Need help/advice

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Viewing 15 posts - 1 through 15 (of 31 total)
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  • #81280
    lainy
    Participant

    Kris, that was good! What do you expect from an old lady whose memory is shot from Remicade. Joking…that was excellent. Anyone else care to share their poetry for Mary? Luv you Cookie. (The name I gave Kris a year ago when she visited me at the Lake in Milwaukee)

    #81279
    mcwgoat
    Participant

    You both crack me up!!! And that’s what I need – lots of laughter. Humor is the best medicine!!!

    Lainy – I wish you could come here too. It would be great to meet you in person!!!

    Love to both of you. Hoping to talk to you Saturday Kris.

    Peace, love & Hugs,
    Mary

    #81278
    kris00j
    Participant

    Lainy,
    You could say
    Mary, Mary, not contrary. Go out and plant some flowers
    A healthy you, and vases too
    So you can enjoy them for hours!!

    #81277
    lainy
    Participant

    Wish I could bring me out there! I would love to meet you, you are a strong and amazing woman. Guess our whole sight is pretty amazing full of strong and awesome people the world over. Just know I think about you a lot. OK I have always wanted to say this to you so here goes:

    Mary, Mary but not contrary get out and plant a garden,
    With health galore and happy thoughts
    So I don’t have to call the warden. OK so what rhymes with garden????

    #81276
    mcwgoat
    Participant

    Lainy,

    You always bring a smile to my face.

    #81275
    lainy
    Participant

    Mary, I am thinking of you and sending good juju to you! I think the best RX would be Kris!! If it would warm up she could ride her Cycle and ride it right up to your room! OMG I cracked myself up! Sending hugs, love and prayers too.

    #81274
    mcwgoat
    Participant

    Hi Kris,

    I tried to call you the other day but you weren’t there and I wasn’t able to leave a message. I still do want to talk to you and would love, love, love to see you in person – it’s been too long!!!

    I’m hoping to not have to be in the hospital again for a long time!

    #81273
    kris00j
    Participant

    Mary, I second Karen! I’m 1.5 hrs from you. If you find yourself cooped up in the hospital again, please let me know! I will try to visit. Especially if the weather is nice and I can ride there!

    #81272
    mcwgoat
    Participant

    Thanks Darla and Karen.

    Karen, I don’t know if you remember but we met at the first luncheon that Kris organized. It was a pleasure meeting you and your sincere, sweet spirit shone through then and in your post today. I believe you’re way down south jersey and not close to me at all. I would love to see you but wouldn’t want you to make such a trip. Please continue to keep me in your prayers and hold me in your warm thoughts.

    Love,
    Mary

    #81271
    karen
    Participant

    Hi Mary,
    Sending out so much healing energies to you. It is so difficult making decisions through this journey. You are on my mind and in my heart. If you ever want somebody to just come and sit; to throw around some of the thoughts rambling around in your head, let me know. I will gladly find my way to Basking Ridge. Prayers of peace and healing to you.
    In peace,
    Karen

    #81270
    darla
    Participant

    Good luck Mary. Hope you get this sorted out and can get some relief. Thoughts & prayers heading your way.

    Love & Hugs,
    Darla

    #81269
    mcwgoat
    Participant

    Thanks Marion. I know you feel my pain and I thank you for that. I do intend to have a honest discussion with my oncologist and see where that leads me.

    Please keep me in your warm thoughts and prayers.

    Love, Peace & Hugs,
    Mary

    #81268
    marions
    Moderator

    Mary…I so much wish to have the answer to your question. Irinotecan is very difficult to tolerate – have not seen one single person breathing through this treatment.
    I would have a heart to heart discussion with the oncologist. You need to know your options and you need to convey to the doctor your honest feelings.

    Hugs are heading your way,
    Marion

    #81267
    mcwgoat
    Participant

    Thanks Marion and Kris,

    Well, I was back in the hospital again. This time with thrush. It was miserable. I don’t know how much longer I can tolerate the Irinotecan. I’m thinking of asking the doctor if therein another chemo I can switch to. Do you think that is a wise decision? I want to fight this but I’m just so tired of all the setbacks.

    Peace & Hugs,
    Mary

    #81266
    kris00j
    Participant

    Hey! What do you mean you don’t know any of us personally?? I’m hurt! (Just kidding)
    Glad to hear of the little successes. Hopefully they continue and keep improving.

Viewing 15 posts - 1 through 15 (of 31 total)
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