My update not positive

Hi Hollie, Sorry to hear Sophie is having so much trouble with fluid retention/acites. I was drained 3 times but not as much as Sophie. After the 3rd time things seemed to have stopped. I had the same problem with dangerous potassuim levels as well. In fact the had to make up a concoction and feed it to me by way of table spoon. I did do something of which I did not tell the doctors at the time and that was take Ibrophen anti inflammatory tablets OTC 800 mgs every 4-6 hours for one week and that appears to be when my fluid build up stopped. I would certainly run that by the doctor first though. In fact I have had 2 different Oncologist recommend taking for pain in the liver caused by inflammation. Just an Idea for you all to ponder Hollie. As if you don’t have enough as it . There were a lot of little things I tried while I was taking chemo. 6-8 mgs of steroid per day may help as well. Sophie, wish and pray this turns around real quick for you. Hollie your a terrific loving Niece. My Nieces just keep sending joke after joke after joke. I tried to send a normal everyday e-mail and the replies are always jokes. I even mentioned How I would like to know how all is going on in their lives ,kids ,work, husband. I love them! I guess they just can’t get off the joke wagon, to convient. A special thanks for being there Hollie , I can really sense how much Sophie appriciates and loves you.
God Bless,
Jeff G.

I hope that they can get Sophie’s medication approved quickly so she can be more comfortable. She sounds like a wonderful, dear woman.

Hollie…..thanks so much for keeping us abreast on Sophie’s condition. I have been told that Paracentesis (draining of ascities) can cause Potassium Levels to drop. I am hoping for Sophie to feel better soon.
Please, let her know that many good wishes are coming her way.
Hugs
Marion

Sophie,

The great thing about this place is that you have permission to fully feel every emotion you have. You are confronting a terrifying thing, something that even doctors are terrified of and bad news can pack a wallop. I still hope, though, that amidst this bad and nasty cc you are able to find moments of joy.

Just for you, a quote:

Who will tell whether one happy moment of love or the joy of breathing or walking on a bright morning and smelling the fresh air, is not worth all the suffering and effort which life implies. ~Erich Fromm

Patty

Sophie —
I feel like I know you since we joined up here at close to the same time.

My every good wish and thoughts are with you. I know there are no right and wrong answers in how we call choose to deal with this awful illness.

I think that threatening to go the newspaper may be a good insurance company strategy — no insurance company wants bad press.

Thinking of you,
Irene

Sophie……I am sorry to hear this. Several members on this site have used Avastin so I am hoping for you to receive approval also. I am crossing my fingers and toes.
Sending tons of hugs your way,
Marion

Sophie, you yourself are an amazing, brave and strong woman! Look at what you are going through! Lainy is right…even if you feel like there is absolutely nothing left. put on that attitude, look up into Jesus’ face and tell him you can’t do it…you just can’t do it anymore…and I promise you will find just enough hope to get you through even the next minute of the day!
We love you and will be praying for you!

Love,
Heather

So sorry to hear you are having such a bad time, Sophie. Got to have attitude and that will give you hope. Then again, you have earned the right to feel any way you wish. Just know we are here to listen to you and that we are thinking of you and praying for you!