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  • April 10, 2009 at 10:18 pm #28054
    ljg
    Spectator

    Michelle-

    You are an inspiration to us all. We hear so much bad news, it is wonderful to hear from you today and see your smiling face on your blog. You will be in my thoughts. (((hugs))) -ljg

    April 10, 2009 at 10:02 pm #28053
    michmcd
    Spectator

    Kris,
    They did a biopsy at University of Colorado Health Sciences Center when they did an ERCP and put stents in my hepatic duct. They came back positive.

    Michelle

    April 9, 2009 at 12:54 pm #28052
    tess
    Member

    That is a great story Michelle, and how wonderful that you are feeling so much better. I love the phrase on your blog, “healing journey”. You’ll be in our prayers.

    Tess

    April 9, 2009 at 5:33 am #28051
    jean
    Member

    Michelle

    Welcome! I’m very glad you found us here. And I’m very glad to hear what a good response you’ve had from the Gemzar and the radiation. What an amazing drop in your tumor marker! I read quite a bit of your blog and found your story and positive attitude so inspiring. I was happy to hear of the father of your friend who is a 15 year survivor of cholangiocarcinoma. Such stories give us all much hope! Thanks so much for sharing your story with us.

    Sending prayers and positive thoughts that your good news will continue!

    Jean

    April 9, 2009 at 5:30 am #28050
    devoncat
    Spectator

    Michelle,
    Sorry you are here and have this blasted cancer. It is a nasty, but it sounds like you are putting it in its place. I love hearing how well some people respond to chemo and radiation and I am so happy you are one of them. It gives us all hope.

    How did they determine it was cc? Did they take a sample?

    Kris

    April 8, 2009 at 11:36 pm #28049
    sophie
    Member

    Hello Michelle,

    I am so glad you feel better since you’re off those narcotics. Welcome to the site, and

    all the best to you,
    Sophie

    April 8, 2009 at 7:03 pm #28048
    marions
    Moderator

    Hello Michelle and welcome. Your story is inspiring and I want to thank you for sharing with us. I wish for continued success and that your tumor markers will stay down…down….down..
    Thanks for joining our great, little (or, or not so little) group.
    Marion

    April 8, 2009 at 6:52 pm #2197
    michmcd
    Spectator

    I am a 46 year old female. I was diagnosed with stage 4 metastatic cholangiocarcinoma on 12/8/2008. I started chemotherapy with gemcitabene in January. I had 3 weeks of radiation in February for a tumor on my spine that was causing pain. My CA 19-9 was 5100 in January. In mid-March it has fallen to 526. My PET scan in December showed fluid in my pelvis and lung cavities and a spot on my liver. The PET scan in March showed the fluid and spot on my liver was gone. Neither PET scan showed the main tumors in my bile and hepatic ducts. I was on narcotic pain medication from November until early March. I feel so much better now that I am off the pain medication. I am starting to walk to build my muscles back up.

    I have a blog with all of the details. It is at http://michellemcd80525.blogspot.com/

    Michelle

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