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Stephanie….I believe that the mortality of stage IV cancer patients has shifted dramatically for the better. Though we realize the seriousness of this cancer, we stay hopeful that the latest scientific advances prove beneficial for our loved ones. Having said that, has a biopsy been performed and was the tissue sent for molecular testing? Although we don’t have conclusive answers to targeted drugs or immune checkpoint inhibitors, in a subgroup of our patients, we have witnessed some spectacular results. Hence you may want to be one step ahead and contemplate the next treatment option.
Hugs,
MarionDear Stephanie, through it all we try to stay realistically optimistic. We have seen some Miracles on this Board even for Stage 4. The best you can do IS to make the most of each day which we all should be doing anyway. When you say you feel like the Mom, I can relate to that. I am 76 now and my daughter is 54. About 2 years ago I asked her if she noticed a change in our relationship, that being I am now the kids and she is the mother. I do not make any decisions without her input and I am truly grateful for her as your Mom is with you. I better watch my step or she will put me in time out!!! You never know how strong you are until “strong” is the only choice you have!
I really appreciate the responses. She was diagnosed May first. She has been having pain on her right side. They confirmed lesions on her liver. Stage 4 Bile Duct Cancer, They also found a few small spots on her lungs…She started chemo shortly after. She has been doing good with the chemo. Nausea and fatigue but overall, she is a trooper. It’s been rough hearing such a grim diagnosis. I still remember the DR’s facial expression as I sat there and heard “Less than year”. I said to myself how can this be. She is 58 years old. This has to be wrong. My heart was and is still broken. We are just trying to make the best of each day and enjoy what we have. Right now she is feeling OK and doing well so I will take it. I feel like our roles have been reversed. I feel like the mother who is a frantic mess day in and out making sure she is OK, along with raising my boy, taking care of a household and working FT. I wouldn’t change a thing but some days I just want to cry. Thank you you again for the responses. It means so much.
Stephanie……I too would like to welcome you to our site. Please know that when it comes to this cancer, we are in this together, all the way.
Hugs,
MarionDear Stephanie Marie, welcome to our remarkable family but sorry you had to find us. I am so sorry about your Mom’s diagnosis and we are a curious bunch here so could you tell us a little more? What was her Diagnosis and where is she being treated.
Yes, it certainly is an upside down disease and in the beginning one feels as though they have been hit in the stomach with a baseball bat. Has a treatment been started? Below is a site you may find helpful and please keep us up to date about mom’s progress.http://cholangiocarcinoma.org/newly-dx/
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