June 24, 2009 at 4:14 am #29631luluuParticipant
Jamie, Way to raise it naturally!
“Eat a lot of fruits and vegetables ( if your white blood cell counts are lower than 1 k/ul , check with your doctor who may recommend avoiding raw foods). Get plenty of rest. Some extra vitamin C, zinc, and beta-carotene may be helpful, but don’t overdo it with the supplements, as this may be dangerous”
If you have a low red blood count eat beets…it really works to raise they level.
I hate the idea of my husband getting shots to correct the blood counts so I would use these methods and they always worked.
LuLuuJune 23, 2009 at 4:54 am #29623glightfootMember
Good luck with your Neulasta tomorrow. I hope everything goes uneventfully.
GJune 23, 2009 at 2:18 am #29622
Good luck, tomorrow, Jamie. I will be thinking of you and am awaiting your good report.June 23, 2009 at 2:08 am #29621lainyParticipant
Teddy lights a candle at Mass every morning for our CC Family and also good luck tomorrow. Sometimes the fear outweighs the treatment and you will be just fine!!!!June 23, 2009 at 2:00 am #29624
Thanks for your responses. I cant tell you how much I appreciate your posts. I was able to get my Gemcitabine today. WBC was up to normal. Only by a tenth but still I think its the first time in over a year. I am scheduled to get the Neulasta tomorrow afternoon at my local clinic. I wasnt able to talk to my onc but talked to the chemo nurses at Mayo and she reassured me that she had never seen the spleen side effect. Bone pain and rash but not life threatening. I am still nervous and wish I could get the Neupogen instead, but hopefully this will be Ok and really jumpstart my bone marrow.
Plan is Dr appt in 2 weeks, lab tests and start another 3 week cycle of Gemcitabine followed by injections of Neupogen on the 2-4th days after chemo. Thanks again and please keep me in your prayers. I’ll let you know how it goes.
God Bless all of you,
JamieJune 22, 2009 at 3:30 am #29630louiseParticipant
My husband has been a meteorologist in the military, and we all know meteorologists who always predict the worst. Is many ways, the oncologists have to tell us about the potential side effects, but they have no more assurance of how it will affect you than the meteorologist does. What I would ask myself is this: What is the worst that could happen with it; and what is the worst that would happen without it. Then the question is, am I strong enough, with God’s help, to face today’s battle? Which risk am I willing to take in fighting today’s battle? One step, one minute, one shot, one day at a time. Whatever you decide, you will make the right choice for you.
Keep us posted!
LouiseJune 21, 2009 at 9:11 pm #29629glightfootMember
I’ve had Neupogen many times. I had to inject myself daily. My doctor told me to take it until I get the bone pain signal — which could feel like a lower back — like you’ve tweaked pain or a pain in your breast bone. the pain didn’t last. If you had to keep injecting, then I would suppose you would continue to get the pain.
GJune 21, 2009 at 3:05 am #29628
Thanks for your response. I am wondering if we’re talking about the same medication. I just double checked the website for Neulasta and it says it works on white cells not hemoglobin. It sounds like the same thing from where they inject though. The pain I think I could tolerate but when they talk about spleen rupture and fatalities I start to get a little panicked. Thank you so much for your response. I really appreciate it.
JamieJune 21, 2009 at 1:09 am #29627louiseParticipant
I have had Neulasta numerous times after chemo treatments. I always had them inject into the belly rather than the arm. Also, they would inject slowly to minimize the side effects/pain of the injection itself. One of the nurses suggested taking Claritin or other over-the-counter antihistamine for a few days after the injection to help minimize the backaches, and that worked pretty good too. I was on Gemzar and Cisplatin. I would have both on day 1, only 1 on day 8, and the Neulasta would be given on day 9 of a 21-day cycle. The reason for the Neulasta was to keep the hemoglobin from dropping too much. My strong preference was to have the Neulasta and its side-effects rather than risk the hemoglobin decline that would be treated by a blood transfusion and hospitalization to get enough blood.
Hope this helps!
LouiseJune 20, 2009 at 5:05 pm #29626June 20, 2009 at 4:59 pm #29625
Jamie….. I believe, it was Suzanne who had mentioned that Neupegen was easier on her system then Neulasta was. Until others have a chance to respond to you it might be helpful to read up on some prior discussions in regards to either, Neupegen or Neulasta. The “google” search on the top right hand side of the page will lead you to some of the threads.
Others have had some good results with it.
MarionJune 20, 2009 at 4:38 pm #2420
I am supposed to get a shot of Neulasta on Tuesday. I have only heard/read horror stories about it. Excruciating bone pain for days not rellieved with even morphine. One woman had her spleen rupture. Only one previous mention here. Has anyone had any experience with Neulasta or Neupogen? Please someone help, I am really afraid and unsure what to do.
Thanks and God Bless,
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