August 28, 2009 at 6:27 pm #28692darlaParticipant
I am a little late, but want to join in with the others welcoming you. It appears you have gotten some good advice and have a great daughter as an advocate for you. I am glad things are going better for you now than when you first signed on. Hoping to here more good news from you in the future.
DarlaJune 7, 2009 at 7:24 am #28691marionsModerator
Eleanor…..I am wishing for many more good days coming your way. I don’t know of anyone on this board loosing all their hair therefore, you may not loose your’s either. And, thank you to your wonderful daughter for leading you to this site. It always is wonderful to hear from you.
MarionJune 7, 2009 at 4:11 am #28690lainyParticipant
Hi Eleanor, so happy to hear you are doing well. It does help to have a great daughter! I hope also you don’t loose your hair but it might be fun being a redhead then a blond then a brunette! And it sounds like you will NOT loose hope!June 7, 2009 at 3:45 am #28689jamie-dMember
Glad to hear you are doing well. It is wonderful that you have the support of your daughter. Keep us posted how you are doing. God Bless,
JamieJune 7, 2009 at 3:32 am #28688
Hi Support Group,
I am in my 3rd week of radiation and my 6th week of Zeloda. The Ritalin seems to really help with my fatigue.
My daughter Katherine, is a instructor of nursing and very helpful in my care. In fact, she found this web site for me, that I value very much.
My doctors consist of Dr. Charles Petrunin, hematology oncology in Salem, Oregon and also Dr. Hennig radiologist for Salem Hospital. My 4th biopsy was finally successful at Oregon Health Science Center, Dr. Billingsly, surgical oncologist did it, which is in Portland Oregon.
All of these doctors have heard of cc, but being so uncommon of a cancer, I can’t say they are experts, but the care is good and my daughter continues to monitor.
I have good days and bad days, and I will not loose hope or my hair!!!
I wish everyone well and will get on this site as often as possible, my computer skills are limited. I do answer my email at Buckeleanor@comcast.net, please write anyone.
Sincerely, your partner in the journey of cc
Eleanor WilliamsMay 25, 2009 at 12:25 pm #28687duke0929Member
i dont want to say WELCOME ELEANOR for reasons im sure you understand, but you have found our family. a very strong family that will listen, advise and help in any way we can…..stay strong, stay positive,and fight……ronMay 25, 2009 at 12:08 pm #28686lainyParticipant
Good to see you Vincent and thanks for letting us know how your family is doing. From your wonderful posts I had no doubt they would do anything but good, especially since that wonderful mother of yours is still guiding all of you!May 25, 2009 at 5:30 am #28685vincently22Member
Welcome to the club Eleanor! You’ve found the rite place where u’ll meet alot of great people who will always provide great supports to you. Hello everyone, I’m back here to tell everyone that I’m doing good. It’s been 1.5 months since mom passed away. Everyone in the family is doing much better than I thought. I didn’t get a chance to read about the “First standard treatment improves survival …” but I’m glad they finally have something as standard treatment.May 22, 2009 at 8:53 pm #28684jamie-dMember
I was on Xeloda and Gemcitabine when I was diagnosed. I had the fatigue long before I was finally diagnosed. I cant offer any info on Ritalin but I would suggest trying to keep up your strength and immune system. I believe there are many posts about supplements and nutrition here. I think Milk Thistle seeds are a real benefit for helping the liver. If I can be of any help please just ask. God Bless and have a wonderful weekend.
JamieMay 22, 2009 at 5:38 pm #28683
Dear partners in CC,
I love to read your responses and encouragement. No one really knows unless they have a similar battle like ours and the comfort of sharing is overwhelming.
I do wish you all a ‘feel good’ weekend with pleasant thoughts and thanks for encouraged me and each other.
Prayers and well being
Eleanor WilliamsMay 16, 2009 at 4:13 pm #28682marionsModerator
Eleanor….others may personally share their experiece also. On this board, we have seen, physicians to prescribe Ritalin to their patients. I don’t know how effective it is therefore, I am hoping for someone to give that information to you based on their own experience. I am sorry to hear that this is your third bout of cancer. My husband also had survived another cancer (testicular) twenty years prior. We think that the radiation given at that time contributed to his development of CC. One day, I am sure, the key to this disease will be found. I just wish, it would be here “yesterday”. If I may ask: who is your treating physician? Has he/she physician experience with this cancer?
I am wishing for a warm and pleasant weekend,
Many warm wishes coming your way,
MarionMay 16, 2009 at 3:39 pm #28681rook13Member
Welcome to what I’ve found to be the most wonderful, supportive, and informative group of loving individual’s EVER! I’m new at this as my husband was recently diagnosed and find GREAT comfort in this BLESSED foundation.
KarenMay 16, 2009 at 2:56 am #28680
Dear supporting friends, I have been on xeloda for a month, the side effects are severe fatigue, I heard that ritalin could be of value. Do you have comments about this?
I was diagnosed after 4 biopsies and the cc finally found was deep in the liver and biliary ducts thus not operable.I am 72 and have lived and survived breast cancer and then lymphoma three years ago.I will fight this but it is serious. Thanks for your caring involvement in my life. Sincerely Eleanor Williams Salem, OregonMay 6, 2009 at 11:17 am #28679kristinParticipant
We are so glad you found us! Please tell us a little more about yourself when you’re ready to, and let us know what we can do to help.
Sending you healing wishes!
KristinMay 6, 2009 at 9:42 am #28678gavinModerator
Hello Eleanor, welcome to the site, although I am sorry that you have to be here. I am sure that you will find the answers to many of your questions you may have and also receive tons of support and help from everyone. My dad has been fighting this illness since last year and this site has helped me enormously. I look forward to reading your posts.
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