcare system.
Take care, regards, MaryJune 9, 2018 at 2:15 am #97102FayParticipant
Dear CC Family,
My heart hurts, so much. I lost my beautiful mother on May 2nd/2018 and I am still trying to process and accept this new heart heavy reality. I feel so lost without her. I think I need some time and space away from anything Cholangio related for a while.
This is a grueling journey for patients, and a gut wrenching experience for family to watch helplessly from the side lines. Dealing with all the delays in the Canadian healthcare system and lack of recognition for urgency (or perhaps they just did not care to act quickly) is infuriating. If I can help anyone avoid some of the frustrations we faced and share some of the lessons we learned, please drop me a line.
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