January 28, 2014 at 11:32 pm #78582mcwgoatSpectator
I hope soon you can read these posts and know that we are all thinking of you. I’ve been praying for you every day. Positive vibes being sent your way!
Peace, Love & Hugs,
MaryJanuary 28, 2014 at 5:48 pm #78581darlaSpectator
I’m with you LisaS. Thinking of her today and patiently waiting to hear the good news.January 28, 2014 at 3:33 pm #78580lisasSpectator
Hoping to hear good news soon. Was reading this thread and thinking of you yesterday.January 27, 2014 at 4:18 pm #78579surfer1Spectator
Best of luck Porter! I’m keeping you in my thoughts.January 27, 2014 at 2:17 am #78578willowSpectator
Sending lots and lots of good juju for a smooth surgery, recovery and spectacular outcome. Good riddance to that CC girl!
WillowJanuary 27, 2014 at 1:49 am #78577marionsModerator
pfox….. Remember, you have youth on your side and tons and tons of good wishes heading your way.
MarionJanuary 26, 2014 at 6:01 am #78576
Thanks all. Lainy I def will and thanks for the reminder. I have some friends and family and house has been full the last couple of days and I drive up tomorrow to Portland to start the prep work and get prepared for Monday. I have not been on here too much this week so sorry for not staying updated and responding to others posts. But thanks for all the support it’s been a very busy emotional week and just trying to get ready as much as we can for Monday! There will be updates on caringbridge.org right after the surgery for follow ups until I am able to respond and be up and about on a computerJanuary 26, 2014 at 1:07 am #78575darlaSpectator
That goes for me, too. My thoughts and prayers will be with you on Monday. Look forward to your update when you are up to it.
Love & Hugs,
DarlaJanuary 26, 2014 at 1:04 am #78574lainySpectator
Dearest Porter, I too am thinking of you and sending all the good vibes your way I can muster, besides crossing everything I own! And yes, it is very common for the Surgeon to say they will not know much until they are in there. Porter I want to remind you to ask for an epideral before surgery, it will help for the first day or 2. I am praying for God to come through the surgeons hands and looking forward to hearing good news! You go girl! There will be so many with you in spirit everyone in the surgery room may have to stand aside!January 26, 2014 at 12:32 am #78573
Just wanted to let you know that I am thinking about you. Hope that surgery goes well on Monday and in a few days you will be able to update us on how it went. I will keep you in my thoughts and prayers on Monday.
KrisVJanuary 18, 2014 at 1:54 am #78572
Hi Kris they mentioned the common bile duct too and that they might have to do that as well. With some of the technical procedural questions she said we just wont know until we are in there. I would imagine this is common. They are predicting the best they can with what they have to work with now. Thanks Kris for the support and resources!January 18, 2014 at 1:51 am #78571surfer1Spectator
When we met with Dr. Colquhoun at Cedars Sinai for my husband, he said when my husband would have a resection, he would have a trisegmentectomy and leave segments 2 & 3 and take the gallbladder as well. Sounds like yours will be the same. Good luck. I will keep you in my thoughts.January 18, 2014 at 1:09 am #78570
All sounds good to me. I would expect platelets to be low with chemo, hopefully they will pop up before surgery. You still have 10 days.
Mark had a Roux-en-Y procedure which is probably similar just opposite side of the liver….they took out the left lobe and the caudate lobe of the right along with the gall bladder, common bile duct and then pulled a piece of his small intestine up to make a new bile duct from the liver to the small intestine. They left him basically with 7 and 8. His was a longer surgery but that was due to adhesions and scarring from a previous surgery and he was 12 days in after the surgery but we had him in two days earlier for complications from his bile drain placement.
You have been in thoughts a lot as you get ready for this. I am so excited for you.
KrisVJanuary 18, 2014 at 12:54 am #78569
Hi all I had my pre op consult today. What they will be performing is called a right trisegmentectomy? Those that have been through surgery has it been similar to this? I tried typing in that term in the search but nothing had popped up. They will be attempting to remove the majority of my liver and gallbladder and lymph nodes and leave me with remaining segments 2 and 3. The surgeon sounds very hopeful and confident, that being said won’t know exactly what they are dealing with until they are in there. I like her approach and as she put it she will be as aggressive as she can but safe. They are going to attempt to remove everything but of course there is a chance that could not happen. I think it definitely is worth the attempt and I figured the multidisciplinary team decided on this unanimously so it’s gotta be worth the shot. She predicts about 8 hours and 1 to 2 weeks in the hospital. I am scheduled first thing on the morning of the 27th. A little bump in the road however popped up today as my labs were drawn and my platelets are at the lowest they have ever been. (My last chemo infusion was last tuesday) I will be having another draw next Friday to see where my numbers are at and if they are still low we will be talking about the plan and options. Thanks again for all the info and support you guys have given me and I am so blessed to have all you guys. I feel so grateful for all of you.January 14, 2014 at 5:54 am #78568
There are so many things I have swore I would and wouldn’t again if we went through another surgery…I am sure I will think of more.
He had his surgery at Virginia Mason in Seattle which is really close to the University of Washington. Dr Flavio Rocha. He was awesome. Of course I was in such shock when he told us it was cc (even though I knew and had read about it before hand) that I didn’t even look him up until after surgery. He trained as Memorial Sloan Kettering which we have been told is one of the top places….of course on here, I see others. He does about 6-8 surgeries for CC a year and sees about 40ish people a year that aren’t resectable (his numbers and I don’t know for sure how accurate). I love him and they do a tumor board there that has the surgeon, oncologist, interventional radiology, gastroenterologist and multiple other disciplines meeting. We didn’t actually see them but have seen the reports and it’s in line with what I have learned here.
I believe that as long as you feel comfortable with your surgeon that is half the battle.
Oh and another thing is to stock up things at home. I would make sure to get some adult puppy pads (that’s what my husband calls them) but they are the flat absorbing pads they put under you at the hospital. Those are great to put under you in chairs and beds to prevent soiling if drains or wounds leak. If you come home with a drain that needs flushed ask them to give you the flushes before you leave. They are prefilled syringes with saline in them. If you have a wound that needs dressing changes, ask them to send a bunch home with you. And take all those plastic tubs and all home with. They throw it away and you paid for it. And you may find use.
If you want you are welcome to give me a call. I can answer questions now and even after surgery. 360-880-0327.
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