July 11, 2011 at 6:25 am #51606marionsModerator
Hi Lisa…..I have been reading up on your caring bridge site and can hardly keep up with everything happening in your life. You are a very busy lady. The wedding sounded just beautiful and I can’t wait for you to post the pictures.
Know that I think of you often. We have shared much joy within these last four years and we have comforted each other through the losses.
And we will continue to support each other until a cure is found for this disease.
Hugs and all my best wishes are coming your way,
MarionJuly 11, 2011 at 2:41 am #51605nancy246Participant
Kathy, Another inspiration! Love it! You gals give me a lot of hope for my wonderful husband Doug who is courageously fighting stage 4 with you; and so many others as well. Keep kicking butt! Hugs. NancyJuly 11, 2011 at 2:37 am #51604nancy246Participant
Great to hear from you Lisa! You are a true inspiration with how you attacked this disease and not let it take your spirit! Boy you have been busy with all those wonderful milestones! My husband Doug, like you, pushes himself with projects and activities then collapses from exhaustion too. He feels better about himself when he accomplishes things, though. I too pray for a cure and hope it comes soon enough for all you courageous patients out there. Take care Lisa. Hugs. NancyJuly 11, 2011 at 2:26 am #51603kathybMember
So good to hear from you. I often check your website. Understand why you “haven’t been around lately”. I feel the same way, but I keep checking for news from those such as you.
This month is my 2 year anniversary for inoperable stage 4. Your faith is an inspiration to me.
KathyJuly 11, 2011 at 12:21 am #51602pcl1029Member
From the bottom of my heart and as a patient myself ,I admire your courage and endurance.
May the Love and Protection of our Lord,Jesus Christ,be always be with you and your family.
PCL1029July 10, 2011 at 11:47 pm #5421lisaParticipant
I’m sorry that I haven’t been around lately. Devoncat’s passing and a few others (off the top of my head: Teddy, Rick, Dave) were devastating and I had to take a break.
This coming August will mark four years of survivorship for me. I know that is not typical and I thank God every day that I am still around. I have been in Stage 4 for about 2 1/2 years now with mets to the lungs. The liver has been ok-ish for a while but I’m seeing some negative signs that all is not well in that area. But since there is nothing I can do about it, I’m just letting it go.
I’ve been through about a dozen or so different chemo regimens, until my oncologist ran out of tools in his toolbox. I am currently under hospice care. Everyone is different with hospice care. For me, it means that I don’t have chemo anymore, and I have a nurse, a social worker, and a massage therapist who visit me every other week. All meds go through the nurse. It’s been working out ok.
One thing that I need to remember is that I am ill. I feel normal and do things, like weeding my backyard, then I collapse from exhaustion. I need to learn to conserve my energy and be on a more even keel.
Anyway, I am so very grateful that I have had the opportunity to see my youngest graduate from high school, my middle child get married to a wonderful man, and my oldest graduating from college in August. I have been given the opportunity to be with, support and love my children and my parents. I’ve also grown so much spiritually. I try to see the best in things, and God’s hand in all things – whether we understand or not.
I pray every day for a cure, for those of us struggling as patients and caretakers, and the wonderful people behind the cholangiocarcinoma foundation. Every one of you are doing the best you can. Thank you all. God willing, there will be a cure, and soon.
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