new member first post
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Posts
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David,
Welcome to the family here. Sounds like you have been through so much with all this. I think it sounds very good that you were able to have the surgery and now there seems to be nothing there. I guess that no news is good news.Good luck,
KrisVDavid,
Welcome and thank you for joining us. i so agree with the small victories meaning so much and being thankful for every day together with loved ones.
I wish you and your family the best-
Catherine
David…. Thank you for sharing this inspiring story with us. Your weight gain and increased energy are nothing but remarkable. Not sure that I would look at it as a small victory, but rather that all things are working in your favor. Congratulations to you, your wife and everyone else standing by you.
Hugs,
MarionThank you for the welcomes. My case may be a little unusual it began with itching and indigestion followed by blood work to show elevated bilirubin. after 9 ercp’s and many stents of a blocked duct I had lost 80 pounds and couldn’t digest anything so Christmas 2014 I was admitted for an emergency hepaticjujenoscopy to remove blockage and reroute digestion around duedeim which had swollen shut during surgery biopsies were taken bile duct showed positive margins and duedeim was also positive. Due to my poor overall condition(138lbs) after 5 weeks in hospital I was released and brought back two weeks later for a fistula leaking through my abdominal wound and was given the pathology report. Following this I was released with no treatment options and sent home to be with my family. With the loving care of my wife and support of everyone despite my prognosis I have regained 60 lbs and also much of my energy lately almost one year after diagnosis a follow up dr visit lead to an oncology visit and some tests that couldn’t conclusively show the cancer as it never presented with a mass or show any markers in my blood. We as a family have learned to take small victories and value our time together. it has been a wild year almost two but we are doing quite well now.
David….I too am thrilled to welcome you on this site and to know for you and Scott had the ability to meet. How cool is that?
Hugs,
MarionOh, you guys! That is wonderful! I am thrilled that you met and can be there for each other to help and to compare. YEA!
Hello David, it was great to make contact with you guys last night. I’m still blown away that 2 guys close in age that live minutes apart have the same rare disease. We even have the same name. My first name is David, but I go by my middle name. I added you guys on FB, so message me anytime you would like.
Hello David Ells and welcome to our fabulous family and best place to be for CC support. Congratulations on your surgery as that IS one of our favorite words. May I ask what kind of surgery you had and what is the follow up treatment plan. The surgeries do take a good amount of healing time. But if anything is wrong please let your Doctor know.
One of our newer members is also from Nova Scotia, I believe it is Kentville? Scott is fabulous and I hope you 2 are not too far apart. The best feeling in the world is to meet another family member. Happy you have become an active member besides being a big reader. Hoping for you to start feeling much better and please do keep us posted on your progress.I have read many posts on this great site for almost a year now. I was diagnosed with stage 4 cc on Feb. 2 2015 after over a year of symptoms and procedures culminating in abdominal surgery in Dec. of 2014 followed by many months of difficult recovery, but doing much better now. This site has been very helpful to me and I thought it was time I said so. Iive in Nova Scotia Canada
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