August 30, 2010 at 3:06 am #39832
Hello Sharon and welcome to our site. Thanks for sharing your success story. That is quite an impressive reduction in tumor size you have achieved. Congratulations. The beam radiation in combination with the various chemotherapies appears to be quite effective for you. I just love these stories, because it gives hope to many.
Keep up the good news and please, continue to share with us. By the way, do you have big plans for your retirement?
MarionAugust 30, 2010 at 2:30 am #39831sharon-fieldMember
Andy, I’m so glad to read your story. I have had cc about a year longer than you—have had NO problems with my bile ducts, but my original tumor was 13 1/2 cm. I can’t have surgery due to involvement with the great vessels of the liver. I have had cisplatin, gemcitabine, 5 fu, Xeloda, & radiation 2 times. I was fortunate to use the big Novalis machine at the University of Nebraska. No side effects at all from the radiation. What a blessing. So far so good & the tumor is 71/2 cm the last CT I had in early Aug. I am still working full time & have a goal set for retirement in 2 years. I hope I am so fortunate to see that day. Sharon Nebraska USAAugust 27, 2010 at 6:46 pm #39830krisiParticipant
Wauw – what a fantastic description to read. I just logged on to the forum with the objective to write a post about experiences with inoperable cancer and the time that treatment keeps others up and going. I have been told that I will be having chemoterapy for the rest of my life – hopefully with some breaks inbetween. I plan to proof this plan to be wrong!
Reading your story Andy really makes my hopes even bigger. I’m young (37) and have no symptoms at all so I really want to proof the plan to be wrong.
I myself am in the proces of identifying what can help me and boost my body to work better during the chemoterapy. I have some food allergies but I will find a way to solve this.
Thank you again for your encouraging post.
KrisiAugust 18, 2010 at 5:50 pm #39829John ThomasParticipant
We are sharing the same time frame for this disease. and also a similar mindset. I feel that without the option of surgery, the only choice we have is treat this as a chronic disease. I am having PET and MRI this week, which I know will confirm my belief. Best wishes for your journey.
John ThomasAugust 17, 2010 at 5:31 am #39828capodadParticipant
Andy, congratulations! That is fantastic ! Your story gives hope to us all. Thank you. I am going to print this out and show it too my Wife who’s tumor (Klatskins) sounds similar to yours. GaryJuly 12, 2010 at 3:53 pm #39827lance21Participant
Thank you SO much for sharing. It means so much to hear success stories. I certaintly wish you continued good health! I will share your story with my mom, as well as your supplement program you’ve embarked on.
MarniJuly 11, 2010 at 9:46 am #39826andyParticipant
Thanks so much for your positive responses. It really does make a difference to know others care and are supporting you.
For those that want details of what we did in terms of supplements and diets, I’ve now posted them here:
There’s a lot that others have already posted, but I hope the references and sources are useful.
Best wishes to all for a positive future!July 10, 2010 at 4:10 am #39825linda-zParticipant
thank you so much for your story. It was very uplifting and we can all use more of that!
Please do post those supplements that you were taking on the alternative health section as Kris mentioned. I know I’m interested and I’m sure many others would love to read about them.
Thanks again and welcome to our site. Please come back often to share your knowledge and help with others.
LindaJuly 9, 2010 at 9:46 pm #39824
Hello CM and welcome to our site. Stories like Andy’s give hope and allow us to stay realistic and optimistic. I am wishing for a happy 1st Birthday Party. Is it a boy or a girl?
MarionJuly 9, 2010 at 9:09 pm #39823cmParticipant
Your story is fantastic. My husband was recently diagnosed with inoperable CC. We have a little baby who will be 1 year this weekend. Your story gives us such inspiration we will celebrate her birthday with hope in our hearts.
Thank you so much for sharing.
CJuly 9, 2010 at 5:41 pm #39822andieParticipant
Thanks for sharing your wonderful news. My Dad was diagnosed in April with inoperable CC due to location and is being treated at the QE in Birmingham, is this where you were treated? My Dad is under Dr Bramhall. He was due to start Gem/Cis last month but his metal stents decided to block making his bilirubin too high. He is currently in the QE after having his stents unblocked and extended. Your story sounds very much like my Dads in regard to tumour location and size. I really hope my dad responds to the treatment like you did. Reading your story as given me hope and I’m going to show it to my Mom and Dad.
Could you tell me what supplements you take and did you take them whilst on Chemo? My dad takes Omega 3 at the moment and has started drinking hot water and lemon as we read it was a natural bile thinner.
Look forward to hearing from you
Best wishes to you and your familyJuly 9, 2010 at 5:39 pm #39821gavinModerator
Welcome to the site, and thank you so much for sharing your amazing story here with us all. Hoping that your good news continues for you and looking forward to hearing more about it.
GavinJuly 9, 2010 at 5:31 pm #39820
Andy…..I would also like to chime in and thank you for sharing this uplifting story. We can never get enough of hearing good news.
MarionJuly 9, 2010 at 4:47 pm #39819devoncatParticipant
What wonderful and inspiring news. It would be a tremendous help if you posted the 15 supplements you took under the alternative health section. I am sure several of our members would find it very helpful.
KrisJuly 9, 2010 at 2:29 pm #39818hollandgMember
That’s a wonderful inspiring story. I’m delighted for you and your family.
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