April 4, 2013 at 4:14 pm #70431
Mary: the SBRT worked great for me for 7 months! I had a number of places to be radiated and they weren’t sure how the affected areas would react. All was quiet for 7 months. My rad onc says we can revisit SBRT in a few months.
I say relax and let the experts do the calculations and worrying.April 4, 2013 at 3:50 pm #70430
Mary, guess I would turn your feelings around and think, before they changed the DX I was doing well with my decision, so if they feel it will be a good thing, then it still is a good thing. Not sure that makes sense, I don’t always make sense on this doggone Prednisone but point is they felt no need to change treatment and I am sure the Radiologist will put your mind at ease. You are so right about the tough decisions as if this family doesn’t have enough on their plates. Its like CC has a brain that tells it to pick the strongest to contend with this “thing”. If you are feeling anxious write to us all you want as it is cathartic. I bet Monday cannot come soon enough!April 4, 2013 at 3:35 pm #70429
Oh Lainy, you’re so sweet. I love that poem!!! It always makes me cry when I read it and the tears bring strength to keep on trying.
The SBRT is still on for next month. It’s just that getting so much information on this website and reading other stuff, I feel like my head is spinning and I’m wondering if I made the right decision. I think I have and this is just me being anxious but who really knows for sure about such tough decisions we’re forced to make with this disease.
I have a list of questions to ask the interventional radiologist on Monday when I have my simulation appt for SBRT. Maybe the answers will help me feel better about my decision.
MaryApril 4, 2013 at 3:12 pm #70428
Dear Mary, I am so sorry for what you are going through. Does this mean the SBRT is postponed? If so, at least it sounds like you have some other options? This is exactly why we call this a roller coaster ride….that no one wants to buy a ticket for! What is next for you, have they said anything else like talking about options?
I asked for strength.
God gave me difficulties to make me strong.
I asked for wisdom.
God gave me problems to solve.
I asked for prosperity.
God gave me brawn and brain to work.
I asked for courage.
God gave me dangers to overcome.
I asked for patience.
God placed me in situations where I was forced to wait.
I asked for love.
God gave me troubled people to help.
I asked for favors.
God gave me opportunities.
I received nothing I wanted.
I received everything I needed. By Aaron HoopesApril 4, 2013 at 3:04 pm #70427
Woot, woot, Kris. If you can be bought with pennies can you imagine what hundred dollar bills would buy? Sorry, couldn’t resist. Man, you will do anything not to come here to visit! OK…enough joking, I do that cause I can with you! I am so excited for you but am wondering who sent the pennies, any idea? Usually the first person you think of is the one! I am also happy for you that he is not going to sit around but wants to get started. YIPPEE! Love you, girl!April 4, 2013 at 10:40 am #70426
I’m so glad you made your decision and seem to be at peace with it. The clinical trial sounds exciting. I’m excited to hear how you do as it moves along.
It’s so tough making these decisions – I know what you mean. I feel like I’m at a crossroads right now since I’ve been re-diagnosed and told its intrahepatic cholangiocarcinoma stage III. I feel like I’m starting all over again with doctors and treatments to choose. It can be so overwhelming so I can appreciate how at peace you must feel with making the decision. I wish you the best.
MaryApril 4, 2013 at 6:37 am #70425
Lainy will appreciate this…
As many of you know, I’ve been asking God what He wants me to do… Every time I thought things were settling down another wall would slam me… So for the past few months I’ve been asking what he wanted me to do.
Well, I finally had enough after two years and had this really strong urge to finally shop around for a new onc. I decided I liked all Dr. Denlinger had to say. I signed the consent forms for the clinical trial, and God willing, we should get the ball rolling rather quickly to see if I’m eligible.
Now for why I mentioned Lainy… I faxed the papers this afternoon and have found 3 pennies on the floor or ground since then. I think he’s happy that I listened!!April 3, 2013 at 6:38 am #70424
Marion: your persistence pays off again! That’s it.April 3, 2013 at 6:07 am #70423marionsModerator
Kris….this appears to be the study:
and here is a bit more about the drug:
MarionApril 2, 2013 at 7:17 pm #70422gavinModerator
That is great news about your new onc and the possible trial. Sounds very exciting and I wish you well with it. Please let us know more about it if you can when you know more yourself. Fingers are crossed for you!
GavinApril 2, 2013 at 2:36 pm #70421
Hi Kris, you are too funny! I was wondering if you have any dates yet (not that kind) to start your new adventure?April 2, 2013 at 12:16 pm #70420
This is such great news!!! Have you made your final decision to go with it? Sounds like you have and it sounds really promising. Please keep us posted as you progress along – this is so exciting. Also, glad you feel good about your new oncologist. Keep on keeping on!!!
Spring is here and hope is in the air!!!
MaryApril 2, 2013 at 6:07 am #70419
No, but I see he changes yours!! HahaApril 2, 2013 at 6:00 am #70418
Kris, just the other day I saw a new quote I just loved. “God has a plan for all of us and he really doesn’t need to ask our advise”. Sometimes we have to take the long way around to get to where we need to be. And anyway, Teddy’s Italian restaurant in the sky has been very full, too full as of late so I just know you are going to have to wait a long time for a seat and he doesn’t take reservations!April 2, 2013 at 5:40 am #70417
I have been asking god what he wants of me, and saying I can’t figure it out… Well, I am at a place where I can hopefully do so much good for so many people!! And my situation is such that I can try this without too much worry, because where the new lymph node is is not dangerous. So I think He answered my question.
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