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Viewing 15 posts - 31 through 45 (of 57 total)
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  • July 22, 2013 at 11:08 am #73648
    ilias
    Member

    Hi Lainy,

    hope you are well. I think Jeff is referring to Eli..Both Eli and I have the same name.

    Ilias
    My mother, my hero

    July 21, 2013 at 6:00 pm #73647
    gavin
    Moderator

    Thanks for that Lainy, we can always rely on you!!

    Jeff, I had a look through all of your posts and threads and could not find a thread which Ilias posted on. Did you mean Eli from Canada instead of Ilias? I know that Eli helped you out a lot on this thread of yours here –

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7941

    Gavin

    July 21, 2013 at 1:52 pm #73646
    lainy
    Spectator

    Hi Gavin and Jeff, the person you are looking for is Ilias.

    July 21, 2013 at 6:01 am #73645
    gavin
    Moderator

    Good point Marion, I never thought of that!! I’ll go email Jeff now.

    Hugs back at you,

    Gavin

    July 20, 2013 at 8:54 pm #73644
    marions
    Moderator

    Gavin….not sure that Jeff can find your response. Would you mind e-mailing it to him?
    Thanks and hugs,
    Marion

    July 20, 2013 at 6:01 am #73643
    gavin
    Moderator

    Jeff,

    To answer your points.

    1) http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=10338

    2) Just log into the site as you do, follow the link and just respond in the text box below Willow’s answer to your post.

    For 3 and 4 you could follow this link –

    http://www.cholangiocarcinoma.org/punbb/search.php?action=show_user_posts&user_id=8956

    Click on the topic headline under the dates of the posts and answer that way.

    5) If this person replied to you via email then that answer will not show up on the site here. Can you check your spelling of Ilya please, I searched for a poster of that name and couldn’t find one.

    Hope the above is of help to you.

    Best wishes,

    Gavin

    July 20, 2013 at 5:32 am #73642
    marions
    Moderator

    Sandy….I also wanted to mention that we have a running feed on clinical trials:
    http://www.cholangiocarcinoma.org/clinicaltrials.htm

    You need to scroll to the bottom. Don’t hesitate to ask if you have additional questions – we are here to help.
    Hugs,
    Marion

    July 20, 2013 at 5:29 am #73641
    marions
    Moderator

    Jeff….not sure that you will find this however; I will try to e-mail instructions to you within the next few days. Others may do the same.
    Hugs,
    Marion

    July 20, 2013 at 3:22 am #73640
    ccactive123
    Spectator

    Help!

    For me, CC is easier than computers (but just because I’m really lucky). Any help you can give me would be deeply appreciated with any or all of the following:

    1. I am Jeff Gold, CCActive123 and posted something today I can sometimes find. Where is it and how do I get there?
    2. Willow responded to me. How do I respond to her?
    3. How do I check for responses to my posting so I can be timely?
    4. Is there one place to see my postings and the responses to them? I am so lost.

    Ilya in Canada helped me a while back. Sorry to be so stupid; I guess I was cut out for Extreme Luck instead with my CC story.

    Could you reply to my email address below as I’m too daft to find what response you might make? Arrggh.

    5. Where would I find such a response?

    Jeff Gold
    Jeff@JGYoga.com

    July 20, 2013 at 2:56 am #73639
    marions
    Moderator

    And this:http://clinicaltrials.gov/ct2/info/understand
    Hugs,
    Marion

    July 20, 2013 at 1:56 am #73638
    pcl1029
    Member

    Hi,

    http://www.cholangiocarcinoma.org/clinicaltrials.htm

    God bless

    July 20, 2013 at 12:29 am #73637
    sandynyc
    Member

    Hi All
    Just checking in and thanks as always for the support, the love, caring and fight!
    It’s been a quiet week – Dave began the pump chemo Monday. The Celebrex (not being covered by Insurance still fighting with them but not going down that rathole here) the Oncologist prescribed really seems to have turned him around though the last 2 days he has zero appetite. I’m sure the constant 100 degree temperature we have been experiencing even during the nights isn’t helping. Dr. Fong’s suggestion of virgin Pina Coladas though still seem to be saving the day!!
    I do have a question – probably premature as we are just starting our chemo journey- about Clinical trials. I would like to at least think they are potentially options worth investigating. I imagine they are specific to the extent of the CC, spread, size etc. Where would I start if I wanted to research to see if any would apply to us?
    Thanks in advance for any advice. Have a wonderful and an unforgettable weekend!

    July 17, 2013 at 2:02 pm #73636
    lainy
    Spectator

    Dear Sandy, good, good news! Congratulations on your new kid! Love your attitudes and the fight in you. You are now entitled to a pair of Pink Boxing Gloves studded with Diamonds and Hubby gets Black Leather studded with silver. Please keep us posted as we all truly care!

    July 17, 2013 at 6:44 am #73635
    marions
    Moderator

    Sandy….amazing how quickly things changed for the better. I am thrilled to read your postings. Wishing for continued success heading your way and for your husband enjoying the return of his appetite.
    Hugs,
    Marion

    July 17, 2013 at 5:58 am #73634
    gavin
    Moderator

    Forgot to say as well, loving hearing that fighting attitude from you as well! Keep that up also as that will certainly help you both throughout!

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Viewing 15 posts - 31 through 45 (of 57 total)
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