Dearest Wendy, CONGRATULATIONS on being such a powerful SURVIVOR and your attitude is totally amazing! I am happy to hear your Doctor is doing a change on the Chemo cocktail as you never know when something else is going to kick in better. It sounds like you are taking the chemo well with not many side effects so that helps, especially with 2 little ones running around. I hope you keep up with your wonderful attitude because you are also helping other members here by doing that and I pray the new chemo kicks the heck out of it. You have come to the best place to be even though we wish you didn’t have to be here. Please keep us updated as we truly care.
My name is Wendy. I am 41 years old and a mother of 2 little children. I have been fighting cancer since January 2011. I am suffering of intrahepatic cholangiocarcinoma and I have had several operations (liver resection, internal bleedings) and radiological interventions (such as Nanoknife treatments) in the last couple of years in order to remove the tumor.
Although the treatments seemed successful at times the cancer returned. Therefore I had to receive chemotherapy in order to be able to prolong the process and my life. In total I have received 16 chemotherapies (2x 8 chemo courses) with Gemcitabine and Cisplatin. Unfortunately it did not prevent the tumor from growing, leaving me with a dismal prognosis, again.
After a therapy pause of four months, I will probably start with a second line chemo therapy called 5FU next week. I had hoped to join a Belgium trial based on a FGFR gene mutation, but unfortunately my gene test came out negative.
Although the latest scan shows a growing tumor in my liver with growing metastases in my longs, I feel surprisingly healthy and vital. Therefore I am still desperately seeking for other options to turn the tide. Hopefully I can find them here with you! This site has already given me lots of extra information. I am glad that I have found you!