Discussion Board Forums General Discussion New and need help with mom’s condition

Viewing 15 posts - 1 through 15 (of 54 total)
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  • #32214
    marions
    Moderator

    Toxic substances normally removed by the liver build up in the blood reach the brain. It is called Hepatic Encephalopathy. You might want to discuss this with the physicians caring for your Mom. And, certainly it is something the Hospice personnel will explain to you. Your visit with Hospice tomorrow will give you many answers and a possible direction as to how to move forward with the care of your Mom. I am thinking of you and sending all my love your way.
    Marion

    .

    #32213
    lovemymomad
    Participant

    Thank you all for kinds words and concerns. I wanted to update you on my mom. She is still in the hospital. Her stomach is healing from the surgery, staples are still in. Her stomach was leaking a ton, stopped for a few days, and is now leaking again. It is extremely distended, but not uncomfortable for her. They are going to do a dye test today. I believe that will show how things are working in the stomach. She has had a tube in and out of her nose to drain her stomach. Seems like they can pull it out for a few days and then it needs to go back in. Not sure what will happen as far as that goes. Anybody else dealt with this with their loved one? Doctor put her back on liquids and hoping to move her to solids soon, but I think we are waiting until stomach stops draining. My sister and I are meeting with Hospice tomorrow morning. I hear great things about them. For the past few days mom has been saying off-the-wall comments and not making sense. She seems to be getting a little clearer, but not sure what that is about. She calls from the hospital in the middle of the night so not getting much sleep!

    Thanks for listening.

    #32212
    katieloumatt
    Member

    Dear Lovemy Mom,

    I am so so sorry that the outcome of the surgery was not what you expected. Thinking of your precious Mum and you at this difficult time,

    Katie

    #32211
    lalupes
    Participant

    I’m so very sorry to hear your news; this is not what anyone would want to hear. I’m sending all my best wishes to you & your family. Please come back soon & let off as much steam as you need/want to. We’re here for you.

    With love
    Julia

    #32210
    hughesdewy
    Member

    So so sorry to hear about this, I hope they manage to make your mum feel comfortable now. My thoughts are with you.
    wendy

    #32209
    gavin
    Moderator

    I am so very sorry to hear this news about your mum. My thoughts are with you and your family.

    Best wishes

    Gavin

    #32208
    devoncat
    Participant

    I am so sorry for your family that surgery was not as expected.

    Hugs
    Kris

    #32207
    lainy
    Participant

    We are so very sorry to hear about your mom. We keep up with all our CC “Family” and have answers for everything except for the chore you face tomorrow. Sending you tons of strength and saying prayers for your mom and family.

    #32206
    darla
    Participant

    I am so, so sorry for what your Mom, you & your family are dealing with. Please keep in touch & let us know how things are going. My thoughts & prayers are with all of you.

    Love & Hugs,
    Darla

    #32205
    lovemymomad
    Participant

    I don’t know where to begin…my heart is breaking. My mom ended up having surgery and we received really bad news. He said the cancer is everywhere. She has hundreds of tumors and could not really do much. He did make her another opening so that she can now eat solids and drink, but she probably wont want to due to the cancer. She is just so sick. I’m just so sad. We will talk to her in the morning about all of this. I wish I could take this from her, and from my kids when they hear their MeMe is just so sick right now. I’m at a loss for words…

    #32204
    devoncat
    Participant

    Perhaps you could point out to the insurance company that it is cheaper to do this at home so they would be saving money. Just a thought. Hugs.

    Kris

    #32203
    marions
    Moderator

    Unfortunately, yes, the insurance problems are discussed quite frequently. It does not make any sense, does it? We also had to pay for the nutritional bags because, as it is in your case, the insurance company refused to cover it.
    I am hoping for and wishing for good news tomorrow.
    Best,
    Marion

    #32202
    lovemymomad
    Participant

    My mom has a tube running from her nose, down her throat and is pumping out her stomach. She is not allowed to eat or drink until it is removed. I spoke to the doctor today. Tomorrow, mom is going to have a scope to try to enlarge the opening of the stomach. They also are going to put a drainage tube in the stomach. He will put a line in for a feeding tube in the stomach if he is able to stretch the opening. We found out that mom’s insurance will not pay for her to have the nutrients through her PICC line at home, she would have to go to a nursing home for them to “pick up the tab”. I just love how these insurance companies run things. We pay for the insurance and then when we need it, hmmmm where are they besides dictating what they will pay for and when. Anybody else ever run into this problem???? We have a wonderful Care Nurse at the hospital who is working all of this out for us.

    If stomach opening cannot be enlarged then off to surgery soon. Wish us luck tomorrow. God willing we will hear good news and maybe mom could come home for awhile, and maybe even eat some Turkey Day dinner!!!

    Elmoks, so sorry to hear about you mom. My mother was vomitting ALL the time and we now know it is due to radiation damage. Hope you had good news on her blood work. Take care.

    #32201
    elmoks
    Member

    My mom was diagnosed with CC April 15th of this year. The past week she has started vomiting too. We meet with the dr. tomorrow morning. If her blood work is ok we are hoping that they let her do another round of chemo. But the vomiting does bother me. She only seems to vomit in the morning though….??? And her vomiting is NOT related to the chemo. She hasn’t had chemo in 3 weeks, due to her blood work not being good. My only advice to you would be to STAY ON THAT DR! Your mom is important!

    #32200
    marions
    Moderator

    There is some very good news in all of this in that your Mom’s blockage is caused by the previous radiation rather than spread by the cancer. Our physicians had contemplated a drainage tube in order to eliminate the constant vomiting but, my husband’s cancer progressed so rapidly making it impossible to move forward with it. I don’t quite understand why your Mom could not eat regular food in addition to having the picc line in place. Is there some restriction? The bypass procedure (Roux-en-Y) suggested by the physician would be something we would have welcomed, had it been an option for us. The picc line nutritional supplements will keep your Mom going but, I am hoping that she can also have some regular food in addition too. This would help her gain the strength needed. You are so right; your Mom is a trooper and a very strong lady. I hope that she improves a little bit more each day.
    Best wishes,
    Marion

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