November 2, 2013 at 1:50 am #74288
Thanks, jathy! My uncle has an intrahepatic cholangio.
Good news to report as well They were able to stop the bleeding. The ulcer was still oozing though so they put in a coil to stop that. He’s doing very well and is being moved to the regular hospital floor tomorrow morning!
Thanks again for all the support. These bumps in the road always throw me for a bit of a loop.October 31, 2013 at 11:10 pm #74287jathy1125Participant
I had hilar cholangio. Glad is ulcer under control, please call any time. I have an amazing story to share and I wouldn’t be here to pay it forward if it wasn’t for God, 2 strangers and Dr. Chapman, telling my story is one way I can honor there memory, kindness, amazing doctor skills and heart.
Lots of prayers and HOPE-CathyOctober 31, 2013 at 2:25 pm #74286
Thanks for all of the support!
the GI specialist said that he’s stable enough that surgery won’t be necessary unless the ulcer re-bleeds (which would most likely occur in the next 24 hours). So crossing my fingers that it’s able to heal itself.
jathy1125, I may take you up on that offer to talk. What type of cc did you have?October 31, 2013 at 2:34 am #74285
Angel…we have seen it frequently for radiation treatments to cause the formation of ulcers. My guess is that your uncle will recuperate from this occurrence. Good luck.
MarionOctober 31, 2013 at 1:11 am #74284jathy1125Participant
Dear Angel, sorry to hear about your uncle. I am a CC survivor because of 2 transplants. I would love to talk to you so feel free to call me (618-567-3247) or email me firstname.lastname@example.org I am glad your uncle is in the hospital being monitored because an undetected ulcer started the reason for my second transplant. I do know it is rare but can usually be treated with a graph.
Lots of prayers and HOPE-CathyOctober 30, 2013 at 8:39 pm #74283
Angel, mine just healed with some meds and diet. Nothing fried, greasy, spicy or with caffeine. Let us know what happens.October 30, 2013 at 7:01 pm #74282
so sorry to hear that you had to go through that yourself, but it’s reassuring to hear that they can be readily fixed. It always sounds so bad when they start discussing blood transfusions and surgery. Thanks for the good wishes!October 30, 2013 at 6:59 pm #74281
Dear Angel, I am sorry to hear your Uncle’s latest ‘development’. I had Ulcers years ago and while they can be readily fixed they are painful and your Uncle needs his strength for other things. A bump in the road but patch it with a little tar and he will be able to ride again. Wishing your family the very best and a quick healing.October 30, 2013 at 5:54 pm #74280
A bit of a set-back today:
My uncle is in the hospital with a significant GI bleed. They’re pretty sure he developed an ulcer and may need surgery to repair/remove the damage. He’s stable and receiving transfusions.
I’m assuming that because of the extensive chemo that area is weakened and more susceptible to issues like gastric ulcers.September 19, 2013 at 1:59 am #74279
Riddles…stents can shift or may have to be inserted in a difficult area. So sorry to hear that your dear uncle is struggling with some of the unexpected, but correctable situation.
Good luck and tons of good wishes are heading his way,
MarionSeptember 19, 2013 at 1:00 am #74278
Haha ill pass that along!
Christmas is by far my favorite holiday, but i love the lead up to it, halloween and thanksgivingSeptember 19, 2013 at 12:43 am #74277
I have not heard of that. But the rest of your post sounds great! Tell him if he doesn’t keep those suckers in you are going to ask the ONC to tape them in!
A Happy Fall to you also. I love this time of year. The stores are already full of Halloween, oh my! Don’t know if you have Costco but they already have Christmas things in. Too early! Now comes the wait but the ending will be good!September 19, 2013 at 12:38 am #74276
My uncle is responding very well to the therapy. Were just waiting now on that all important liver.
The only issue hes been having is that the stents (spelling?) they put in dont want to stay in place. Hes already had to have emergency surgery once to replace them and their monitoring them closely now. Anyone else had this happen?
Happy fall!August 2, 2013 at 8:08 pm #74275
Riddles….until our Cathy comes around to share her thoughts I thought to include some info re: liver transplantations mentioned in our blogs. You will have to go the older postings:
our Kim wrote of her husband’s liver transplantation: (again, scroll down)
MarionAugust 2, 2013 at 5:57 pm #8700
Hello all. It’s been a while since I’ve updated, but I wanted to share my uncle’s most recent treatment progress. For my full introduction here’s the link to my intro thread:
My uncle has an intrahepatic cholangiocarcinoma that has spread through his bile duct, but not beyond. He is receiving care at UCLA under Dr. B. (can’t ever remember his full name). His team decided the best course of action would be a full liver transplant. He is on the wait list (average is 9-12 months apparently) and will undergo radiation and chemotherapy to in essense “stall” the cancer while he waits for a new liver. His doctor has told him he’s in excellent shape for a transplant, so in short, we’re cautiously optimistic.
This week he will be starting a radiation therapy called Neoadjuvant therapy. Has anyone had experience with this type of therapy, specifically in conjunction with a full transplant?
I’ll include the link to the article we were provided describing the therapy: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2504373/
I really appreciate any feedback. You all were wonderful in my introduction thread
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