My sister had surgery March 19th and was told her margins were clear
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Hi Sally, it’s nice to hear from you again. I’m glad you and your sister spent a great week together.
Please keep visiting. I have found that the panel not only supports patients with CC, but also family members, caregivers…and those of us no longer caregivers. It’s a safe place to share, to vent, to hope and to cry. No fear of rejection or disrespect, no matter what.
Peace to you and your family…good luck on the scan. What day will it be? We can all send good thoughts and best wishes.
Jolene
I’m glad you are still around, Sally, & I hope you’ll keep posting. I don’t know what they call my sister’s op; they’ve just said they’ll have to take out c.70% of her liver (although her liver itself is “healthy”). They’ve talked about the Whipple in connection with others in her Ward, but no one’s used that word in relation to her.
My story is under the heading “My Lovely Sister” (in case it works, here’s the internal link) http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3257. They thought it was purely a dermatological problem at first; I don’t know what made them think CC after that – I think it may just have been “luck” in that her hospital & the specialist hospital for this area have very close links. I think it’s highly likely it would still be undiagnosed had the 2 hospitals not got into a routine of vetting each other’s patient records.
I’m frustrated with the hospital – but I’m very, very grateful that she’s there!!
I wish you & your sister the very best of luck, too.
Jx
Sally, no one should EVER worry about their beliefs and how they act on them. God is all over and knows what is in our hearts. We are all going to the same place in the end we are all just taking different paths to get there. Please don’t be a stranger, come visit us often.
thank you for your kind letter of support. My sister was just here and we had a great week together.
The reason I haven’t posted is because I could not understand the post previous to yours. Clearly everyone here is sensitive but I wasn’t sure if I was being dissed by the member because I really don’t pray. It was perhaps stupid to have said “when I pray” because although I have tried, I can’t. I was afraid I was annoying her and perhaps more of you and have stayed underground.
My sister has another scan this fall. She is cheerful and optimistic and I am going along with her. This is her cancer and her decision. What operation is your sister having and how did they catch her cancer?
My very best
Sally
Sally, I’m a sister of someone with CC, too & I can’t thank you enough for your openness on this site. It’s so, so hard for us siblings, too, & I hope your sister understands YOUR need to be supported, to enable you to GIVE support as well.
My sister is (hopefully) due for the big op towards the end of next week. I know it’s a while since you posted so I hope you get this message & I hope the reason you haven’t posted recently is that you are getting good news.
I’m thinking of you & your sister.
Julia x
Sally,
Welcome to you and your sister. I am just going to go on record and say that you do not have a future as a spy. While I am sure your sister did some good detective work here I also think that a 3 year old could have blown your cover.
I also think it is hilarious that when you start praying you promise to include us. I think this will work, God will say, “Well, gosh, even that lady who never prays is praying for these people so, presto chango, clear scans and champagne for everyone!” I am not kidding here, I think I mentioned elsewhere on this board my theory that God responds most to people who only bother him about the big stuff.
que le vaya bien…
Patty
Yes, my sister is VERY special and one of my two best friends. (I am lucky to have another sister as well) My sister who had the surgery and scan has a husband who is very very supportive and loves her very much so she is not alone.
I live south of Cancun in the Riviera Maya, a small development called Puerto Aventuras.
Thank you all for your support for all of us
I’m willing to bet that your sister’s sister is pretty special, too, to care so much. It’s a long road to travel alone.
What part of Mexico do you live in? My sister-in-law and her husband live in Mexico City, but travel to many other villages. (He’s works for the Social Security department).
Jolene
That is funny, Sally. Only once do I remember a sibling being “busted” by becoming a member of this site. Well, hello to the “buster” and the “bustee”
MarionI know but my sister reads this as well, and she has seen another group (after the first operation) who told her she was in excellent hands. She has great faith in her doctor and that is paramount. I trust her judgement and his. It’s just 2 mos and three weeks now. Not that I am counting.
She is out and about and active…she’s the best sister anyone could have
That is good news that may open the door for more communication now. The scariest part of anything is not knowing. Still not sure I would not see what another doctor says. Just am not comfortable with the waiting as this monster loves to stretch its wings.
My wonderful sister called me on Friday to “wonder if I realized” that this was a public forum…BUSTED!
I could, however, have signed in as the Lone Ranger and she would have recognized me. She was great and does understand that we worry.
She got more information from her doctor and it appears that it is very difficult to image at this point and way too small to biopsy. That is the reason for the wait. I think she is more at ease and so am I.
I have tremendous respect for all of you who live with any form of cancer. I think you are incredibly brave. If anyone ever needs to vent to a total stranger I think I have pretty broad shoulders.
Thank you devoncat!
There are a lot of us hanging on and not in pain. Sometimes I forget I have cancer! Life is full of curves and the best we can do is hang on and do our best. Perhaps you could gently let your sister know that not knowing is hard on you because you love her and are scared and that being in the dark is hurting you when all you want to do is help her.
I know that I get so tired of answering questions about my cancer. It makes it more real and scary, yet I understand that my loved ones need to kjnow for their sakes,not just mine,.
Kris
No, actually I am the older sister…she is the middle one. She survived breast cancer ten years ago. She had a badly broken arm and seven operations and a bone infection as well…..she is the strongest person I know and has a teriffic attitude. I think that the “small things” on the 4 month scan threw her for a loop.
It’s difficult because she has never, as I said, really opened up about her cancer. I don’t know if it’s interhepatic, outer
or whatever. Since they cut out part of her liver I assume it’s the former. But that is all the info I have.I emailed asking if I could speak with her doctor and she didn’t reply. I would just like to know what cancer and stage we are dealing with, but it’s up to her to let me in.
It’s very scary to read about it but the thing that sounds hopeful is that you all appear to be hanging on….hopefully mobile and not in too much pain….I am not much with the praying but when I start you will all be included. I thought pancreatic cancer was the only “deadly” one……who knew…..
Bless you
Sally
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