New diagnosis
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cjfrancis,
I’m sorry to hear about your mother. I’m glad your husband is doing better. My mother was diagnoised with CC on 4-3-07. We find out tomorrow what treatment they are going to suggest. We are all in God’s hands, and are at his will. I will pray for your husband, and your family. God bless you.
Marc
Hi Cherryle, Yes I am currently taking Xeloda pill form and Oxaliplatin by port a cath. I have not heard of liquid form but am sure it is available as a lot of people can’t swallow the horse pills. I have only had to take antibiotics once in the last three years. Both antibiotocs and Xeloda have caused me some pain gas related. Xeloda initially caused loose bowels but now with reduced dosage I have had some constipation. But now I take duccolux stool softener 2 gel tablets on the end of day three only if nothing is moving . It is very mild but works great in relieving gas and having a bowel movement or two on day four. Cherryle just a reminder that all people can respond and have different symtoms and side effects. It sounds as your mom has more going on than what I am at the moment. Not sleeping well could be several things… Xeloda, pain, stress and anxiety. I take prescribed clonzepam before bedtime and as needed when my mind gets working overtime. It has done me a world of good just getting that full nights sleep. Fortunately it is not expensive. Might ask your GP about it. It also sounds like your mom needs to drink more fluids and keep hydrated as much as she can. It will help with many side effects. I hope this was of some help. One last thing is I also take a pill 30 minutes before breaskfast each morning to lower my stomach acids to a minimun as the chemo has a tendency to raise acid level that can also cause discomfort gas related pain. Bottom line is talk will your Oncologist and or Nurse and inform them of what is happening as normally you are more in touch with what is going on within your body and most of the time you need to advocate what you need. Bless You Both!
Jeff G,Jeff, Are you taking the oral Xeloda? Have you heard of the liquid form of that? Have you ever experienced problems with gas while taking chemo or antibiotics? She
Prayers are surely appreciated. Will see Oncologists this week and plan to get a second opinion. The first oncologists are planning to do Chemo and Radiation at the same time. Radiation five days a week for five weeks and a Chemo pump will be with me to infuse medicine a little at a time all the time. Has anyone had this done in this manner and how did it work? We’re getting a second opinion to be sure this is really what needs to be done. We sure thank God for this website because we all need a support group to help us thru the storm before us. Thanks Jeff and may God bless you and yours as well.
Keeep hold of the bull’s horns Gerry!!! Prayers will be coming your way.
Bless you and your family and pray things go as smooth as possible for you during this trying times.
Jeff G.Hi Cherryle, Glad to her your mother finally gets to come home!! Keep a close eye on her temp, chills, or sweating for a while. Hospitals are surely needed but very easy to pickup infections. I’m sure you know what I mean. God Bless you and your Mother. P.S. Your mother is on the same chemo regimen I’m on. Started out a little rough but just finished my 5th round and going along fairly well.
Jeff G.My mother has been diagnosed with Cholangiocarcinoma. She was diagnosed in Feb.07. She started chemo in March so far she has had 2 rounds of Oxaliplatin with 2 rounds of Xeloda also. After the 1st dose of Oxaliplatin on 3-29 and starting Xeloda on the 30th she went in the hospital April 2 to have what we were told a stint put in. They were unable to put it in where they wanted it but did put it in. It turned out to be an external drain with a bag. Tuesday they looked at what was done to determine if it was reducing the enlargement of the bile ducts. They wanted to wait till Thursday to try again. On Thursday it was a success they were able to get the drain to the bowl and take off the external drain. She was able to go home Thursday evening. This was a success due to lots of prayers. We thank God everyday.
On April 13th she started the Xeloda again and on April 19th she had another dose of Oxaliplatin. While at the office getting chemo she told them the problems she was having with taking the Xeloda. She was to start a new liquid form of this yesterday but on Monday evening she began to run a fever. My dad called the Dr. and was told to bring her to the hospital. Once she got there and they checked her vitals her blood pressure was 88/58, she was dehydrated. She has been there all this week. Her white blood cell count was 28000 on Tuesday but Thursday it was down to 24000 still high. They ran 4 kinds of antibodies and lots of fluids. Her bilirubin was down to 2 or 4 yesterday which is great since it was over 12 before the drain was put in. She sounded much better last night. More like she was before all the came about. This website has been great for me being able to hear other peopleMy husband Gerry has been diagnosed with Cholangiocarcinoma (a rare Bile duct cancer). He underwent liver resection on April 3 where they removed a little more than half his liver and reconstructed some bile ducts with small intestine. The fact that they were able to do this is a gift from God. More often than not a cancer of this type, by the time yellowing arises; it is too late to even do a resection.
On March 16, I took Gerry to the hospital with chest tightening, high blood pressure and a racing heart. They ruled out a heart attack but the heart DR. wasn
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