Needle biopsy – BEWARE

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  • October 15, 2009 at 2:32 pm #32092
    lainy
    Spectator

    Hi Adam. When they did not biopsy because of not having the right machine did they talk about sending you to a place that had the proper machine? I would suggest you try to read up on some past posts on this site and honestly go with your gut feelings as they are usually right. Nothing wrong with a second opinion either.
    Also I guess I would be thinking, IF I chose to have a biopsy, why are they waiting a month? Perhaps a good question to ask would be “have you treated CC before”. Please do not underestimate yourself and what you are thinking as you will be your dad’s best advocate.

    October 15, 2009 at 2:23 pm #32091
    darla
    Spectator

    Ashley,

    Thanks for posting this. My husband too had a needle biopsy done. As Karen said, everything was moving so fast & you didn’t really have a chance to think about it or to say yes or no, but I often wonder if that was part of the reason things went so swiftly.

    I too am hoping others will read this & will have a chance to think it through and make a more informed decision on wether or not to have this done.

    Thanks again for putting this information out there. I will be hoping for the best for your Mom.

    Darla

    October 15, 2009 at 1:24 pm #32090
    adam
    Spectator

    Thanks. My father will be going in for a biopsy in the next few weeks/month your post plus what I’ve read in my sleepless internet studies shows the needle biopsy (fine needle aspiration?) can spread. Does anyone know if ercp biopsy can spread? Is it possible for an ercp biopsy to not yield results? When they put his metal stent in they said they couldn’t biopsy because they didn’t have the right machine? They did brushings (non conclusive) It is confusing.
    Thank you!

    October 15, 2009 at 1:19 pm #32089
    karen
    Spectator

    Ashley,
    Sitting here in tears. My husband always contended that he thought his CC had spread because of the needle biopsy…not that we were really given a chance at denial. Seems once the doctors are on the trail of something they just schedule you for tests without much explanation while you are still in a state of shock from the previous tests. Thanks for the posting.
    Peace,
    Karen

    October 15, 2009 at 8:08 am #32088
    katieloumatt
    Member

    Ashley,

    Thank You for posting this. It is very interesting and makes sense, CC seems to spread so easily and rampantly.

    Thinking of you and your Mum,

    Katie

    October 15, 2009 at 2:51 am #32087
    marions
    Moderator

    Ashley…..this is highly interesting. Thank you so much for posting it. I am hoping for others to read this also and to discuss this with their physicians when a biopsy is contemplated.
    Thanks again and best wishes for your Mom,
    Marion

    October 15, 2009 at 2:11 am #2775
    ashley
    Spectator

    I’m following several other websites, etc. with patients being transplanted for CC. ( like my mother). I want to share this post from a young man just starting the Mayo protocol in Florida. What his docs are saying is the same that we were told at Mayo – minnesota and luckily my mom’s doctors at Yale (1st opinion)knew NOT to biopsy the tumor. If this type of biopsy is known to potentially spread the cancer, I hope every new member having to come to this board can be made aware. Occasionally I do read new members talking about a biopsy and it gets me going to think that some docs out there must not agree or know about this?? I just don’t know.

    Here is Brian’s post from a day of testing at Mayo – Jacksonville:

    The only setback we had so far is that when they did the biopsy the beginning of September (the one that diagnosed the bile duct cancer), the doctors at MUSC used a needle and went from outside my skin into the liver to get the samples. Normally that type of biopsy would automatically disqualify me for the liver transplant because when they pulled the needle out cancer cells could have seeded in my abdomen and skin. Dr. Harnois had already been aware of this and had spoken to several members of the review board and they said they would consider my case. With this information she felt that there was not a problem with going forward with the evaluation for now. They will probably do some extra radiation in that area to be extra safe before the transplant. The problem is that with a liver transplant they have to put me on medicine during and after the transplant to lower my immune system so low that the body won

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