My One Year Mayo Clinic Report
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Brilliant news Judy, thanks for sharing that! Here’s hoping that the good news continues to roll for you as well!
My best to you,
Gavin
Judy…..when do you go in July. I will be there sometime in July also. Appts for me are usually on a Friday, though we don’t know yet. They don’t have a schedule for that month yet for my onc so they are going to call me when the calendar opens up. It would be cool if we were able to meet. Who is your oncologist there?
Julie T.
Judy,
Wonderful news!!!! Keep the wins coming. We appreciate them all and share in your joy.
Catherine
Julie-
Great News for you and your family. Thank you for sharing and being a strong support member for the team. I know you feel like you just won at the Mega Millions lottery. I was at Mayo on the 15th. My cancer is same. Did not spread, the Chemo worked for me. I go back in July. I just had the lottery feeling. Stay strong and kind !!!
Judy
Okay…..Cutting to the chase….no more worrying about posting good news. Now….hoping that I will get to continue to post good news as well as many others because of new treatments that work. Thank you everyone for making things clear for me and others that it’s okay to post something good without feeling suvivor’s guilt.
I am also one of those who often feel that since I am not a patient, and additionally we are so fortunate up to this time that Mom is exceeding expectations, that maybe I should keep it to ourselves out of respect for others. At the same time, when I met with Mom’s IR last time and thought she was the only one surviving so long w/o surgery and doing so well, he said that she may be “not the majority,” but in no way the first; he said many other hospitals are having the same positive results. So, I am thankful when I see the “real” results from good news stories here that may not be reflected in the statistics.
I agree with Marion, keep it all coming.
Treasure each day and love to all,
CatherineThe controversy of good news vs. bad news on this board has been discussed from the early beginnings of this forum. Ultimately though we decided to have the discussions be what they are meant to be and that is to be uncensored in nature and therefore reflect on the good, the not so good, the tragic and everything in between.
The Cholangiocarcinoma Foundation evolved “because” of the tragic loss we encountered. The foundation was born out of passion and it is passion that drives us to make the world a better place for all touched by this cancer. This cancer does not discriminate and neither do we.
We have received and continue to receive a high volume of e-mails from those newly diagnosed, embarking on an unfamiliar journey not wanting to participate on this board. And, that is quite alright. It is for that reason that we provide a special section:
http://cholangiocarcinoma.org/newly-dx/
As mentioned by you, “the good news section” highlights those postings that brings hope to others and allows patients and caregivers to share his/her not easily obtained positive results. Therefore, keep it coming our way. We need it.Hugs,
MarionAgreed to all the of above… as much as I read devastating news on here… I try to end my discussion board education with reading something form the “good news/what’s working” section – gives me a glimmer of hope. I really hope many others continue to share their amazing success stories or other good things that are happening in their lives..
Herc, a BIG AMEN to you. You are a beautiful writer as you can express things so well. I am one of those who needs to read the good, bad and ugly as the more I learn the less scared I seem to be. You are doing a great job of educating others and you have such a good heart!
It is difficult to explain the feeling Julie mentioned. It feels great to share the excitement of a clear scan , even after years of good news, it is still stressful to even take a look. When you share such news, you do think of the others on this board whose scan may have shown a return, which deflates everyone reading here. Those of us who have done well do feel this tug on our hearts when we write, unfortunately not enough of us get that good news to share, It is hard to describe but there is a sadness in writing things when you try to see them through the eyes of someone who has just received devastating news in their test results. This disease is awful, it tortures us even when it is in remission, the right thing is to share triumphs and setbacks, that is a part of learning how to beat it.Victories or setbacks, we are all here to find ways to beat this, we must be strong and hopefully someday we all will beat this, until then I will share my story, Pat
Pat, I totally agree. When you get that good news you need to share it with others. That good news brings hope to others, too and that is a good thing.
Darla, Marion, Lainy, yes there are times it is not the right time to share all related experience, and part of a support discussion board does require being mindful of how some may interperate well meant words in a hurtful way, but also posting good news is not chest thumping, it is sharing sometime the most incredible and relieving news you could have gotten from a doctor, or anyone for that matter, They have opened the envelope, and the results are… you have won the lottery of life for 1 year…..unlimited breaths. You’ve GOT to tell someone…. right?
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