New to the Group
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- This topic has 23 replies, 15 voices, and was last updated 9 years ago by iowagirl.
May 12, 2014 at 3:25 am #76124iowagirlMember
Stephanie, I’m so very sorry to hear about your husband’s death. My heart goes out to you.
Julie T.May 12, 2014 at 2:16 am #76123okansasSpectator
Oh my gosh, Stephanie, I’m so sorry. Even though I saw my own husband fade before my eyes in two months’ time last fall, it is still so shocking to me to hear when others also pass so quickly from this disease.
As someone who is only about six months into being a widow myself, I offer you my deepest sympathy.
I’m glad you’ve found this community of fellow travelers. I’ve learned so much here about the disease my husband died from and it’s helped me to understand what our family, particularly my husband, went through.
I suspect you take comfort from knowing Matt found this site and was making use of it. I hope you’ll find this family of supporters will also be a comfort and a help for you too.
Again, I’m sorry. May the caring of others help you find some respite from the sorrow and pain of your husband’s passing.
MargaretMay 11, 2014 at 12:48 am #76122RandiSpectator
I was so sorry to read your post about Matt, but thank you for updating us. Sounds like Matt fought a good fight. My sincere condolences.
Please come back here when you need support. Many here on this site have unfortunately been in your shoes.
My thoughts are with you and your family.
-Randi-May 10, 2014 at 10:43 pm #76121marionsModerator
Stephanie….so very sorry to hear that another young person had to succumb to this cancer. My heart is with you in this difficult time.
Hugs and love,
MarionMay 10, 2014 at 10:17 pm #76120
Thank you for your kind words and thoughts! I’m truly grateful!May 9, 2014 at 5:29 am #76119gavinModerator
I am so sorry to hear of Matt’s passing. Thanks for letting us know about that and my condolences to you. I wish there was something that I could say that would help right now but please know that my thoughts are with you and your family.
GavinMay 8, 2014 at 10:58 pm #76118darlaSpectator
Thank you for letting us know that Matt passed away. I am so sorry for your loss. You have my deepest sympathy and understanding. Losing a loved one to this disease, so quickly, is hard to understand and deal with. Especially someone so young. Try to take some comfort in knowing that at least for him it is a blessing that it went quickly and he is now in a better place, no longer suffering or in pain. Keep him with you forever in your heart and memories.
Love & Hugs,
DarlaMay 8, 2014 at 9:46 pm #76117kris00jSpectator
Oh, Stephanie, I am so sorry. My thoughts are with you. I know it’s not much, but at least he is now cancer free. And he will be with you always.May 8, 2014 at 8:47 pm #76116
Hello, this is Matthew’s wife Stephanie. I just found this website on Matt’s computer today. I wanted to let you all know that Matt lost his battle with cholngiocarcinoma November 5th, 2013. He passed away at the University of Chicago two days before his 36th birthday. They did remove 60% of his liver but it didn’t look good when the doctor opened Matt up. The doctor said that Matt’s liver was green. Matt did well the first week after surgery and even was able to be off of the vent for several hours, but then had to be placed back on it later in the day because he was having trouble breathing. The second week after surgery things were not going well at all. He was retaining too much fluid and his liver was barely functioning. Toward the end of the week his kidneys stopped working, he had an episode that caused his heart to be damaged. The kidney machine did not help him because his blood was clotting too much. His oxygen level went down and his BP did the same. My father-in-law and I had to make one of the most hardest decisions of our lives. We said goodbye to Matt at midnight. He fought so hard, but God needed to taken him home and heal him there. I miss him so very much. I’m surprised that I’m not crying as I write this, but that too comes and goes. I just want everyone to know that he did appreciate your kind words and suggestions! He was very happy when he found this website! I hope all of you take care and get well soon! Keep fighting no matter how hard the battle is God will get you through it! Peace.
Stephanie D. SanfordOctober 5, 2013 at 9:11 pm #76115hamptonsarasotaMember
Hey Matt, like everyone said, sorry you had to find this site. I’m 42, was diagnosed after the resection surgery officially, but am 2 years cancer free as of 9/14/13. This web site is great and very informative. All of the moderators have a ton of insight and if you have a question, just post it and you’ll get a helpful response.
Best of luck with your scans and in getting a game plan together. The game plan is probably the most important thing, knowing that you’re doing something instead of just the waiting. Keep us updated!October 4, 2013 at 2:11 am #76114RandiSpectator
Welcome to the site that no one wants to have to join, but where you will find the most special, supportive, and informative people.
I wish you great good luck on your upcoming PET scan. Please update us when you can.
-Randi-October 3, 2013 at 5:59 am #76113gavinModerator
Welcome to the site. Sorry that you had to find us all here but glad that you’ve joined as you are so in the best place for support and help and you’ll get loads of both from everyone here. Hoping that your PET and meeting with the Docs in Chicago goes well and you will learn more about your options then. Please let us know how that goes and what they recommend as to further treatent options. Keep coming back here as you are not alone in this now. We are here for you and we care.
My best wishes to you,
GavinOctober 2, 2013 at 5:08 am #76109marionsModerator
Matt….please keep us posted.
MarionOctober 2, 2013 at 3:09 am #76112
Thanks everyone for the welcome and tips. The blood sugar is doing ok so far. I’ll check it before I go to bed and see if I need a little.
MattOctober 2, 2013 at 2:09 am #76111jathy1125Spectator
Matt, Welcome and sorry you had to find us. I am a CC survivor, 4 years cancer free. I was lucky to have been able to qualify for a liver transplant. I have an a amazing story to share and I keep it posted at http://www.catherinedunnagan.com under the telegraph link. There is HOPE
This is a very rare and misdiagnosed cancer, so you need the most knowledgeable and aggressive doctors. My miracle worker/hero was Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO.
Like Lisa said feel free to call (618-567-3247l or email any time.
Lots of prayers and HOPE-Cathy
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