My new plan
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Kris
You are an inspiration! Good luck with the new treatment regime.
Sending love and positive thoughts.
Helen x
Kris, thanks for the info. I was warned about the “hand and foot syndrome” where they peel but said to moisturize constantly. That does sound painful. I am drinking so much water to stay hydrated that sometimes I feel like I could float away, but I know that it’s necessary.
Good luck on the new treatment plan though. It feels good to hear the fighting instinct and gives us the desire to do the same!
Linda Z.
Thanks for the encouragement. I am not sure I am quite back to the old fighting Kris, I need to many naps! But that will come. I have been cleared to swim once I finish this course of antibiotics so I should star5t building up strength again soon.
Linda, xeloda gave me severe gastric distress which resulted in a couple of week long hospital stays for dehydration. Smaller problem was the peeling hands and feet…to the point I lost my fingerprints.
Kris
So glad to hear the ‘old’ Kris is back and ready to fight again! Sounds like a great PLAN!!!
Keep us posted…
ashleyThis is what I love to hear….our Kris back in fighting mode…ready to take names and kick butt!
Sounds like a good plan! I’m sending lots of prayers, hugs and a special hug for your wonderful hubby. Keep us posted and stay as sassy as possible with LeRoy!
Hugs,
PamThis is great news Kris. My husband had wonderful luck with external beam radiation, xeloda and brachytherapy. I hope it all works every bit as well for you. Take care of yourself, drink lots of fluids and get plenty of rest during radiation. It does tire you out. That was really the only side effect he had other than some heartburn too. Best wishes- keep us updated! Keep those Swedish Drs. on their toes!! Mary
Hi Kris,
I too am glad you now have a new plan of attack. Hopefully you will be able to get treatment in Kalmar. More positive thoughts coming your way.
Love & Hugs,
DarlaHi Kris,
I’m a little new here, but noticed you said you had a problem with Xeloda before. I tryed to check previous posts, but didn’t find it. Sorry.
I’m on 1000 mg of Xeloda with Oxaliplatin infusion 1 week (the Xeloda for 2 wks at the same time, then off everything for 1 wk). The first week with both the drugs, it really hits me, but the 2nd week, I’m feeling pretty decent. I seem to have more problems from the Oxaliplatin Did the meds cause nausea? I found the anti-nausea meds I was given were terrific.
Good luck with the treatment and thanks so much for filling us all in. I know after surgery, it’s difficult to get back to doing a lot. Your progress really helps all of us too.
Take care,
Linda Z.
Kris you are awesome as you continue to pave new ways for everyone! I guess you could look at the 5 weeks as not cleaning the house for that amount of time. Just try to concentrate on the here and now as none of us know the real future. When I grow up I want to be just like you!!!
Kris,
So glad that you have a new attack plan. You are one persistent patient and a great advocate for yourself – keep it up and keep us posted!
Rick
Hi Kris,
Thanks for your update and letting us know of your new plan. I so hope it works as best as possible for you and am very glad to hear you say that your oncologist is saying that no doors have been closed. If anyone can get through these doors then it is you!
Tons of positive thoughts coming your way!
Gavin
Hi Kris,
Thanks for the update. I think you clearly are re-writing all the scripts and expectations for cc treatment….
Hope you mange to get the treatments locally to cut down on another hospitalisation for you.
Sending positive vibes your way,
Katie
Hey Kris,
I’m soooo glad you’re going to start radiation with a small dose of Xeloda. As I’ve said in the past, that worked like a charm for me– more than three years of wonderful, doctor-free life! While I was lying there I would try to imagine I was sunbathing under the most beautiful white rays of light that melted everything bad away. Of course, the treatments are so quick (not even a minute for me) that there wasn’t a whole lot of time to think about much of anything!
Please don’t get too far ahead of yourself, thinking about if it “doesn’t work.” Just focus on it working, and relax and enjoy life. Do you have your kitties with you now?
Tons of hugs,
Kristin
I met with the oncologist today. I will start external beam radiation in 2 to 3 weeks. It will last 5 1/2 weeks and I will get it everyday. They are changing my chemo from gem/cis to xeloda based on a small Swedish study of cc and pancreatic cancer patients and their response to radiation. The xeloda will be given at the same time but at half dose so hopefully I will not have the terrible side effects I had before when I was on it.
The problem is they dont know if they can give it to me in Kalmar, I might have to go to the large university hospital 3 1/2 hours away for treatment and basically live there for 5 weeks. Thats what happens when you live in a small town and have a complicated tumor structure.
My oncologist is still very interested in keeping the surgeons up to date since “no doors have closed”. The weird and frustrating part is that the 3 tissue samples of my tumor they took during surgery came back as no evidence of active cancer so they still dont know if I type “wild” and can get Erbitux. My onc was as confused as I and is calling the surgeons to ask just where in the world did they take these samples since we all know I DO have cancer.
The scary and funny thing about this visit was I asked if external beam radiation did not work, could we try brachytherapy. My doctor looked me dead in the eyes and said she did not know. Most patients have died by now or are so sick that further treatments arent viable. They dont know what is possible with me since I am still “healthy” and am such an exception to the cc pattern. I also asked her if the study based on this plan got good, ok, or great results. She said quite good considering it was cc and pancreatic. That there was still hope of shrinking for surgery and or killing the tumor.
Kris
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