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Hi ghamilton,
I would like to welcome you to this site and congratulate you on your resection. I would definitely go for the 2nd opinion because I would be too scared not to do some kind of chemo after surgery. You gotta get those pesky little microscopic cells. My daughter, Lauren is having a resection next week and she is already saying she wants chemo afterwards. I am hoping for all the best for you in the future.
-Pam
Thank you. But eh, you know, we don’t pick the hand we are dealt and have to make it through. I have a great support system and just put one foot in front of the other. No more then everyone on this site does.
Can’t say I haven’t had my bad days for sure like everyone else. I try and stay in the moment, not look back too often with regret, and set reasonable goals for myself.
You are a survivor too!! Every day is a day.
Randi… Going to be tough for thr Orange. Hopefully they are as tough as us Cancer survivors!!!!
How did you keep going with all the set backs you have had. You truly are a SURVIVOR.
Keep strong
Gregg…my husband was born and raised in Syracuse. Have been there a few times myself. In fact, my last trip was in March of last year.
Hugs,
Marionghamilton,
I live in Rochester, NY, just down the thruway. I had my treatment at Wilmot Cancer Center at Strong Hospital in Rochester. I also got second opinions from Roswell Park in Buffalo, Memorial Sloan Kettering, and I took a trip to Minnesota to to to the Mayo Clinic.
Best of luck with your second opinions and treatment.
-Randi-
Great! That makes me feel so good and it sounds as though you have a great team around you. Best of luck and thanks for letting us know. We are nosey and like to know everything!
Lainy and all……. We live in Syracuse,NY and have appt with local Oncologist for second opinion. This Hem/Oncology group has great reputation and treats whole patient: medical, alternatives, nutrition. I feel fortunate. As you mention I am looking for confirmation of what I received at Cleveland Clinic.
Dear ghamilton, welcome to our remarkale family, you have come to the best place to be. First you get a big YIPPEE for having the surgery. Next I would like to echo that it is very important to get 2nd and 3rd opinions because we know many have had chemo after surgery. I know you and your wife have gone through a ton of emotions and anxiety but I truly feel another opinion would set your mind more at ease and would give you validation that doing nothing may be the right thing. The worst that can happen is someone comes up with a game plan which is what I think you both need right now. Otherwise you feel you have been thrown out the door. Please keep us postd as we truly care.
ghamilton…. There is is a big shift from just a few years ago when the majority of physicians did not recommend adjuvant therapy. At present though we see for 7 of 10 physicians prescribing some sort of therapy. I agree with Randi, a second or even third professional opinion is in order. This disease requires patients to become “very” informed, as too much still is unknown and too little Cholangiocarcinoma research is conducted.
Hugs,
MarionWelcome to the site ghamilton, sorry you had a reason to join us, but you have definitely come to the right place for information and support.
I am very happy that you were a candidate for surgery. About the chemo options, you may want to seek a second opinion. Not everyone does chemo after surgery, however, many do and you should be aware of all of your options to make the best, most informed decision possible.
So many people on this site have expressed the same sentiment…having been healthy and feeling good up until the day of their diagnosis or first symptom of this disease. It is very scary that way and really takes people off guard.
You are not alone! We are all here for you.
-Randi-
Looking forward to the support. Like many I was a healty guy on Thanksgiving and 3 months later had cancer surgery and found out my type is rare 5-10%. My wife and I are still working to put our minds and hearts around the news.
ghamilton…a warm welcome to our site. Congratulations on the recent resection. Hoping for you to be well along in your recovery and that each day things become a bit easier for you. So glad that you have found us. We are a unique group of people with a common purpose of interacting, sharing thoughts and ideas and supporting each other all the way.
Hugs,
Marion
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