My sister
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Krassi, I’m so sorry to hear about your sister’s CC diagnosis and that it wasn’t found earlier. I hope that she can get some relief from the vomiting and pain…..and pray for strenght for you and your parents to help see her through. The others are far more knowledgable than I am concerning medications and such,. We have some absoutely super people here on these boards who have and will probably respond to you. Right now…..I am sending prayers and hugs for you all.
Julie T.
Dearest Krassi –
So sad the you have had to join this family. As has been said you will find a wealth of information from us. And yes this is a strange disease. My husband had been cancer free for almost 2 years after his surgery and it came back. He was gone 9 days after we knew for sure that it was back. Terrible.
As for the nausea I am not sure of medication names for you but I will tell you what I would suggest here and you can see if it’s being used. First line would be prochlorperazine then ondansetron. These should be given routinely such as every 6 hours or 8 hours whether she has nausea or not. Then there are other meds like Emend (arepitat) which is a little stronger but there are some restrictions for use with that. When my husband’s nausea was so bad during his radiation treatment we used lorazepam (Ativan) 1 mg every 4 hours to help….this made him sleep but usually if you are asleep you aren’t vomiting. Make sure that any things she eats or drinks (if she can) is soft, easily digestible with limited fat in it…..fluids are often easier to deal with.
If you feel that she is getting closer to the end it might be time to talk to the doctors about palliative care or hospice. The goal then becomes quality of life rather then quantity so all they are dealing with is symptom control such as pain, nausea, shortness of breath. They can help with a lot of the problems she may have. We unfortunately did not get much of a benefit since it was such a short time.
Hope this helps.KrisV
Dear Krassi,
I am so glad that you found and joined us. I know you will find a wealth of knowledge and support from our members at this very difficult time for you and your family. I am sorry that your sister is so ill. Because CC is most often diagnosed at an advanced stage, it can turn the patient’s life around seemingly overnight, and that can be a shock to the entire family. I believe that you will find that you are stronger than you ever knew you could be. Staying positive (despite the circumstances), taking one step at a time without focussing on what may or may not come after, and taking care of your sister’s needs so that she can rest will help get you through this. I pray for a positive turn for your sister.
I’m sure others will post messages as well. Please lean on us as often and as hard as you need to. We are there for you!
Debbie
Dear Krassi, pour out as much as you need, that is why we are here! I am so very sorry about your Sister. It sounds as though all the right things were done. I do get so angry when I read of young people getting this CC. You never know how strong you are until “strong” is the only choice you have!
I do have a list of signs that the end is near if you feel you are ready for that list. Everyone is different but my husband followed it very closely and I found the more I knew the less afraid I got.
If you would like a copy please email me through this forum by clicking on my name to the left.
Wishing for your Sister to have a more comfortable journey and try to be very strong. We are all with you.Hey Everyone,
I am happy and sad to join this family. The journey just started for me – my sister was recently diagnosed with cc – stage IVb. It still seems so surreal – a cancer I’d never heard of, that is so aggressive and fast, and she is only 36! She had just got back from the USA when she complained from abdominal pain (March 6th) – it took 3 hospitals and 3 doctors to find out exactly what is wrong with her. Initially, she was diagnosed with gastritis, then hepatitis, toxic hepatitis… Eventually, after one biopsy that “seemed ok”, they decided to do a laparoscopy and immediately removed the gall bladder,put a stent, found numerous malignant lesions in the liver. I was away at the time so my parents went through this horror alone. After the operation she felt good, went home and started researching alternatives for treatment as the doctor who operated her literally told her she should go home and “enjoy the time that’s left”. Two weeks ago she started experiencing terrible pain and its been like this ever since. The stent seems to me ok(not leaking) & doctors said that the pain is from the mets. She is in the hospital at the moment, they will keep her here (I’ve been looking after her since I came back home last Friday) for five days. She’s been vomiting all afternoon and it seems, no matter how reluctant I am to admit it, that the journey is close to the end. I only wish now to make her as comfortable as possible and surround her with the love of the whole family. I keep on remembering that phrase, from a movie or something, “no parent should see their child fade”. Looking at my parents now and seeing how devastated they are, I am trying to be strong but it gets harder and harder.
I apologize for pouring my heart out here and upsetting some of you, I guess I needed to share it with someone…Regards,
Krassi
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