My story, in case it helps…

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Viewing 15 posts - 16 through 30 (of 49 total)
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  • #39847
    kris00j
    Member

    Good luck on Thursday Andy. I will pray that you have a wonderfully trouble free procedure.
    And you’re right: that’s a small price to pay for being alive. So far most of what I’ve given up is my active lifestyle. I just don’t have the energy or stamina for my “old” life. But I’m learning to compensate. Just slowing down but it beats the alternative!
    Kris

    #39846
    andy
    Member

    Hi Kris,
    Great to hear your story too! If it has shrunk that much already (and just work out the volume change in those measurements) then there’s no reason why it can’t continue to shrink more. Keep at it!
    I met my radiologist tonight as my stents are now blocking, after 9 months. He’s going to replace them on Thursday, and is already talking of advances in technology where stents can last longer still. But replacing stents once in a while is a small price to pay for being alive and healthy and cancer-free!
    My best wishes – and thoughts – are with you.
    Andy

    #39845
    kris00j
    Member

    Andy:
    I am so glad you responded. I’ve only been on this site since March or April 2011 since being diagnosed myself, and hadn’t seen this. It is inspiring! My tumor is also shrinking at an amazing rate on Gem/Ox. I am not doing any “alternative” medicines, supplements or diet yet. I had surgery to prepare for my treatments but the tumor itself is not operable at present. After reading your story, I hope to not have to have surgery. I’m staying as positive and realistic as possible but your story gives me hope that I may not NEED surgery in the future.
    My tumor has shrunk from 5.4×4.3cm to 4.0×2.4cm, with the lymph nodes no longer being noticeably affected. So I keep praying every day that I can have a positive outcome. After reading your story, I can hope that maybe I can get a positive outcome without another surgery! At least I know it’s possible. So I just wanted to thank you for sharing.
    Kris

    #39844
    andy
    Member

    Hi Joolz, Maria and Jim,
    Sorry I’ve not responded before, but glad to hear your stories. Hope you are still doing well – I’ve now been ‘free’ and well for 18 months…
    Andy

    #39843
    nancy246
    Member

    Pernicious – my new word for today. I had to look it up Jim. Good word. Take care. Nancy

    #39842
    jim-wilde
    Member

    Wow, what a wonderful story Andy. I had surgery and Gemzar and considered myself very lucky with this pernicious disease.

    Good luck in the future.

    #39841
    maria
    Member

    Andy, I must agree with the others; your story is wonderful reading for so many, myself included. Don

    #39840
    joolz822
    Member
    Kristin wrote:
    Andy, that’s TREMENDOUS! We’re so happy to hear your story. And it’s a big help to me personally. I’ve been putting off chemo as long as possible, because so many people assume it “won’t really help”, but now my oncologist is saying it’s really time for it. Hearing your experience is so encouraging for me. Thanks so much for posting it. And welcome to our group!

    My best wishes to you,

    Kristin

    Why would you put off chemo is that’s the only treatment that’s available? My CC is inoperable so it’s the only option available. Yeah, chemo is no cakewalk. Side effects can be miserable but if it’s all I can do, well, I’m not going down without a valiant effort.

    #39839
    potyitech
    Member

    Andy

    God bless you and your positive attitude. Your story helos by giving us hope.

    #39838
    andy
    Member

    Hi Janet,
    I don’t know about your mother’s overall health, but I was amazed that my chemo (with Gemcytabine only) had no side effects on me at all, at least for the first 5 or 6 cycles. After then it messed up my liver enzymes, but by then my tumour was gone. I know from others and my oncologist that Cisplatin has harsher effects, so maybe Gemcytabine on its own would be worth talking about?
    Keep up your strength!
    Andy

    #39837
    jaynus
    Member

    that story sounds exactly like my mother’s, (minus the chemo and tumor shrinking). She is unoperable with the cancer starting right in the same place on her main bile duct at the branch as well. It is now in her liver as well unfortunately but she has been juicing, accupuncture, positive thoughts and calmness. They discouraged her from chemotherapy as they were concerned cause she was a little weak but she has improved over the last few months. Energy levels better, and amazing color and appetite. Just having some issues now with extra pain and fluid. We are all so afraid the tumours have grown and are waiting for a CT. I have sent her your story so she can read it for motivation. I am so happy to hear of your success!! I hope this can be possible with my poor mother too.

    Take care of yourself and thanks for the uplifting story. It lifted my spirits. It has been such a struggle!

    Janet

    #39836

    Amazing! Thank you for sharing your story and bringing everyone joy and hope for Christmas! I commend your wife for being strong and for taking things into her own hands and comment you for looking at all possible treatment options no matter how out-of-the-norm they were!

    I pray that God continues to bless your family!

    Mery Christmas

    #39835

    Andy — I am new to this site and am thrilled with your story! It really is inspiring!

    #39834
    gavin
    Moderator

    Hi Sharon,

    Welcome to the site. I would just like to join Marion and Lainy in welcoming you here and also to thank you for sharing your story with us all. I hope that you will keep coming back here and looking forward to hearing more good news from you.

    Best wishes,

    Gavin

    #39833
    lainy
    Member

    Hello Sharon and welcome to our famiily. You are already an awesome survivor. Thank you for your story as it will give others encouragement. Keep up the good work and please keep us posted.

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