New member, recurrance of bile duct cancer

Discussion Board › Forums › Introductions! › New member, recurrance of bile duct cancer

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  • February 22, 2017 at 2:42 am #94177
    lainy
    Spectator

    Dear Kelly, Welcome to our remarkable family and the best place to be for CC support. Truly sorry to read about the diagnosis of your CC but you have come to the best place for CC support. Not to mention our remarkable family.

    When you have a chance, read some of our Members posts or if you have a question you can use our Search Engine at the top of the page. Type in a word or 2 and many posts will appear on that subject.

    Do not be shy about getting 2, even 3 or 4 opinions. This is a very rare Cancer and no Doctor will mind you wanting more opinions. Keep a folder of all test and LAB results.

    Please let your ONC know about absorption/digestion and weight loss and anything else going on as there are MEDS to take care of all those situations. You might try some nutrition shakes as they can even be taken in place of a meal or taken with a meal. My husbands favorite was Carnation Instant Breakfast, Vanilla and I would blend in a banana.

    Here is a site you may find helpful:
    http://cholangiocarcinoma.org/newly-dx/

    Please do keep us updated on your progress as we truly care.

    February 22, 2017 at 2:17 am #94176
    positivity
    Spectator

    Did you get opinions from several oncologists? Are there any clinical trials offered in your area?

    February 22, 2017 at 1:25 am #13056
    kmarquis
    Spectator

    Hello,
    I’m new to the site, and grateful for the depth of information and support. I’m 49 year old female with bile duct cancer.
    I was diagnosed in March 2015 and had Whipple surgery, chemo, radiation with oral chemo. Then had a wonderful healthy year till the cancer recurred, re-diagnosed in November 2016 and am in chemo (gemzar and cysplatin) again. Have been told tumor is inoperable because of location near aorta. Also had spread to lungs. Hoping for TIL cell clinical trial at NCI/NIH, but my cells (they took tissue from my lung and apheresis) have not been growing properly. They are retrying – thinking it might have been a lab contamination issue.

    I’m hoping for suggestions for where to look next if chemo not successful at stabilizing or shrinking cancer. Did not have success looking for tumor markers (gene sequencing) through Foundation Medicine and Duke. I’m having a horrible time with absorption/digestion and weight loss this time around. Constant bloating and gas and frequent diarrhea.

    Any advice, suggestions, support would be most welcome. Thank you!

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