My sweet beautiful daughter passed away November 16, 2015.
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Patricia, I see that you are from New Jersey, I am from PA and my mom was dx in late November with CC. What doctors is your cousin seeing? Who is her surgeon? I am trying to find the best CC surgeon for my mom as I am not to sure about the first surgeon she saw.
JenniferDear Patricia, welcome to our remarkable family and the best place to be for CC support. It is bad enough when a family member gets a terrible rare cancer but the tragedy doubles when another illness hits another family member at the same time, or ever.
We understand that when the DX comes out of CC you feel like you have been hit with a baseball bat in the gut. With that said, there are new treatments coming along all the time. Trust yourself, the rest will follow! When first diagnosed you will start out walking slowly and before you know it you will be running with the pack! I understand why the Whipple was aborted as my husband had a Whipple but was fortunate that everything else was clean. Yes, there is HOPE as after zapping the new tumor they can proceed with the Whipple. And yes there is HOPE when other options are available and can work. Where is your Niece being treated? Wishing your family the very best and please do keep us updated as we truly care. Below is a site you may find helpful:http://cholangiocarcinoma.org/newly-dx/
Oh my, I am so so sorry about your daughter. My name is Patricia. I am a nurse also. My cousin, Carole was diagnosed with bilt duct cancer right before Christmas. She was in the hospital for a Whipple. We got the call they decided, not to proceed. They found a small tumor in her liver. This never showed up on all the scans they did. We saw the oncologist on Friday. He tells us there is hope! They are going to start chemo. Needless to say we are terrified. Her brother was diagnosed with ALS, in August.My dear aunt is 87years old. She has two gravely ill kids.
Our hearts are broken . I felt joining this group could help me.
It seems as if there were no symptoms until it was too late. I worked Oncology for a long time. When it hits home, it is a whole different thing.Lise, I will email it to you through the forum.
I saw that and will see if I can from here otherwise you have to go in to each one and Delete it. Not to worry if I can’t we have a couple who can.
Thank you Lainy. Yes, I would like you to email that info. Also can you fix my post. It looks like it posted 4-5 times. I don’t know why that happened. Thank you.
My Dearest Lise, I am so very sorry to read about your beautiful, loving daughter. I believe that our loved ones never really leave us, they just go to the next room. I am a huge believer in the beyond and have logged 124 visits from my beloved husband over the last 5 years. By believing it really brings so much comfort. Grief is carried out in many different ways , there are no set rules. I cannot imagine losing a child of any age but I do feel your daughter is all around you. I do have a list of ways to know she is visiting you and would be happy to email it to you if you so desire. I am glad you have sought out some help and I hope it brings you the strength we need to accept and to go on with life as that is what our loved ones would want for us. You never know how strong you are until “strong” is the only choice you have!
I’M STILL HERE
I’m at your side each night and day,
In your heart is where I’ll stay.
You can feel, see or hear, I am not gone, I’m always near.
I’m the colorful leaves when fall comes round,
The pure white snow that blankets ground.
I’m the first bright blossom you’ll see in Spring.
The first warm raindrop that April will bring.
I’m the first ray of light when the sun starts to shine,
And you’ll see that the face in the moon is mine.
I’ll whisper your name through the leaves on the trees,
And you’ll feel my presence in the soft summer breeze.
I’m the salty tears that flow when you weep,
And the beautiful dreams that come while you sleep.
I’m the smile you see on a baby’s face.
Just look for me, I’m every place!
My sweet beautiful daughter passed away November 16, 2015. She was 49 years old. We were VERY close. She had some medical problems through her life but all were managed. I NEVER dreamed that we would be given this diagnosis. First of all I had never heard of it and I am a Registered Nurse with a Bachelor’s Degree. I was overwhelmed to say the least.
She was given the diagnosis May 2015 and it was Stage IV with metastasis to the bones. The chemo involved was very caustic and was not recommended for her. She was a small girl weighing 90 # and only 4’9″.
We were told by our second oncologist that he did not recommend any chemotherapy, only palliative care. He estimated that she would live 3-4 months. She live 6 months. I took care of her day and night. Watching her suffer was the absolute worst thing I’ve ever been through.
Now, the terrible grief. It’s been almost 3 months and its been hell. Crying spells daily, panic attacks, sleepless nights. I am getting counseling now and am also on antidepressant and antianxiety meds. I Just have to figure out how to live without her and haven’t figured that out yet.
I also posted this in the Grief Forum. I forgot I should introduce myself as this is my first post.
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