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Hi Tiffany,
Welcome to the site. Sorry that you had to find us all but I’m glad that you have joined us here as you will get a ton of support and help from everyone. I had a look at your FB page and it’s great, you have a ton of support over on FB, and now you have a ton of support here as well!
If we can help in any way then please just ask and we will do what we can to help in answering any questions. Looking forward to hearing more from you and please know that we are all here for you.
Best wishes,
Gavin
Susie…..you might want to open the home page of CCF, top, right, google function: Tarceva.
You will be able to read up on numerous, previous, postings.
Good luck.Also, someone refresh my memory, have we had a lot of members on Tarceva? I can’t remember.
Tiffany, did they tell you why they started Tarceva? Was it based on a study? I always like to hear why doctors are ordering one thing as opposed to something else.
Susie
Tiffany,
Welcome to the site and sorry to hear of your recent diagnosis. MD Anderson is a great hospital and I’m sure they will take great care of you. Do you know what type of CC it is? I am 32 and have intrahepatic, had a resection in May, got 3 cycles of Gem/Cis. 6 wks of chemo radiation with Xeloda. Then I will get 3 more cycles of Gem/Cis. I wish you the best and we are always here for any questions/concerns.
Take Care!
SusieDear Tiffany,
Welcome to our family. I am sorry to hear you have CC. My daughter also has this terrible cancer. She is only 25. She is also on three different chemos and you couldn’t tell she was sick except that she has lost most of her beautiful hair. I am glad you have found this site. There are so many nice people on here that will offer support and friendship. My Lauren can’t read things about CC yet because she finds it too upsetting. If you would like to read the blog I write, it is http://www.caringbridge.org/visit/laurenkunklier Bless you and your family, Tiffany. I wish you all the best.
-Love, Pam
Tiffany-Welcome and so sorry you had to find us. I am a CC survivor, I have been cancer free since May 24, 2009. I found your blog before this post and it was so dejavu. I also went in for a routine out patient procedure, because I was itchy. I ended up in the hospital for 17 days and left needing a liver transplant!! My CC was inoprable and I had 6-8 months with out one. My story has so many “miracles” that happenned for me to be posting. One big one was being put in Dr. William Chapmans care at Barnes-Jewish in St. Louis MO.
There is HOPE Tiffany, and this site is full of life expierences to give you that.
Lots of prayers-CathyTiffany….I would like to follow the others and welcome you to our club. (The one no one wants to belong to, but is glad to have found.)
I am so sorry to hear that you have been diagnosed with this cancer. Many things are working in your favor in that you are young, you have resilience, and you have tons of support coming your way including, from the members on this site; a winning combination indeed.
With the extraordinary amount of daily postings your FB site may become lost in the daily threads therefore, it may be best if you were to re-post it in the “Blog” section of our site. This way we are assured to always have it in a safe place.
I am glad that you have found us because, when it comes to this disease we are in this together.
All my best wishes,
Mariontiapatty wrote:Tiffany,Welcome to our little family, I am sorry you have had occasion to find us but I have looked at your FB page and I can see you have an army of angels on your side and now you have us, too.
May I ask how your cc was discovered? Did you have symptoms or was it by accident?
Patty
Patty- I was having sharp pains under my left breast. I went to a walk in doctor, and they told me to go to the ER. We were at the hospital 6 days, then on day 10 we learned it was cancer, then a few days after that we discovered it was cc.
I feel blessed to have went to the doctor that day, because now I don’t have any symptoms….so there is no telling how long I would of walked around with cc and not know it.Dearest Tiffany, welcome to our wonderful family where you will find the most courageous and caring people the world over. You are lucky to have a winning combination….family, friends, a great attitude and a game plan! I saw your FB and what a great group of friends, you are all awesome.
Tiffany,
Welcome to our little family, I am sorry you have had occasion to find us but I have looked at your FB page and I can see you have an army of angels on your side and now you have us, too.
May I ask how your cc was discovered? Did you have symptoms or was it by accident?
Patty
Welcome, Tiffany. It is a hard pill to swallow since you have no outward appearances of cancer. I’ve been in the same boat. No real cancer symptoms.
The folks here on this board are the absolute best. Please come back often and let us know how you are progressing. Our hearts and prayers are with you and your young family.
Hi everyone! Its hard to believe I’m here! I was diagnosed on 10-27-2011 with cholangiocarcinoma. This was a shock to me, my family, and my doctors. I’m only 29 years old. I’m from Alabama…married it an awesome man named Brian
and we have two children: Carter who is 6 and Madison who is 2.We went last month to MD Anderson for almost two weeks, we seen Dr. Javle. He seems to think I *might* can have surgery sometime in the future. Right now we are doing gemzar and cisplatin every other Monday, and I take Tarceva every day.
Right now, I feel good…the chemo has made me a little sick but nothing too bad. I’m in no pain, its hard to believe I have cancer because I do feel so good.
My family has set up a facebook page to keep all friends updated. Feel free to “like” it.
https://www.facebook.com/pages/Team-Tiffany-Kicking-Cancers-Butt-One-Day-at-a-Time/161164433979891Looking forward to getting to know you all.
Tiffany
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