Discussion Board Forums General Discussion New and need help with mom’s condition

Viewing 15 posts - 16 through 30 (of 54 total)
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  • #32199
    lovemymomad
    Participant

    Mom is such a trooper. She is still in the hospital. She still has the tube through her nose pumping her stomach, a PICC line, and she is receiving nutrients daily. The surgeon is still waiting for her to build her strength and debating on what to do next. Her test results came back and her blockage is due to radiation. He is leaning towards putting a drainage tube on the outside of her stomach, pulling the nose tube out, and leaving the PICC line in. Then, through outpatient, try to scope her to make opening larger in stomach to help alleviate the problems and maybe allow her to eat again. Also discussed Roux-en-Y procedure. Never used this name but sounds just like what he would recommend. Not sure if mom could tolerate at this time. I was just wondering if she would be able to remain on the nutrients if unable to actually eat again. Told that it could cause blood clots and not typically done. Hoping for several more options.

    Thank you all for listening, suggestions, encouragement, etc. I know you all are dealing with these type of issues, as well as others, and I wish you all the best.

    #32198
    gavin
    Moderator

    LoveMyMom,

    I hope your mum starts to feel stronger very soon and that her blood test results come back with some good news.

    My best wishes to you and your mum.

    Gavin

    #32197
    marions
    Moderator

    Yes, that is exactly what it would do, and I so much wish that it could be performed for more patients suffering from blockage due to this cancer. In fact, I am communicating with several physicians regarding this procedure in order to gain some clarification as to why it is not performed more often.
    I will pass on what I have learned. It think that patients should ask their physicians about this surgery at the very first sign of repeated vomiting.
    I am hoping for your Mom to become stronger real soon.
    All my best wishes,
    Marion

    #32196
    lovemymomad
    Participant

    That is exactly what he was talking about yesterday. He did say that her strength needs to increase before he could do it. I’m not real good with these medical terms. I don’t remember him saying “duodenum”, but that is exactly the way he described the surgery.

    She is using the Chloraseptic spray as well. She seems really down in the dumps. They are giving her medicine for this as well. I will keep you all posted.

    So this procedure would not remove the tumor just rearrange things to help alleviate symptoms, correct?

    #32195
    lalupes
    Participant

    Good luck with all this, LMM. You’ve got so much to deal with & I’m sending you my very best wishes.

    Julia

    #32194
    marions
    Moderator

    I am wondering whether the surgeon is considering a bypass surgery. I believe that is what Kris had. Depending on the tumor location (possibly, in the distal common bile duct) a palliative double bypass procedure (Roux-en-Y) can be performed. The way I understand it, a tumor can bulge against the duodenum. This surgery could alleviate the nausea and vomiting caused by the blockage and even eliminate jaundice, in many instances. I just hope that things will improve for your Mom real soon.
    All my best wishes,
    Marion

    #32193
    lainy
    Participant

    Oh my gosh, Oh my gosh. I had stomach surgery Oct 1st and will NEVER forget the nose plug. It is horrendous! Hint: Ask for a bottle of Chloraseptic (sp) and have her spray it in her throat as it will help a little with the soreness of the tube. The PIC line is good (Teddy had that) as they draw all the blood from that line. Convenient and no other black and blues spots. I AM relieved that she is now in the hospital and it sounds like she is getting the attention she needs. IF they did surgery what kind are they talking about? Hope mom improves enough tomorrow to get that nasty tube out.

    #32192
    lovemymomad
    Participant

    Wow, we have been through a lot. Finally have some answers. To make a long story short, mom is in the hospital. She has a tube in her nose draining her stomach and they put a PICCU (spelling?) in her arm today. She then had a scope of her stomach. The doctor showed us some pictures of her stomach and the opening is only about the size of my pinky finger. He then showed us what the opening should look like, and I would say about the size of your fist. So, he said he did not find any cancer in the stomach. Possibly more growth of the bile duct tumor causing the blockage, maybe damage from radiation. Took blood and said let’s see what the numbers come back at. If indicative of more cancer then we’ll have to get mom stable to see about surgery. For right now, she will stay in hospital and work on nourishment and fluids and try to get nose tube out. He said we will do another scope to try to enlarge opening in stomach.

    Anybody have any thoughts on this? Anybody gone through this already? Thank you for your time.

    #32191
    gavin
    Moderator

    Hi,

    Sorry to hear that your mum is going through all of this and has to wait so long to see the doctor. I agree with whats been said about going to the ER now, and if it was my dad, I would be taking him to the ER now.

    Best wishes to you and your mum

    Gavin

    #32190
    marions
    Moderator

    I agree with what has been said. There is always the ER. They will have to tend to her.
    Best,
    Marion

    #32189
    lainy
    Participant

    P.S. Blockages are common, your doctors are not! IF they have had experience with CC you would not be waiting to see them or to get treatment.

    #32188
    lainy
    Participant

    Sorry but I don’t know where these doctors are coming from. I would storm the surgeons office or take her to ER. No one should be suffering this way. I don’t think we have another post on here where someone with blockage has to wait a week to see a doctor. Not sure these doctors even know what CC is.
    I would give it maybe 2 days and if she is not better I would take her to ER. Or change doctors and hospitals before that.

    #32186
    lovemymomad
    Participant

    Okay, oncologist said mom has a blockage and needs to see her surgeon. She is to only have liquids right now. Surgeon can’t see us until one week from today. Worried about mom. Can anybody tell me if it is common to have blockages? If so, what do they do for them? Just wondering what to expect with the doctor.

    Thanks.

    #32187
    lalupes
    Participant

    I’m so sorry your mum’s having such a hard time getting her doctor to talk to her. I entirely agree she needs a new doctor & the old one should be reported!! Behaviour like that makes me so angry!! You all have enough to deal with without having to cope with an treatment like this.

    #32185
    lovemymomad
    Participant

    From Ohio – near Cleveland.

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