New to Board

Discussion Board Forums Introductions! New to Board

Viewing 4 posts - 16 through 19 (of 19 total)
  • Author
    Posts
  • #68334
    willow
    Spectator

    Thank you for sharing your story, triple blessed! I am searching for hope for my sister who also has ICC and a young child. I need to look up what exactly chemoradiation is. Best to you and thank you again!
    Willow

    #68333
    lainy
    Spectator

    Dear TripleBlessed, welcome to our extraordinary family but sorry you had to find us. WOW! What a story. I am at a loss for words and no one can do that to me, I find something to say. You are a true hero and survivor and a good example of hope. Thank you for posting the article as well. Now that you have found us please keep us posted on your progress as we truly care. What a fine example you are for your children, they have a very couragous Mommy and you truly ARE Triple Blessed!

    #68332
    wallsm1
    Spectator

    Thank you so much for sharing your story with us!!
    I tend to be private about my situations as well.
    Your case is similar to mine. I am 33, had intrahepatic cc and a left hepatectomy 5/11 followed by 3 cycles of gem/cis, 6 wks chemo radiation and 3 more cycles of gem/cis. I had negative lymph nodes and negative margins, but one margin was close.
    This group is such a wonderful resource. Welcome to the site but sorry you had to find us.

    Take care,

    Susie

    #7842

    Hello Everyone!

    I have been using this board for months to research the best course of action for fighting this cancer. I am a young mother of 3 children, 5, 3 and 9 months. I never thought I would actually post to this board as I tend to be private but my case was recently published in The Oncologist Journal and thought it may help some people who are in the same situation as I am in. I have attached the journal article which tells you more than you probably want to know about my case (Intrahepatic, Resected, Stage 2A). You will see two doctors responses to my case, a pro and a con response as far as adjuvant therapy. The pro response is from Dr. Andrew Zhu of Massachusetts General Hospital and the con response is from Dr. Jennifer Knox from Princess Margaret Hospital.

    I have currently completed 4 cycles of Gem/Cis and I am one week into Chemoradiation. I am a patient at Massachusetts General with a great team of doctors, Kenneth Tanabe (Surgeon), Andrew Zhu (Oncologist) and Ted Hong (Radiation Oncologist). I hope people find this article helpful!

    http://epub.theoncologist.com/i/99248/67

Viewing 4 posts - 16 through 19 (of 19 total)
  • The forum ‘Introductions!’ is closed to new topics and replies.