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My sister starting PDL1 immunotherapy trial at UCSF this week!

Discussion Board Forums Clinical Trials My sister starting PDL1 immunotherapy trial at UCSF this week!

Viewing 15 posts - 1 through 15 (of 43 total)
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  • #83272
    iowagirl
    Member

    Praying for your sister, you and your family. God bless you and keep you and hold you in the palm of his hand.

    #83271
    seek
    Member

    Dear Sara and family,

    I will keep praying for a miracle…

    Emad

    #83270
    willow
    Member

    Thank you everybody.

    #83269
    darla
    Participant

    Sara,

    Thinking of you and your family. Hoping that hospice is giving comfort and support to your sister and all of you, too.

    Love & Hugs,
    Darla

    #83268
    mbachini
    Moderator

    Sara,
    Wishing you and your sister strength, comfort and peace…praying for you both!!
    Melinda

    #83267
    lainy
    Member

    Hi Sara, just got home and saw your post. Wishing you all the best and a ton of comfort for your Sister.

    #83266
    gavin
    Moderator

    Sara,

    I’m sorry to hear this news about your sister. I so hope that hospice will be able to keep your sister as comfortable as possible with everything. When my dad went through hospice they did everything that they possibly could for him and I have nothing but good things to say about the outstanding care that they took of him. Nothing was too much trouble for them. I know that this is a tough time for you Sara but please know as well that we are here for you as well.

    Hugs,

    Gavin

    #83265
    ascott
    Member

    Sara,

    So sorry to hear this news. I hope hospice brings her and the family much comfort and support.

    Andrea

    #83264
    willow
    Member

    We’re doing hospice intake now. Home last night after 4 days in hospital. She is doing well under circumstances. Thank you for your concern.

    #83263
    msargent1
    Member

    I hope your sister is doing better!

    #83262
    marions
    Moderator

    Sara…..I so much agree with your decision. Patient have so little control when ill; one would not want to take away the few decisions to be made. Hoping for the Lasix surgery to be successful. It certainly worked well for my daughter in-law and many others I personally know.
    Hugs,
    Marion

    #83261
    willow
    Member

    After discussion with my sister today, it is clear to me that she wants to keep going with the trial. Her husband and I wish she could have the best of both worlds…the support of home hospice and the trial drug. The drug is potentially palliative, not curative, the doctor said. We have no choice but to support her wishes until she just can’t travel any more, or the CC progresses. Going to try to take my mind off it for a couple of days and hang out with my girls.

    #83260
    marions
    Moderator

    Jason….It clearly states: Hospice care can begin when curative treatment is no longer desired or expected to be effective. I suppose one could challenge the “expected to be effective” statement as, it could be argued, Sara’s sister can possibly benefit from the immune response triggered by the clinical trial drugs, and that in itself aids in the end of life treatment. An uphill battle for sure.
    Hugs,
    Marion

    #83259
    jscott
    Member

    Marion,

    Any thoughts on the issue of forcing patients to terminate an active trial in order to qualify for hospice?

    Thanks,

    Jason

    #83258
    marions
    Moderator

    Clinical trials or clinical research studies are an important step in discovering new “treatments” however; first and foremost though they are research studies meant to advance medicine. BUT, research participant have the ability to gain access to a drug not yet approved for the market and perhaps can help with their condition. Why do we have to fail approved chemo in order to enroll in a clinical trial? Doctors know that particular drug/drugs have proven to be effective in large scale studies; we don’t know whether the drug undergoing current clinical trial will have equal or better effects on patients.
    Those patients diagnosed with late stage disease are not left with many options. Perhaps a clinical research study allows for a chance to respond favorably to a drug showing promise for treatment.

    In the future, we may hear more of single-subject research studies and N of 1 randomized trial studies. N-1 compares a therapeutic procedure with placebo or compares two treatments by administering the two conditions in a predetermined random order.
    Hugs,
    Marion

Viewing 15 posts - 1 through 15 (of 43 total)
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