new diagnosis

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Viewing 8 posts - 1 through 8 (of 8 total)
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  • March 7, 2011 at 2:10 am #24764
    marions
    Moderator

    Alice….a warm welcome from me also. Already you have received some great information and more is come if you so wish. You are doing the best you can do for your friend by gathering information thus allowing her to make informed decisions.
    Please stay in touch. We are in this together.
    All my best wishes,
    Marion

    March 7, 2011 at 12:22 am #24766
    jim-wilde
    Member

    The darned netbook and eyes over forty strike again! Well, I can blame Coletta75.

    March 7, 2011 at 12:15 am #24765
    lainy
    Spectator

    Jim, nice, but Alice posted 2008.

    March 6, 2011 at 1:03 pm #24763
    coletta75
    Spectator

    Hallo du da : )

    December 6, 2008 at 7:30 pm #24762
    alice
    Spectator

    Patty and Lainy-

    Thank you so much for your responses. This is an incredible website, but what a tragically exclusive club. These articles are a wealth of information.

    All the best
    Alice

    December 6, 2008 at 4:38 pm #24761
    tiapatty
    Member

    Alice,

    Welcome to the board, your friend is lucky to have you in her corner. This is a very complicated cancer but you will find lots of people here who have a lot of experience fighting this beast, don’t hesitate to ask questions.

    I know that time is of the essence and there are a lot of posts here so I will point you to some that give you an idea of the treatment options:

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=938

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=431

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=2136

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1783

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1455

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1318

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=2031

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=697

    Also, make sure to read the article that Lisa’s post links to:

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=2038

    Patty

    December 5, 2008 at 5:25 pm #24760
    lainy
    Spectator

    You have come to the right place. We live in Sun Lakes and my husband Teddy has had CC for 3 years. You can look up my posts under lainy. We feel we are with the very BEST here. Teddy goes to Dr. Jack Cavalcant for Oncologist. He goes to John Kresl for radiation/cyberknife and the best one we know of for CC is Dr. James Cashman. He is almost downtown right near St. Joseph Hospital. He was director of liver transplants at St. Joseph. If you would like to call me just send me an e mail and I will send you my phone number. At the time of diagnosis there are so many words to describe what one goes through it is a nightmare. Read all you can, We don’t listen to survival scores as so many on this site have proven the first prognosis wrong. We thrive on hope.

    December 5, 2008 at 5:14 pm #1783
    alice
    Spectator

    My friend B just called me to tell me she has Cholangiocarcinoma. The doctor estimated only a six month survival for her. She hasn’t been to an oncologist yet and has requested that I research doctors for her. We live in the PHX, AZ area. She is actually on the west side – in Peoria. I noticed that there are some Phoenix residents on this board. Can anyone recommend a doctor? B is married with THREE young and beautiful children. We are all still in the stunned stage, but don’t want to delay a moment for treatment. Also, if you’re familiar with it – she has AHCCS insurance and needs a doctor who accepts this plan. Thank you for any help!
    Alice

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