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Hello Angie,
You are not alone. My heart goes out to you. My 31 year old son is experiencing almost exactly the same issues as your Dad. He is not on blood thinner but he is scheduled for the Plurex catheter to be placed on Tuesday. He has been “drained” twice in as many weeks and it is very difficult for him to bounce back. I agree, the weight loss and extreme thinness are heartbreaking constant visuals. I don’t know if this will help you but it did me……..I have been angry that first of all this has happened to my child and secondly that it plays out so cruelly in the end stages. But a couple of days ago my son was sleeping and while watching him I found myself wishing (with all my might) that he would pass, right then right at that moment! It was then I realized it would be much harder to lose my son while he was feeling great, looking great, laughing and enjoying. FOR HIM I want peace and no more pain. My hurt and longing for him will be forever, but my wish for him to be free of this diseased body and to go on with his journey is strong. In other words I will be happy FOR HIM when he passes. I will eventually be strong enough to honor his short but wonderful life!Dearest Angie I want to welcome you to our extraordinary family but say I am sorry aboutr your Dad. Where are you in AZ? I am in Gilbert! Where is Dad in Hospice, here? I can only wish that your Dad is comfortable for his journey and he finds his peace. If you feel the need to talk please don’t hesitate to call upon me, we all truly care and you are NOT alone!
Hello Everyone,
I first visited this site back in July of 2010 when my dad was first diagnosed with Cholangiocarcinoma. I have since visited the site a couple of times and I finally decided to write…. My dad is still alive but he is in the final stage of his cancer. It has been a difficult road but especially these past three months. My dad is currently in hospice care they visit him 3 times a week.
On November 18, 2012 after several hospitalizations his cancer Dr. told us there was nothing else that he could do for my dad. His cancer has metastasized in the Hilum of the liver. He has very bad ascites and has to be drained on a daily basis now, he has a plurex catheter so he does not have to be poked each time. The Plurex catheter was placed after he had internal bleeding after one of the paracentesis, he was on a blood thinner for a blood clot in the liver due to the TIPS procedure.
He has lost a lot of weight but he is sooo swollen from his belly down to his toes it is truly heart breaking to see him go through this yet he is the one who gives me the strength to be strong for him!
My heart goes out to everyone who is and has gone through this with a loved one.
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