My new road: radiation?
Discussion Board › Forums › Radiation Treatments & Options › My new road: radiation?
- This topic has 72 replies, 14 voices, and was last updated 12 years, 3 months ago by lainy.
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July 26, 2012 at 2:38 pm #61782jathy1125Spectator
Go team Kris!!! Just a word of caution radiation is accumlative and usually extreme tiredness sets in at end, I have posted this and also Derin and Patty!! Be prepared to rest and miss a little karoake and poker, but as you just posted “this to shall pass”! Keep all your positive thoughts because those and prayer are what make the best cancer fighters!!
Lots of prayers-CathyJuly 26, 2012 at 2:36 pm #61781pamelaSpectatorKris,
I will join your cheerleading squad. Go Kris, Go Kris, Go Go Go Kris!!
YAYYYYYYYYYYY Kris!!!! I am glad everything is going well and hoping for big shrinkage in those lymph nodes!!!Love, -Pam
July 26, 2012 at 2:10 pm #61780kris00jSpectatorTreatment #4 done. Met with doc yesterday. Asked him if the very specific area where I was getting the intermittent pain was where the lymph nodes are and he said yes. So I asked if I could be feeling the rad working on it and he said yes. I figure I’m feeling them respond to radiation and when I get the scan in 7 weeks it will show SHRINKAGE!!! That’s my story and I’m sticking to it.
He said it takes several weeks for the swelling to go down until they can actually see how the treatment went. Right now everything is swollen and irritated.
Treatment (LAST ONE) is Friday.
Sept. 4 is my CT scan. Sept. 5 is meeting with Dr. Kemeny about results. Later that week/early next week is meeting with Dr. Meyer about results. And I KNOW that I will have to meet with Dr. Fong soon after, too, to discuss the next steps. I’m having very very few side effects from the radiation so I’m thinking it’s all being kept inside and gets to work better!
I call myself the cheerleader. I spend lots of time cheerleading for others: now it’s time to cheerlead for ME!July 23, 2012 at 9:59 pm #61779lainySpectatorHey, loud mouth, we need people like you! Yea on only 2 to go! Dr., Meyer doesn’t know who he is messing with! Can’t wait for the next installment.
July 23, 2012 at 9:44 pm #61778kris00jSpectatorTreatment #3 done. Machine kept breaking down. They were only about 15 minutes behind tho. Unfortunately, the machine went down twice while I was on the table. The first time I didn’t move. The second time I said I HAD to move or I was gonna start screaming. And I only had 2 more angles left. I asked if we could just ditch them after about 20 minutes and they said no. Oh, well, I tried. Got off the table and expected to meet with Dr. Meyer. Nope. Again cancelled. I will go into his office on Wed. if he doesn’t meet with me then. I’m getting tired of being pushed off. Today he was behind in clinical, so I figured his office might be full… so I didn’t push too hard. But I will! I have a loud mouth and I don’t mind using it when I feel I’m being taken advantage of.
Having some pain in the abdominal area. Hoping it means the lymph nodes are shrinking….July 21, 2012 at 11:52 pm #61777kris00jSpectatorYou, too, Lisa!! We’re gonna be done about the same time. And it WILL work for both of us!! I figure the pain means it’s working….
7 weeks from now I get a CT scan and find out WHEN my resection is. Not IF, but WHEN!!! Let’s get this cheerleading section going.
And you are going to get fabulous news, too. You’re one step up on me: you already know it this worked for you and it’s gonna work again.
Huggs,July 21, 2012 at 7:47 pm #61776lisacraineSpectatorKris, the mold is soooo uncomfortable but the breath hold machine with nose clip is a little scary. Ok, take a deep breath and hold it…you don’t have to hold it because the machine does it for you…no air…..I’m glad I’m not cloister phobic!
I have a little pain at the radiation spot as well but I just pray that means its working. You will be done soon…yippppeeeee
LisaJuly 21, 2012 at 4:03 pm #61775kris00jSpectatorOh, Susie: What a bad decision. I saw The Bucket List when it came out and was so excited it was on right after my surgery. I watched about 30 minutes of it and was crying like a baby asking my then boyfriend who’s stupid idea it was to see a movie about cancer?? Of course he said it was mine…..
I stay far away from them now. I heard it was a funny take, but cancer movies hit too close to home!
Huggs,July 21, 2012 at 6:41 am #61774marionsModeratorSusie…..thanks, I was hoping for you to chime in.
Dumb question: What is 50/50?
Hugs,
MarionJuly 21, 2012 at 4:53 am #61773wallsm1SpectatorKris,
I had bad throat pain, like a lump in my throat when swallowing during radiation. I had bad reflux and probably some esophagitis. Maybe ask about going on a proton pump inhibitor. Keep us posted. Oh, how I hated radiation towards the end. But remember, if you do have side effects, they will get better after treatment ends.
I am home along tonight and watched 50/50. Not my smartest decision.
Take care!
Susie
July 21, 2012 at 2:44 am #61772kris00jSpectatorMarion: It isn’t throat discomfort. It’s that feeling you want to be sick in the back of your throat, but not enough to actually vomit.
I would definitely tell them if I thought it was something wrong. I brought my anti nausea meds with me tonight but didn’t take them.
I’ve been having an occasional sharp pain where I know the tumor is, so today I envisioned the troll munching away so fast he couldn’t keep up. I figured if I was having pain, that means scar tissue, right???? So he was busy eating this afternoon. And he was shoveling the tumor down his throat!!! Now I gotta get hom to work on the lymph nodes.July 20, 2012 at 11:24 pm #61771marionsModeratorKris…..make sure to mention the throat discomfort in fact, mention everything you are experiencing. If it bothers you – mention it.
Hang in there, dear Kris and imagine those tumors being zapped.
Hugs,
MarionJuly 20, 2012 at 10:17 pm #61770lainySpectatorHang in there, Kris, only 3 left!!!
July 20, 2012 at 10:03 pm #61769kris00jSpectator2 or 5 treatments down. A little back of the mind/throat nausea going on, but it’s not too bad. I will be bringing my anti-nausea meds tonight just in case. And sitting by the outside door…
Did almost nothing yesterday after hearing about Kim. It really sent me into a spiral. So I gotta get up and dust myself off.
I do have to say they have the most uncomfortable molds made. I though it was made for my back, but there’s something sticking into one area of my back. It’s quite painful after about 45 minutes. And the head rest isn’t too comfortable, either. Both days I left with a raging headache from something poking the back of my head.
But it beats the alternative, right??
I just ask God every night to have this work….July 19, 2012 at 6:49 pm #61768gavinModeratorHi Kris,
So glad to hear that you mananged to get the radiation done and my fingers, toes and everything else are crossed for the best possible results! I’d be like you I guess with the fidgetting and not being able to do that! No wonder you are exhausted, so get some rest, recharge and look forward to getting back on the scooter!
Hugs,
Gavin
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