February 2, 2010 at 12:28 am #34950ajcarman72Participant
Welcome maebas2. Similar to you my mom is 56 and healthy as can be when they found her liver mass a year ago. All my best to you and your family. It sounds as though you guys are in a great place to get treatment!
AprilFebruary 1, 2010 at 9:35 am #34949cinnaminParticipant
Hi maebas2….we are both in San Diego! I’m so sorry to find you here. My Dad is going through the same thing, and we are finding plenty of help and hope at UCSD. Dr. Hemming will be doing my Dad’s resection this Wednesday. Please feel free to contact me at any time.
Hang in there, we WILL get through this
JanetJanuary 23, 2010 at 1:54 am #34948marionsModerator
maebas2…..I would like to follow all the great members on this site and welcome you to our site. Good luck with the upcoming visit and yes, USC has a great team. I anything, your Dad may want to go there for a second opinion.
MarionJanuary 22, 2010 at 3:00 pm #34947darlaParticipant
As you can see, this site is the best place to go for help and support concerning this type of cancer. You have already gotten a lot of great advice, so I would just like to welcome you and wish you and your family the best. I will be hoping things go well for your Dad. Please let us know how things are going. We are all here for you and your family to help in any way that we can.
DarlaJanuary 22, 2010 at 11:10 am #34946lalupesParticipant
Welcome, welcome to this wonderful site, maebas2. I wish you the very best of luck tomorrow & please tell us how you get on with the surgeon.
Yes, mixed emotions are very normal in this. My own emotions swing all over the place, even though I feel I’m getting used to living with my sister’s CC now. I remember in the very early days (July) I was bouncing off the walls on a regular basis (& coming on here to bounce off them some more, too!!)
JuliaJanuary 22, 2010 at 7:11 am #34945
Thank you to everyone who has replied to my posting. I appreciate all the support that all of you and this site is providing. I just came home from visiting my parents and my dad is still in good spirits. He has been doing research and has found some great information at USC in LA. Seems like they have a surgeon or cancer center that specializes in cholangiocarcinoma. But, we will be seeing the surgeon here at UCSD and see what he has to say tomorrow. I am not sure where exactly the tumor is. I will ask the surgeon tomorrow and hopefully get the MRI report to get a better insight. I will definitely be posting tomorrow after the doctors visit. Praying for the best. Thank you all again!January 22, 2010 at 4:14 am #34944scragglesMember
Hi there, I’m so sorry to hear about your dad. My mom was diagnosed with CC 2 days before Christmas, (surgery is not an option for her) she is also only 56 and I am 29. I know exactly what you are going through.
Try to stay positive, and good luck tomorrow, let us know how it went.
ScragglesJanuary 22, 2010 at 2:36 am #34943mlepp0416Participant
Sorry to hear about your dad, however you have found the best site to be a member of. Of course we all wish that we didn’t know about this site. You will find a lot of information on this site and will get a lot of feedback.
The best advice that I can give is to ask all the questions that you can, do all the research that you can. Never take NO for an answer. Being informed is your best ally in your dad’s fight with CC.
My husband Tom has CC and was diagnosed in May 2008 and underwent a resection in June 2008. Tom, like your Dad was never sick! The only indication that there was something wrong was that his liver enyzmes were elevated!
Unfortunately, Tom started turning jaundiced on Thanksgiving 2009. He has a re-occurance of a CC tumor in the remaining right biliary tree. It is inoperable. You can read more about Tom’s journey on this site. My login name is melpp0416.
Try to remain positive as no one has an expiration date stamped on the bottom of their feet or on their butt!
My daughter Brianne is 25 years old and Tom has been her step-dad for almost 10 years. She too is having a hard time dealing with Tom’s cancer and terminal diagnosis. I will tell you, as I tell her, take it one day at a time, spend time with your dad as every moment is precious. Build those memories and take a lot of pictures.
Prayers for your dad are coming his way from Wisconsin.
Go with God and KEEP KICKIN’ THAT cancer!
MargaretJanuary 21, 2010 at 11:52 pm #34942rayeMember
You are in the right place at UCSD. Can you tell us where the tumor is located? I’m a liver surgery transplant survivor and I’m always looking that an early detection lends a chance that surgery or transplant can be effectively done to help. Let us know what the surgeon says will you please?
Keep the faith.
PS I had several enlarged lymph nodes as well but nothing came of those.January 21, 2010 at 11:06 pm #34941lainyParticipant
Hello Maebas2 and welcome to our Family. Everything you feel is totally normal. It sounds like your doctors have a game plan and honestly that is good news. The more you read on our site the more informed you will become and the fright will turn to fight. Be strong and please keep us posted.January 21, 2010 at 10:57 pm #34940gavinModerator
Welcome to the site, although I am sorry that you have to be here. I hope you will keep coming back here as you will get a load of support and help, and as Kris rightly says, knowledge is power. So come here, post lots and ask as many questions as you want and you will get help from us all if we can.
Yes feeling lost and having your emotions all over the place is certainly normal after diagnosis. My dad had CC and I went through the same feelings that you have now after his diagnosis. These feelings will pass and then you will come out fighting for your dad and be strong for him. Stay positive.
My best wishes to you and your dad.
GavinJanuary 21, 2010 at 10:43 pm #34939
Kris, thank you so much for your reply. That information about the lymph nodes has help my anxiety. I do hope it goes well tomorrow and I will be sure to keep it posted. Thanks again.January 21, 2010 at 9:40 pm #34938devoncatParticipant
Welcome to the site. You have come to the right place for support. It is scary, but knowledge is power and we are a wealth of knowledge.
I hope your dad is a candidate for surgery. On a hopeful note, I had cancer in a lymph node and it cleared up with chemo, just wish my other tumors would have followed suit. My oncologist also said something to the effect that cc in the lymph nodes was not as bad as other types of cancer in the lymph nodes since it is usually a slow growing cancer so having it there doesnt mean the immediate spread that usually happens with other cancers.
Best of luck.
KrisJanuary 21, 2010 at 8:31 pm #3102
Hi everyone. I am brand new to this because it was only yesterday that my dad was diagnosed with cholangiocarcinoma. My dad is only 56 years old and I am only 24. I feel lost and mixed emotions. I’m sure that is normal, right?!
It all started on Christmas Eve, Dad came home from work not feeling well with a complaint of chest heaviness. I had my mom take him to the emergency room and he was admitted to the hospital Christmas Day. His heart work up came out fine, but since he was complaining of right sided pain for a couple months now, they did an abdominal ultrasound. That is where they found the liver mass. My dad was discharged from the hospital and referred to see an oncologist as an outpatient, because my dad is pretty much healthy and has been! So luckily we got referred to a great oncologist Dr Kenneth Johnson, who’s office is right across the street from the hospital i work at. That visit on New Year’s Eve, we were told he had liver cancer. It tore me to pieces, I wasn’t able to go back to work and luckily i was sent home to spend time with my family. The last couple weeks we had an abdominal MRI done and a CT-guided liver biopsy, all as outpatient. We had our visit with Dr. Johnson yesterday which he discussed the biopsy results. We all thought it was going to be hepatocellular carcinoma (liver CA) but in fact it was CC. After all this research, I’ve turn myself to this website as a support group. I feel helpless, but I know I am strong and need to be for my family. We are meeting with the liver surgeon tomorrow, Dr. Khanna at UCSD medical center to get his opinion if this is operable or not. After reading the pathology report, it stated there was enlarged lymph nodes involved, which scare me. But, I guess all we can do is wait for the verdict tomorrow. If inoperabled, Dr. Johnson wants to start chemo next week and possibly get an opinion on chemoembolization.
I will be strong, with God’s faith…thank you for this support site.
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